Personal electronic healthcare records: What influences consumers to engage with their clinical data online? A literature review

Abstract

Background: Online electronic records such as patient portals and personally controlled electronic health records (PEHRs) have been widely viewed as a key component to modernising the delivery of healthcare but the uptake of such systems has been slow. Objective: The purpose of this literature review was to determine what influences consumers to engage and interact with their clinical data online. Method: A scoping literature review following PRISMA guidelines was completed. Electronic patient record research published between January 2009 and December 2018 was included. Following screening and full-text reviews, a total of 64 records were included in this review. Results: Three key areas of influence on consumer engagement with their clinical data online emerged: demographic factors affecting consumer interaction with PEHRs; consumers’ perceived benefits and detriments of PEHR use; and the influence of PEHR use on consumer empowerment and responsibility. Discussion: Consumer motivation and readiness for engaging with their clinical data online and their long-term ongoing use of these systems requires further exploration. Conclusion: As worldwide rates of consumer interactions with individual online clinical data remain low, what influences consumer engagement with a PEHR remains unknown. Further research into the consumer perspective of, and interaction with, a PEHR, needs to be undertaken to determine if factors such as frequent usage of the system by consumers leads to improved clinical outcomes.

Can electronic assessment tools improve the process of shared decision-making? A systematic review

“…Due to this, even if the intervention improved patient satisfaction, the instrument lacked sensitivity to capture this outcome (Taenzer et al, 2000). Nevertheless, patient satisfaction is an important outcome because other studies evaluating electronic health technologies have found that user acceptance is important in the successful implementation of electronic health technologies (Crameri et al, 2020;Forster et al, 2015;Hanna et al, 2017). In addition to the potential effects of the intervention, there are also logistical and practical advantages of using electronic assessment tools.…”

Applications of blockchain in ensuring the security and privacy of electronic health record systems: A survey

“…The potential benefits associated with EHR systems (e.g. public healthcare management, online patient access, and patients medical data sharing) have also attracted the interest of the research community ( Boonstra, Versluis, Vos, 2014 , Carvalho, Rocha, Abreu, 2016 , Crameri, Maher, Van Dam, Prior, 2020 , Fernández-Alemán, Señor, Lozoya, Toval, 2013 , Ho, Guo, Vogel, 2019 , Lluch, 2011 , Miah, Gammack, Hasan, 2019 , Strudwick, Eyasu, 2015 , Tovanich, Heulot, Fekete, Isenberg, 2020 ). The potential of EHRs is also evidenced by the recent 2019 novel coronavirus (also referred to as 2019-nCoV and COVID-2019) pandemic, where remote patient monitoring and other healthcare deliveries are increasingly used in order to contain the situation.…”

Development and Validation of a Useful Taxonomy of Patient Portals Based on Characteristics of Patient Engagement

“…A PHR or personal health record provides patients with web-based access to their health data that is under the control of the patient, 1 while an EHR typically is under the control of the provider. 5,9,14 Scheplitz et al 20 created a framework for patient portal functionalities to record all possible functions to identify specification gaps related to software development. Walker et al developed a framework to evaluate how well health information technology can support patient engagement by applying five engagement scoring levels.…”

“…[5][6][7][8] Patient portals are considered a health information technology that promotes patient engagement by providing tools to become active participants in one's own care. [9][10][11] Patient engagement has received considerable attention in recent years, 10 and patient portals may contribute to engaging the patients actively in their care by granting them access to their health data and providing additional functionalities. 7,[12][13][14] To date, we find a very heterogeneous landscape and a broad diversity of patient portals 15 regarding their intended deployment and functionalities.…”