Personne de confiance : un partenaire dans la décision partagée

Sarradon-Eck, Aline; Capodano, Géraldine; Bureau, Eve; Julian‐Reynier, Claire

doi:10.1016/j.bulcan.2016.03.003

Cited by 4 publications

(2 citation statements)

References 19 publications

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“…Tese tasks facilitated the management of patients' cancer care and palliative home care and made family caregivers full partners in treatment of patients experiencing advanced cancer. Caregiving gave them the feeling of contributing actively to the patient's management [10,57] and helped them cope with the sufering caused by a close relative's illness and their own helplessness to deal with its evolution [58].…”

Section: Discussionmentioning

confidence: 99%

“…However, responsiveness requires balancing the needs of care receivers with those of their caregivers [47]. As noted in previous surveys, informal caregiving reinforces the bonds of afection and trust between patients and their caregivers [57,63,64]. "Caregiving is an existential action afrming a moral commitment" [42] that satisfes caregivers' need to fulfl their marital or flial moral duty, thus also enhancing their self-esteem [14,27,58,65,66].…”

Section: Discussionmentioning

confidence: 99%

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The Moral Dimensions of Family Caregiving for Patients with Advanced Cancer: A Qualitative Study

Sarradon-Eck,

Mathiot,

Holmes

et al. 2023

European Journal of Cancer Care

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Background. Family caregivers in charge of patients with advanced cancer play an essential role. The psychosocial cost of these caregiving activities has been studied, and psychosocial interventions have been developed to improve the quality of life of family caregivers. A deeper understanding of caregivers’ burden is essential in order to enhance the benefits of these interventions. The aim of this study was to explore the socioeconomic and cultural factors responsible for shaping the complex personal experience of family caregiving and to analyse the moral dimensions of the caring experience so as to understand its effects on family caregivers more clearly. Materials and Methods. A qualitative study based on in-depth interviews was conducted with patients with advanced cancer (n = 20) and their family caregivers (n = 19) from 2017 to 2020. These interviews were analysed using an inductive approach and an iterative procedure. A thematic analysis was then performed using Tronto’s “ethic of care” framework in order to identify the various levels of responsibility and the relationships and effects involved. Results. Providing patients with advanced cancer with informal care is highly valuable work requiring various moral qualities, including attentiveness, responsibility, competence, and responsiveness. The mental load resulting from the moral aspects of care results from the cumulative effects of carers’ attentiveness and the responsibilities they have taken on. Conclusion. The present findings could guide healthcare professionals to develop best practice resources and guidelines in order to alleviate the hitherto underestimated effects of caring and promote a coordinated public health approach addressing the needs of caregivers. These efforts are particularly important as contemporary health policies tend to promote the shift from inpatient to outpatient treatment, which increases the importance of informal caregiving and the burden involved.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

The Moral Dimensions of Family Caregiving for Patients with Advanced Cancer: A Qualitative Study

Sarradon-Eck,

Mathiot,

Holmes

et al. 2023

European Journal of Cancer Care

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La personne de confiance est un lien pour le patient et le médecin généraliste

et al. 2019

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Professionals’ perspectives on trusted persons in French nursing homes

Faye-Ropaul,

Khalil

2024

Preprint

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Background France faces a growing challenge with an aging population and the rise of neurodegenerative disorders. To address this, French health law allows patients to appoint a trusted person ("personne de confiance") who can communicate their medical preferences if they become incapacitated. Introduced by the Kouchner Law in 2002, this reflects a shift from a paternalistic to an autonomist model of care, emphasizing patient autonomy. Despite the importance of trusted persons in conveying patient wishes, especially in nursing homes, research in this area remains limited, with most studies focusing on hospital settings rather than nursing homes. Methods Semi-structured interviews were conducted with 14 healthcare professionals working in or with nursing homes from February 2021 to September 2022, lasting 26–80 minutes, following grounded theory methodology. The interviews were transcribed and analyzed using inductive thematic analysis. Results Professionals in French nursing homes strive to balance patient-oriented, family-oriented, and self-oriented needs when interacting with trusted persons. They prioritize patient care, address family concerns, and ensure their own psychological safety and administrative efficiency, while minimizing litigation risks. However, heterogeneous practices exist in informing families about the trusted person system, leading to awareness gaps and potential conflicts. The evolving work environment in French nursing homes, marked by aging residents and complex legal regulations, exacerbates these challenges. Family conflicts, burdens experienced during the end-of-life phase, and taboos surrounding end-of-life discussions impede collaborative efforts, emphasizing the need for education and improved communication strategies to ensure the effective implementation of trusted person roles. Conclusion Early education is necessary for trusted persons’ effective involvement, as patients’ cognitive impairments and end-of-life anxieties hinder trusted persons’ ability to engage effectively. Involving psychologists or GPs beforehand helps address psychological challenges, facilitating informed discussions before admission.

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Personne de confiance : un partenaire dans la décision partagée

Cited by 4 publications

References 19 publications

The Moral Dimensions of Family Caregiving for Patients with Advanced Cancer: A Qualitative Study

The Moral Dimensions of Family Caregiving for Patients with Advanced Cancer: A Qualitative Study

La personne de confiance est un lien pour le patient et le médecin généraliste

Professionals’ perspectives on trusted persons in French nursing homes

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