Objective
To determine relationships between pain site(s) and pain intensity/interference in people with lower limb amputations.
Design
Cross-sectional survey.
Setting
Community.
Participants
Lower limb prosthesis users with unilateral or bilateral amputations (n=1296, mean time since amputation = 14.1 years).
Intervention
Not applicable.
Main Outcome Measures
Patient-Reported Outcomes Measurement Information System (PROMIS) Pain Intensity (1-item to assess average pain), PROMIS Pain Interference (4-item short form to assess the consequences of pain in desired activities), and questions that asked participants to rate the extent to which each of the following were a problem: residual limb pain, phantom limb pain, knee pain on the non-amputated side, back pain, and shoulder pain.
Results
Nearly three-quarters of participants (72.1%) reported problematic pain in one or more of the listed sites. Problematic phantom limb, back, and residual limb pain were reported by 48.1%, 39.2%, and 35.1% of participants, respectively. Knee pain and shoulder pain were less commonly identified as problems (27.9% and 21.7%, respectively). Participants also reported significantly (p<.0001) higher pain interference (T score=54.7, SD=9.0) than the normative sample based on the U.S. population (T score=50.0, SD=10.0). Participants with lower limb amputations rated their pain intensity on average at 3.3 (SD=2.4) on a 0–10 scale. Pain interference (rho=.564, p<.0001) and intensity (rho=.603, p<.0001) were positively and significantly correlated with number of pain sites reported.
Conclusion
Problematic pain symptoms, especially residual limb, phantom limb, and back pain, affect the majority of prosthetic limb users and have the potential to greatly restrict participation in life activities.