Perspectives on public involvement in health research from Singapore: The potential of a supported group model of involvement

Puerta, Lidia Luna; Bartlam, Bernadette; Sun, Shirley; Smith, Helen

doi:10.1111/hex.13058

Cited by 2 publications

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“…In terms of stakeholder involvement, while experts (clinicians and researchers) in the field of HL and LBP are members of the research team, patients were not consulted. There is growing evidence of the value of patient and public involvement at all stages of the research process [ 78 ], and the importance of how best to operationalise this within diverse cultural contexts [ 79 , 80 ]. While deemed to be non-essential at this scoping stage, involving patients in the development of research questions would be essential to further work into the impact of HL on LBP health outcomes.…”

Section: Discussionmentioning

confidence: 99%

Health literacy and health outcomes in patients with low back pain: a scoping review

See

Smith

Car

et al. 2021

BMC Med Inform Decis Mak

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Background Low back pain is a leading cause of disability worldwide. Health literacy has been associated with pain intensity and pain control. However, there is a paucity of evidence regarding this association. In the field of low back pain research, inconsistent reporting of outcomes has been highlighted. To address this issue a Core Outcome Set has been developed. Objectives The objectives of this scoping review were: (1) The health literacy measures currently employed for low back pain and the aspects of health literacy they include. (2) The low back pain health outcomes included in such work. (3) The extent to which these health outcomes reflect the Core Outcome Set for Clinical Trials in Non-Specific Low Back Pain. Methods The search included thirteen bibliographic databases, using medical subject heading terms for low back pain and health literacy, and followed the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews guidelines. The eligibility criteria were defined by the Joanna Briggs Institute PCC mnemonic. A thematic framework approach was used for analysis. Results The search yielded ten relevant studies for inclusion, amongst which a total of nine health literacy measures and 50 health outcome measures were used. Most health literacy measures focused on functional health literacy, with few assessing communicative and critical health literacy. The health outcomes assessed by the included studies could be broadly categorised into: Pain, Disability, Behaviour, Knowledge and Beliefs, and Resource Utilisation. Most of these outcome measures studied (36 out of 50) did not directly reflect the Core Outcome Set for Clinical Trials in Non-Specific Low Back Pain. Conclusions To allow for comparison across findings and the development of a rigorous evidence base, future work should include the Core Outcome Set for Clinical Trials in Non-Specific Low Back Pain. There is an urgent need to broaden the evidence-base to include regions where low back pain morbidity is high, but data is lacking. Such work demands the incorporation of comprehensive measures of health literacy that have both generic and culturally sensitive components.

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Section: Discussionmentioning

confidence: 99%

Health literacy and health outcomes in patients with low back pain: a scoping review

See

Smith

Car

et al. 2021

BMC Med Inform Decis Mak

Self Cite

View full text Add to dashboard Cite

show abstract

“…In terms of stakeholder involvement, while experts (clinicians and researchers) in the eld of HL and LBP are members of the research team, patients were not consulted. There is growing evidence of the value of patient and public involvement at all stages of the research process (60), and the importance of how best to operationalise this within diverse cultural contexts (61,62). While deemed to be non-essential at this scoping stage, involving patients in the development of research questions would be essential to further work into the impact of HL on LBP health outcomes in an Asian context.…”

Section: Strengths and Limitationsmentioning

confidence: 99%

Health Literacy and Health Outcomes in Patients with Low Back Pain – A Scoping Review

See¹,

Smith²,

Car³

et al. 2021

Preprint

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BACKGROUND: The World Health Organisation highlights low back pain as a leading and growing cause of disability worldwide. In the field of chronic pain, higher health literacy is linked to lower pain intensity and better pain control. However, there remains a paucity of evidence, with a recent systematic review finding only three studies meeting its inclusion criteria. OBJECTIVES: This scoping review had two objectives in exploring research in chronic back pain, which were to identify:1) The health literacy measures currently employed for back pain and the aspects of health literacy they include.2) The back-pain health outcomes included in such work and the extent to which these reflect the core outcome set for clinical trials in non-specific low back pain.METHODS: The search broadened the search strategy used in the systematic review, with the eligibility criteria defined by the Joanna Briggs Institute PCC mnemonic, namely: · Population – Patients with LBP (≥ 10% of study population), of any age, gender, or race· Concept – Relationship of LBP health outcomes to HL· Context – Any healthcare setting, in any geographical settingIt was conducted using thirteen bibliographic databases, employing medical subject heading (MeSH) terms for low back pain and health literacy, following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR) guidelines. A thematic framework approach was used for analysis.RESULTS: The search yielded ten relevant studies for inclusion, amongst which a total of nine health literacy measures and 50 health outcome measures were used. The health outcomes assessed by the included studies could be broadly categorised into: Pain, Disability, Behaviour, Knowledge and Beliefs, and Resource Utilisation. Most outcome measures employed (36 out of 50) were not directly relevant to addressing the core outcome set for clinical trials in non-specific low back pain.CONCLUSIONS: A dearth of studies in this field of research was noted, especially in Asia and low-middle income countries. Methodological limitations were identified, including in study design and outcome measures. To allow for comparison across findings and the development of a rigorous evidence base, future work should include the core outcome set for clinical trials in non-specific low back pain. Furthermore, research thus far has focused on a narrow range of populations and there is an urgent need to broaden the evidence-base to include those with characteristics known to be moderators in health outcomes. Such work demands the incorporation of comprehensive measures of health literacy that have both generic and culturally sensitive components.

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Perspectives on public involvement in health research from Singapore: The potential of a supported group model of involvement

Cited by 2 publications

References 46 publications

Health literacy and health outcomes in patients with low back pain: a scoping review

Health literacy and health outcomes in patients with low back pain: a scoping review

Health Literacy and Health Outcomes in Patients with Low Back Pain – A Scoping Review

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