Personal Accounts of the Negative and Adaptive Psychosocial Experiences of People With Diabetes in the Second Diabetes Attitudes, Wishes and Needs (DAWN2) Study

Stuckey, Heather L.; Mullan-Jensen, Christine; Réach, G.; Burns, Katharina Kovacs; Piana, Natalia; Vallis, Michael; Wens, Johan; Willaing, Ingrid; Skovlund, Søren E.; Peyrot, Mark

doi:10.2337/dc13-2536

Cited by 108 publications

(84 citation statements)

References 30 publications

(21 reference statements)

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“…Importantly, the cohort in the 2000's has about 37% higher prevalence of diabetes, a condition that associates with high disease burden due to fear of complications and associated hopelessness, depression, and work discrimination. 19 Additionally, arthritis, high-blood pressure, and cardiovascular diseases were the most prevalent conditions in both periods. Summarising these conditions by a morbidity score also suggests a higher prevalence of chronic disease in men and women in the 2000's.…”

Section: Resultsmentioning

confidence: 99%

Assessing morbidity compression in two cohorts from the Health and Retirement Study

Beltrán‐Sánchez

Jiménez

Subramanian

2016

J Epidemiol Community Health

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Background Increases in life expectancy are hypothesized to be associated with shorter proportional time spend with morbidity (compression of morbidity). We assessed whether this has occurred among older adults in the US during the 1990s and 2000s. Methods We used data from the Health and Retirement Study to estimate a morbidity score based on 8 chronic conditions and compare it 1) prospectively between two age-matched cohorts in 1992 and 2004 over a six year follow-up, and 2) retrospectively in the 3 waves prior to death among respondents who die in [1998–2004) and [2004–2010]. Results Prospective assessment shows significantly higher prevalence in 6 out of 8 chronic conditions in the 2000s, with 37% higher diabetes prevalence. A retrospective evaluation shows significantly higher prevalence in 7 out of 8 chronic conditions in the 3 waves prior to death for [2004–2010] vs. [1998–2004), with 41% higher prevalence of arthritis. Importantly, the farther away from time of death, the higher the average number of chronic conditions in [2004–2010]. Conclusion Using the largest longitudinal aging study in the U.S. we found no clear evidence of compression of morbidity as measured by self-reported chronic disease. Older adults in the US may be experiencing greater disease burden in recent times.

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Section: Resultsmentioning

confidence: 99%

Assessing morbidity compression in two cohorts from the Health and Retirement Study

Beltrán‐Sánchez

Jiménez

Subramanian

2016

J Epidemiol Community Health

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“…Despite evidence that psychosocial support was instrumental to adaptive self-care as indicated by patients in the DAWN2 [6] , psychosocial and pharmacologic interventions have not been widely used to target psychological co-morbidities such as depression and DRD [122] . The psychosocial supports through caring and compassionate family, friends, health care professionals, and even other patients with DM could instill a positive outlook, sense of resilience and wellbeing in patients with DM.…”

Section: Psychological Intervention In Diabetes Carementioning

confidence: 99%

“…It is widely known that patients with diabetes mellitus (DM) are at high risk of decreased psychological wellbeing [1][2][3][4][5][6] which is already presence in about half of the patients at the time of diagnosis [7] . This is due to strained coping with changed life routine (such as relationships, work-related and financial issues) [6] right from the time of diagnosis of DM [7] .…”

Section: Introductionmentioning

confidence: 99%

“…This is due to strained coping with changed life routine (such as relationships, work-related and financial issues) [6] right from the time of diagnosis of DM [7] . An international survey, the Diabetes Attitudes, Wishes and Needs second study (DAWN2), included over 16000 individuals (comprising patients, family members and healthcare providers) in 17 countries across four continents, reported that the proportion of the people with DM who were likely to have depression and diabetes-related distress (DRD) was 13.8% and 44.6%, respectively, with overall poor quality of life at 12.2% [8] .…”

Section: Introductionmentioning

confidence: 99%

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Psychological aspects of diabetes care: Effecting behavioral change in patients

