Persons with albinism

Burke, Jean

doi:10.4324/9780203761762-9

Cited by 3 publications

(2 citation statements)

References 0 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Also, of the papers we could use in our study, most were on research conducted in (West) African countries. While the 33 increase in published, peer-reviewed papers from these countries can be seen as positiveespecially in light of the abounding cybercriminal activities in the region (Burke, 2022;Interpol, 2022b) having studies conducted solely in one area hampers generalizability. There was also a lack of high-quality papers, with only 24 percent being assessed as high quality.…”

Section: Research Gaps and Future Researchmentioning

confidence: 99%

A systematic narrative review of pathways into, desistance from, and risk factors of financial-economic cyber-enabled crime

Loggen,

Moneva,

Leukfeldt

2024

Computer Law & Security Review

View full text Add to dashboard Cite

Section: Research Gaps and Future Researchmentioning

confidence: 99%

A systematic narrative review of pathways into, desistance from, and risk factors of financial-economic cyber-enabled crime

Loggen,

Moneva,

Leukfeldt

2024

Computer Law & Security Review

View full text Add to dashboard Cite

“…PWA face a range of human rights issues including discrimination, special health and educational needs, harmful traditional practices, violence (e.g., killings, ritual attacks), witchcraft‐related trade and trafficking of body parts, infanticide, and child abandonment (Burke, 2019). In recent decades, given a surge in violence against them, PWA in Tanzania received significant attention and advocacy from media, local and international NGOs, and international organizations (Burke, 2019). Under tremendous pressure to protect PWA and their human rights, the Tanzanian government introduced some protective measures (Kajiru & Mubangizi, 2019, p. 248; UN Independent Expert, 2017, pp.…”

Section: Case Studiesmentioning

confidence: 99%

NGOs, international courts, and state backlash against human rights accountability: Evidence from NGO mobilization against Tanzania at the African Court on Human and Peoples' Rights

Silva

Plagis

2023

Law Soc Rev

View full text Add to dashboard Cite

When nongovernmental organizations (NGOs) encounter state resistance to human rights accountability, how do NGOs use international courts for their human rights advocacy strategies? Considering the overlapping phenomena of shrinking civic space within authoritarian, hybrid, and democratically backsliding regimes, and state backlash against international courts, NGOs navigate two potential levels of state backlash against human rights accountability. Building on the interdisciplinary scholarship on legal mobilization, we develop an integrated framework for explaining how states' two‐level (domestic and international) backlash tactics can both promote and deter NGOs' strategic litigation at international human rights courts (IHRCs). States' backlash tactics can influence NGOs' opportunities, capacities, and goals for their human rights advocacy, and thus affect whether and how they pursue strategic litigation at IHRCs. We elucidate the value of this framework through case studies of NGOs' litigation against Tanzania at the African Court on Human and Peoples' Rights, an understudied IHRC. Drawing on an original data set, interviews, and documentation, we process‐trace how Tanzania's various backlash tactics influenced whether and how NGOs litigated at the Court. Our framework and analysis show how state backlash against human rights accountability affects NGOs' mobilization at IHRCs and, relatedly, IHRCs' opportunities for influence.

show abstract

Mapping a research-advocacy-policy agenda on human rights and albinism: a mixed methods project

Reimer-Kirkham,

Astle,

Ero

et al. 2024

Int J Equity Health

View full text Add to dashboard Cite

Background Persons with albinism face challenges to their wellbeing, safety, and security, ranging from vision impairment and skin cancer to stigma and discrimination. In some regions, they also face human rights atrocities including mutilation and murder. Research on human rights and albinism is a relatively new field that has gained momentum since the United Nations appointment of an Independent Expert on the enjoyment of human rights by persons with albinism. In this paper, we present the results of a mixed methods study undertaken to identify priorities for research, advocacy, and policy on albinism and human rights. Methods The first component was a synthesis of peer-reviewed and grey literatures at the nexus of albinism, spiritual/cultural beliefs and practices, and human rights. We then conducted a priority-setting survey, informed by Delphi methods, on extant knowledge-practice gaps and research, advocacy, and policy priorities. Inclusion criteria included demonstrated expertise in the field (e.g., peer-reviewed publications, funded research), membership on national or international associations, or advocacy (civil society organizations) of more than 2 years in albinism and human rights. Thereafter, we gathered leading researchers, policy-makers, and civil society stakeholders for a Roundtable to gain consensus on these priorities. Results Access to skin and vision care, and education were not deemed high priority for research, likely because the evidence supporting the need for these is well established. However, they were priorities for advocacy and policy: what is needed is mobilization of this evidence through advocacy and implementation of such services (policy). Other social determinants of health (rurality, poverty, and gender equality) are present as subtext in the findings, more so than priorities for research, advocacy, or policy, despite their preponderance in the lives of persons with albinism. Research was prioritized on stigma and discrimination; advocacy; and witchcraft, but with some differentiation between Global North and Global South priorities. Priorities for research, advocacy, and policy vary in keeping with the explanatory frameworks at play, including how harmful practices and witchcraft are viewed. Conclusions The lived experience of albinism is profoundly shaped by the social determinants of health (SDOH). Threats to the security and well-being of persons with albinism should be viewed through a human rights lens that encompasses the explanatory frameworks at play.

show abstract

Persons with albinism

Cited by 3 publications

References 0 publications

A systematic narrative review of pathways into, desistance from, and risk factors of financial-economic cyber-enabled crime

A systematic narrative review of pathways into, desistance from, and risk factors of financial-economic cyber-enabled crime

NGOs, international courts, and state backlash against human rights accountability: Evidence from NGO mobilization against Tanzania at the African Court on Human and Peoples' Rights

Mapping a research-advocacy-policy agenda on human rights and albinism: a mixed methods project

Contact Info

Product

Resources

About