Photovoice as a Community-Based Participatory Research Method among Women Living with HIV/AIDS: Ethical Opportunities and Challenges

Teti, Michelle; Murray, Cynthia; Johnson, La Shaune; Binson, Diane

doi:10.1525/jer.2012.7.4.34

Cited by 87 publications

(57 citation statements)

References 24 publications

(43 reference statements)

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“…While PhotoVoice has been used extensively in HIV research to describe the experiences of women living with HIV (Moletsane et al, 2007), little research has addressed the personal benefits of PhotoVoice. Additionally, although PhotoVoice has been widely used in the context of poverty (Teti et al, 2012), activism (Moletsane et al, 2007), healthy relationships (Teti et al, 2012), empowerment (Teti et al, 2013), and intervention endorsement (Kubicek et al, 2012), its use in defining and describing specific experiences with HIV-related stigma in women of color has been limited and is worthy of further investigation.…”

Section: Discussionmentioning

confidence: 99%

“…Similarly, PhotoVoice has been shown to be an effective tool for describing personal experiences and synthesizing solutions to problems (Moletsane et al, 2009). PhotoVoice also has been found to facilitate empowerment of economically disadvantaged minority WLWH (Teti, Pichon, Kabel, Farnan, & Binson, 2013), to promote adaptation of HIV prevention programs (Kubicek, Beyer, Weiss, & Kipke, 2012), define health priorities (Teti, Murray, Johnson, & Binson, 2012), and facilitate interpretation of stigma and discrimination (Moletsane et al, 2009). To address the aforementioned gaps in existing scholarship, we examined personal HIV-stigma experiences in Latina/Hispanic and African American women using Photovoice.…”

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confidence: 99%

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Women of Color Reflect on HIV-Related Stigma through PhotoVoice

Davtyan¹,

Farmer²,

Brown³

et al. 2016

Journal of the Association of Nurses in AIDS Care

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HIV-related stigma affects people living with HIV (PLWH), especially in communities of color. In our study, African American and Latina/Hispanic women living with HIV (WLWH) described experiences of stigma through PhotoVoice, a community-based participatory method of documentary photography. Ten WLWH from Los Angeles documented stigma experiences through photographs for up to 5 weeks and discussed their images during a focus group or semi-structured individual interview. Qualitative interpretive phenomenological analysis of participant narratives and photographs revealed lack of education and cultural myths as the main triggers of the stigma our participants faced. Stigma was experienced in health care settings, and participants identified depression, fear of intimate relationships, and nondisclosure of HIV status as its consequences. Social support and faith were noted as key coping mechanisms. WLWH recommended involving PLWH and public health officials in stigma reduction campaigns and youth education. PhotoVoice was perceived as a useful tool for education and self-improvement.

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Section: Discussionmentioning

confidence: 99%

mentioning

confidence: 99%

Women of Color Reflect on HIV-Related Stigma through PhotoVoice

Davtyan¹,

Farmer²,

Brown³

et al. 2016

Journal of the Association of Nurses in AIDS Care

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“…The use of visual methods for research or interventions among PLH can be fraught with potential ethical and confidentiality concerns (Teti, Murray, Johnson, & Binson, 2012). For instance, the traditional group nature of Photovoice projects means that participants automatically disclose their HIV status to other members of their group when they attend project sessions.…”

Section: Discussionmentioning

confidence: 99%

Another Way to Talk: Exploring Photovoice as a Strategy to Support Safe Disclosure Among Men and Women With HIV

Teti¹,

Conserve²,

Zhang³

et al. 2016

AIDS Education and Prevention

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HIV status disclosure can reduce stigma and facilitate medication adherence and safer sex among people living with HIV (PLH). Effective disclosure interventions are limited, however, and new strategies are necessary. We conducted a pilot Photovoice-based project with 38 PLH in four cities in the Midwest and Northeast U.S. and explored how the project affected disclosure perspectives and experiences. Participants attended three group Photovoice sessions, one individual session, and an optional photo exhibit. Qualitative strategies of theme and narrative analysis of photos and session transcripts revealed that participants discussed three categories of disclosures to others: fearful, reluctant, and open. The project supported all disclosure types, helping fearful participants manage their emotions, reluctant participants plan for more effective disclosures, and open participants share their HIV status. Pilot findings suggest that Photovoice should be further developed and studied as a safe and powerful strategy to improve disclosure and subsequent health and prevention outcomes among PLH.

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“…By visualising these issues through local photographs, photovoice is a strong tool for capturing problems relevant to the lives of the photographers, their communities, and health priorities. 47,48 Several other social determinants of health such as unclean water and poor sanitation, lack of income generation among women and poor nutrition, are also key in improving maternal health. Yet they have not been prioritised in other community studies on maternal health in low-and middle-income countries.…”

Section: Discussionmentioning

confidence: 99%

Using photovoice to examine community level barriers affecting maternal health in rural Wakiso district, Uganda

Musoke¹,

Ekirapa-Kiracho

Ndejjo³

et al. 2015

Reproductive Health Matters

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Uganda continues to have poor maternal health indicators including a high maternal mortality ratio. This paper explores community level barriers affecting maternal health in rural Wakiso district, Uganda. Using photovoice, a community-based participatory research approach, over a five-month period, ten young community members aged 18-29 years took photographs and analysed them, developing an understanding of the emerging issues and engaging in community dialogue on them. From the study, known health systems problems including inadequate transport, long distance to health facilities, long waiting times at facilities and poor quality of care were confirmed, but other aspects that needed to be addressed were also established. These included key gender-related determinants of maternal health, such as domestic violence, low contraceptive use and early teenage pregnancy, as well as problems of unclean water, poor sanitation and women's lack of income. Community members appreciated learning about the research findings precisely hence designing and implementing appropriate solutions to the problems identified because they could see photographs from their own local area. Photovoice's strength is in generating evidence by community members in ways that articulate their perspectives, support local action and allow direct communication with stakeholders.

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Photovoice as a Community-Based Participatory Research Method among Women Living with HIV/AIDS: Ethical Opportunities and Challenges

Cited by 87 publications

References 24 publications

Women of Color Reflect on HIV-Related Stigma through PhotoVoice

Women of Color Reflect on HIV-Related Stigma through PhotoVoice

Another Way to Talk: Exploring Photovoice as a Strategy to Support Safe Disclosure Among Men and Women With HIV

Using photovoice to examine community level barriers affecting maternal health in rural Wakiso district, Uganda

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