Chew

Sazlina

Fernandez

2014

WJD

101

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Patients with diabetes mellitus (DM) need psychological support throughout their life span from the time of diagnosis. The psychological make-up of the patients with DM play a central role in self-management behaviors. Without patient's adherence to the effective therapies, there would be persistent sub-optimal control of diseases, increase diabetes-related complications, causing deterioration in quality of life, resulting in increased healthcare utilization and burden on healthcare systems. However, provision of psychosocial support is generally inadequate due to its challenging nature of needs and demands on the healthcare systems. This review article examines patient's psychological aspects in general, elaborates in particular about emotion effects on health, and emotion in relation to other psychological domains such as cognition, self-regulation, self-efficacy and behavior. Some descriptions are also provided on willpower, resilience, illness perception and proactive coping in relating execution of new behaviors, coping with future-oriented thinking and influences of illness perception on health-related behaviors. These psychological aspects are further discussed in relation to DM and interventions for patients with DM. Equipped with the understanding of the pertinent nature of psychology in patients with DM; and knowing the links between the psychological disorders, inflammation and cardiovascular outcomes would hopefully encourages healthcare professionals in giving due attention to the psychological needs of patients with DM. Key words: Psychology; Psychosocial aspects; Emotions; Cognition; Distress; Depression; Psychological resilience; Self-care; Coping behaviors; Quality of life; Diabetes mellitus Core tip: Positive psychological health may sustain long-term coping efforts and protect patients from the negative consequences of prolonged emotional disorders, illness perception and thus facilitating diabetes self-management behaviors and better physical health. Having patients acquire valued personal beliefs and achievable standards of performance could strengthen self-regulation and self-efficacy leading to more positive experience and healthy behaviors. Furthermore, improved personal resources such as resilience would lead to better functioning of cognition and stronger will power, quality of life and disease control in patients with diabetes mellitus.Chew BH, Shariff-Ghazali S, Fernandez A. Psychological aspects of diabetes care: Effecting behavioral change in patients. World J Diabetes 2014; 5(6): 796-808 Available from:

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“…Identifying ways to support partners as caregivers is important for improving diabetes management. Partners struggle with the effects of fear, loss, and stress [21]. These emotions coupled with the daily needs of diabetes management result in chronic stress and caregiver burden that is largely unaddressed [11].…”

Section: Discussionmentioning

confidence: 99%

Partner Perspectives on Life with a Person with Type 1 Diabetes

Johnson

Melton

2015

PLAID

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Type 1 diabetes affects all aspects of life for both the person with the disease and their loved ones. For partners, negotiating the caregiving role can be challenging.Objective: Partners of people with type 1 diabetes are positioned to provide crucial support for their significant other, but they may struggle with the caregiving role. The purpose of this study was to determine the challenges and needs of these partners. Research Design and Methods:In this qualitative study, in-depth interviews were conducted with 19 partners of people with type 1 diabetes. A semi-structured interview guide was used during the interviews. Thematic analysis was conducted using qualitative data management and analysis software. Results:The analysis of the interviews revealed that partners face numerous challenges in the caregiving of their partner. Partners reported struggling with: (1) emotional strain from fear and distress over diabetes symptoms and complications that results in caregiver burden; (2) determining how to avoid relationship conflict; and (3) knowing how to provide life sustaining care during diabetes medical emergencies.Conclusions: Partners of people with diabetes would benefit from diabetes education targeting emergency care and the psychosocial impacts of diabetes. This additional education could potentially ease the emotional strains of caregiving.

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Personal Accounts of the Negative and Adaptive Psychosocial Experiences of People With Diabetes in the Second Diabetes Attitudes, Wishes and Needs (DAWN2) Study

Cited by 108 publications

References 30 publications

Assessing morbidity compression in two cohorts from the Health and Retirement Study

Assessing morbidity compression in two cohorts from the Health and Retirement Study

Psychological aspects of diabetes care: Effecting behavioral change in patients

Partner Perspectives on Life with a Person with Type 1 Diabetes

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