Photography and case study interviewing to document intergenerational family care in Singapore-Chinese families where one member is living with dementia

Koo, May Yeok; Pusey, Helen

doi:10.4324/9781315517490-9

Cited by 2 publications

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“…Hsueh (2001) conceptualised filial piety as four key elements: concern for parental health; financially supporting parents; fulfilling the housing needs of parents; and respect for parental authority. These cultural elements essentially shape intergenerational Singapore-Chinese adult children's attitudes and behaviours toward their parents, thereby ensuring the continuation of parental well-being (Sheu 1997) -including in the presence of a dementia (Koo and Pusey 2018). It is also this family-centred cultural element that ties children into sacrificing their self-interests physically, financially and socially for the benefit of their parents -or family -as a filial responsibility (Dai and Dimond 1998).…”

Section: Introductionmentioning

confidence: 99%

“…In contrast, a cross-sectional intergenerational study by Hamill (2012) found that parents' influence on their children's involvement in care-giving was not determined by the degree of affection which their children have for them, but, instead, on the affection for grandparents living with dementia. Consequently, care-giving can lead to deterioration in family relationships and poor bonding in some intergenerational families resulting in unfavourable consequences, such as institutionalisation of the care recipient and burden of the care-giver (Koo and Pusey, 2018). Reflecting upon these studies, it is likely that the cultural context/environment in which care-giving is provided is dissimilar to that of the Singapore-Chinese population.…”

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confidence: 99%

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‘I try my best … I try to relieve the burden of my mum’: a narrative analysis of the everyday care-giving experiences for five intergenerational Singapore-Chinese families where one member has dementia

2020

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Singapore is experiencing a rapid growth in its ageing population with most of the islands’ inhabitants living in high-rise apartments due to the scarcity of land. The Chinese community living in Singapore comprises the largest ethnic group and they are more likely to live together under one roof in an intergenerational family grouping. Currently, there are gaps in understanding intergenerational Singapore-Chinese families and their approach to caring at home for a family member with dementia. The aim of this longitudinal qualitative study was to understand better this everyday care-giving experience. Using semi-structured biographical interviews and digital photographs to elicit family stories, five intergenerational Singapore-Chinese families were visited at home for a period of between six and 15 months. Each recruited intergenerational family was treated as a ‘case’. Narrative analysis of the data was applied within and between cases and resulted in the emergence of three themes that represented various dynamics in the data. The three themes were identified as: (1) family values, which is about the cultural context in which everyday care takes place, the religious beliefs and practices of the intergenerational Singapore-Chinese families, and the practice of filial piety; (2) family support, which is about everyday access to family and service networks, including the contribution of the live-in maid in caring for the family member with dementia; and (3) family bonds, which is about the maintenance of intergenerational family relations in the Chinese family kinship system.

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Section: Introductionmentioning

confidence: 99%

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confidence: 99%

‘I try my best … I try to relieve the burden of my mum’: a narrative analysis of the everyday care-giving experiences for five intergenerational Singapore-Chinese families where one member has dementia

2020

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“…Furthermore: "The use of photography and storytelling have also been used successfully to hear the voice of the person with dementia, to help them become active members of the research process and have been found to be an empowering process, helping to develop a sense of identity through participation" [28]. Thus, some studies have used photovoice and photo elicitation with people with dementia and their carers as a research tool to better understand the lived experience of caring for people with dementia [29][30][31] and of life after a dementia diagnosis [28][29][30][31][32][33]. Other studies have tested whether viewing artist-produced photographs can improve the mood, well-being, and social interactions of people with dementia [34][35][36][37][38].…”

Section: Introductionmentioning

confidence: 99%

Exploring nurse and nursing student experience of using an artist-produced photobook to learn about dementia

et al. 2022

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Background Improving understanding about dementia in nursing is a priority area for educators and policymakers. This is due to poor professional understanding about dementia and suboptimal healthcare practice. While many educational interventions exist, there has been a paucity of research which has considered the use of artist-produced photobooks to improve knowledge and understanding about dementia. The aim of this study is to understand the impact of an artist-produced photobook on nurses’ attitudes and beliefs about dementia. Results Following a thematic analysis of four focus group interviews with 22 nurses and nursing students from Northern Ireland, three themes emerged. Theme one was about how the artist-produced photobook helped participants to humanise the person living with dementia. Theme two related to how the artist-produced photobook supported participants to actively construct their own meanings about dementia based on their previous professional and personal experiences. Theme three explored how an artist-produced photobook could be successfully used to complement existing dementia education in the future. Conclusions Using an artist-produced photobook was an innovative way to learn about dementia for nurses and nursing students. The photobook functioned as a tool underpinned by arts-based pedagogy (ABP), supporting nurses to understand the person behind the dementia disease. As such, an artist-produced photobook has the potential to be a useful complementary resource for supporting professional education about dementia.

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Photography and case study interviewing to document intergenerational family care in Singapore-Chinese families where one member is living with dementia

Cited by 2 publications

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‘I try my best … I try to relieve the burden of my mum’: a narrative analysis of the everyday care-giving experiences for five intergenerational Singapore-Chinese families where one member has dementia

‘I try my best … I try to relieve the burden of my mum’: a narrative analysis of the everyday care-giving experiences for five intergenerational Singapore-Chinese families where one member has dementia

Exploring nurse and nursing student experience of using an artist-produced photobook to learn about dementia

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