Physical activity interventions for children and young people with cerebral palsy

Gorter, Jan Willem

doi:10.1111/dmcn.13550

Cited by 12 publications

(3 citation statements)

References 5 publications

(8 reference statements)

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“…Rehabilitation offers the opportunity to promote a physically active lifestyle and increase home and community participation of children with disabilities (13,14). There is, however, evidence that physical training intervention by itself is not effective in improving and maintaining habitual physical activity among children and youth with disabilities (15). Therefore, moving towards a goal-directed, activity and participation-focused rehabilitation is suggested for promoting sustained participation and healthy active living among children and young people with disabilities (15)(16)(17).…”

Section: Introductionmentioning

confidence: 99%

“…There is, however, evidence that physical training intervention by itself is not effective in improving and maintaining habitual physical activity among children and youth with disabilities (15). Therefore, moving towards a goal-directed, activity and participation-focused rehabilitation is suggested for promoting sustained participation and healthy active living among children and young people with disabilities (15)(16)(17). Integrating physical activities into daily life and incorporating physical activity programs in the home and local community are also needed for maintaining an active lifestyle after rehabilitation (14,18).…”

Section: Introductionmentioning

confidence: 99%

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The missing link to sustainable participation in community-based physical activity after rehabilitation: a qualitative study about experiences of immigrant parents and their children with disabilities

Arfa¹,

Solvang²,

Berg³

et al. 2020

Preprint

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Background: Children with immigrant backgrounds and disabilities have lower rates of social participation compared with their nonimmigrant counterparts. However, rehabilitation programs offer an opportunity to promote a physically active lifestyle and increase home and community participation of children with physical disabilities. The purpose of this study was to explore immigrant families’ experiences of participation and associated challenges and/or facilitators in the local community after taking part in a participation-focused rehabilitation program in Norway. By generating knowledge about immigrant families’ experiences, this study suggests how to promote sustainable participation after rehabilitation among immigrant children with disabilities.Methods: The study used a qualitative approach with semi-structured interviews to explore the experiences of immigrant parents and their children with disabilities. The interviews were analyzed using an inductive thematic analytic approach.Results: Immigrant families’ experiences of participation in the local community after rehabilitation varied. Whereas some experienced improvements in their activity and participation habits, others expressed that they reverted to their old habits. Families’ experiences showed how facing several challenges in the local community affected participation patterns among the children. The costs and lack of information, necessary skills, and local activities were among the barriers they experienced. Families’ experiences revealed that local and rehabilitation professionals were not always aware of or prepared to address the challenges faced by families trying to become physically active. Parents expressed their needs for support and continuation of services after rehabilitation for moving towards an active lifestyle. Participation patterns among children highlighted the potential role of support contacts as facilitators for participation in physical activities among the families.Conclusions: The findings reveal that continuity of services from rehabilitation centers to local communities remains a challenge despite the health authorities’ ideal of providing sustainable and continuous services after rehabilitation. Establishing an efficient collaboration between local and rehabilitation professionals with identifying potential future challenges, adjusting the interventions, clarifying roles and responsibilities, and providing supportive follow-up services may be the missing link to sustainable community-based participation.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

The missing link to sustainable participation in community-based physical activity after rehabilitation: a qualitative study about experiences of immigrant parents and their children with disabilities

Arfa¹,

Solvang²,

Berg³

et al. 2020

Preprint

View full text Add to dashboard Cite

show abstract

“…In adults with CP, physical activity was reported to decrease with increasing GMFCS levels [33]. There is a lack of evidence supporting the efficacy of the intervention to sustain and increase habitual physical activities in children and youth with CP [34-36]. The effect of deterioration in physical activity or exercise intervention on long-term health in patients with CP has yet to be elucidated.…”

Section: Introductionmentioning

confidence: 99%

Emerging Issues in Cerebral Palsy Associated With Aging: A Physiatrist Perspective

Yi¹,

Jung²,

Bang³

2019

Ann Rehabil Med

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The population of adults diagnosed with cerebral palsy (CP) is increasing along with the survival rate of children born with the disability. Adults with CP need health services for the continued monitoring and management of their condition. Moreover, the development of additional health problems in adulthood increases the need for ongoing access to health services. Adults with CP manifest a higher rate of chronic health conditions and eventual decline in strength and functional reserve, deterioration in physical activity, increased risk of musculoskeletal complications, and gradual changes in swallowing ability. They are also reported to exhibit difficulty engaging socially and have a low health-related quality of life (QOL). However, there are a large number of adults with CP who cannot access medical services adequately and are therefore not effectively treated. To overcome these apparent challenges, we need to fully comprehend the healthcare needs of adults with CP to develop adult-focused health services. Further research is needed regarding the impact of physical activity, nutrition, sarcopenia, myeloradiculopathy, and swallowing function on QOL.

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Physiotherapists lack knowledge of the WHO physical activity guidelines. A local or a global problem?

Yona¹,

Ami

Azmon

et al. 2019

Musculoskeletal Science and Practice

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Physical activity interventions for children and young people with cerebral palsy

Abstract: This commentary is on the systematic reviews by Bloemen et al. and Reedman et al. on pages 1004–1010 and 1011–1018 of this issue.

Cited by 12 publications

References 5 publications

The missing link to sustainable participation in community-based physical activity after rehabilitation: a qualitative study about experiences of immigrant parents and their children with disabilities

The missing link to sustainable participation in community-based physical activity after rehabilitation: a qualitative study about experiences of immigrant parents and their children with disabilities

Emerging Issues in Cerebral Palsy Associated With Aging: A Physiatrist Perspective

Physiotherapists lack knowledge of the WHO physical activity guidelines. A local or a global problem?

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