Person-centredness in the care of older adults: a systematic review of questionnaire-based scales and their measurement properties

Wilberforce, Mark; Challis, David; Davies, Linda; Kelly, Michael P.; Roberts, Chris; Loynes, Nik

doi:10.1186/s12877-016-0229-y

Cited by 55 publications

(75 citation statements)

References 43 publications

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“…Recognising and responding to stated preferences are part of promoting person-centred care, associated with better engagement with treatment and care options (Wilberforce et al, 2016).…”

Section: Resultsmentioning

confidence: 99%

A discrete choice experiment to explore carer preferences

Chester

Clarkson

Davies

et al. 2017

QAOA

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This paper describes a case study to test the applicability of the Discrete Choice Experiment (DCE) method to assess the preferences of carers of people with dementia. The focus of enquiry was home care provision. Design/methodology/approach A multi-method approach was adopted for this pilot study. A literature review identified key characteristics of home care for dementia. This informed consultations with lay representatives. Key attributes of home care for the DCE were identified and formed the basis for the schedule. Twenty-eight carers were recruited by two voluntary organisations to complete the DCE. A multinomial logistic regression model was used to analyse the data. Findings Seven attributes of home care for people with dementia were identified from the consultation. Use of the DCE approach permitted the identification of those most important to carers. Despite the modest sample, statistically significant findings were reported in relation to five of the attributes indicating their relevance. Lay involvement in the identification of attributes contributed to the ease of administration of the schedule and relevance of the findings. Originality/value This study demonstrated the utility of a DCE to capture the preferences of carers of people with dementia and thereby gather information from carers to inform policy, practice and service development. Their involvement in the design of the schedule was critical to this process.

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“…Recognising and responding to stated preferences are part of promoting person-centred care, associated with better engagement with treatment and care options (Wilberforce et al, 2016).…”

Section: Resultsmentioning

confidence: 99%

A discrete choice experiment to explore carer preferences

Chester

Clarkson

Davies

et al. 2017

QAOA

Self Cite

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“…Additional research could also seek an understanding of how the information is used for service improvement, and what information may be missing. Finally, given that the NPS is being used as part of RCTs in lieu of better patient experience metrics, both accuracy and reliability would be enhanced by the development of multi‐item scales which are severely lacking for older people's mental health care …”

Section: Discussionmentioning

confidence: 99%

Measuring the patient experience in community mental health services for older people: A study of the Net Promoter Score using the Friends and Family Test in England

Wilberforce

Poll

Langham

et al. 2018

Int J Geriat Psychiatry

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Objectives The research aimed to explore the value of the Net Promoter Score as a service improvement tool and an outcome measure. The study objectives were to (1) explore associations between the Net Promoter Score with patient and service‐receipt characteristics; (2) evaluate the strength of association between the Net Promoter Score and a satisfaction score; and (3) evaluate its test‐retest reliability. Methods A postal survey was sent to service users on caseloads of community mental health teams for older people in four localities of England. The survey collected the Net Promoter Score, a single satisfaction question, and data on socio‐demographics, clinical profile, and service receipt. Analysis used non‐parametric tests of association and exploratory least squares regression. A second survey was administered for test‐retest reliability analysis. Fieldwork concluded in April 2016. Results For 352 respondents, the Net Promoter Score was negatively related to age and was lowest for those still within 6 months of their initial referral. Receiving support from a psychiatrist and/or support worker was linked to higher scores. A strong but imperfect correlation coefficient with the satisfaction score indicates they evaluate related but distinct constructs. It had a reasonable test‐retest reliability, with a weighted kappa of 0.706. Conclusions Despite doubts over its validity in community mental health services, the Net Promoter Score may produce results of value to researchers, clinicians, service commissioners, and managers, if part of wider data collection. However, multi‐item measures would provide greater breadth and improved reliability.

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“…PCC, on the other hand, highlights interrelationships over time; illness episodes in a life-course perspective; the interrelated nature of body systems, diseases and morbidity; coding systems that allow for service user concerns; and considers both the evaluation of disease and people's illness experience [27]. Person-centredness in care aims to understand 1) a person's subjective experiences and interpretations of illness by considering psychosocial dimensions alongside biomedical symptomology, 2) adhere to the centrality of shared decision-making and parity, and 3) the primacy of relationships in care and treatment [28].…”

Section: Introductionmentioning

confidence: 99%

Comorbidities between tuberculosis and common mental disorders: a scoping review of epidemiological patterns and person-centred care interventions from low-to-middle income and BRICS countries

et al. 2020

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Background: There is increasing evidence that the substantial global burden of disease for tuberculosis unfolds in concert with dimensions of common mental disorders. Person-centred care holds much promise to ameliorate these comorbidities in low-to-middle income countries (LMICs) and emerging economies. Towards this end, this paper aims to review 1) the nature and extent of tuberculosis and common mental disorder comorbidity and 2) person-centred tuberculosis care in low-to-middle income countries and emerging economies. Main text: A scoping review of 100 articles was conducted of English-language studies published from 2000 to 2019 in peer-reviewed and grey literature, using established guidelines, for each of the study objectives. Four broad tuberculosis/ mental disorder comorbidities were described in the literature, namely alcohol use and tuberculosis, depression and tuberculosis, anxiety and tuberculosis, and general mental health and tuberculosis. Rates of comorbidity varied widely across countries for depression, anxiety, alcohol use and general mental health. Alcohol use and tuberculosis were significantly related, especially in the context of poverty. The initial tuberculosis diagnostic episode had substantial sociopsychological effects on service users. While men tended to report higher rates of alcohol use and treatment default, women in general had worse mental health outcomes. Older age and a history of mental illness were also associated with pronounced tuberculosis and mental disorder comorbidity. Person-centred tuberculosis care interventions were almost absent, with only one study from Nepal identified. Conclusions: There is an emerging body of evidence describing the nature and extent of tuberculosis and mental disorders comorbidity in low-to-middle income countries. Despite the potential of person-centred interventions, evidence is limited. This review highlights a pronounced need to address psychosocial comorbidities with tuberculosis in LMICs, where models of person-centred tuberculosis care in routine care platforms may yield promising outcomes.

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Person-centredness in the care of older adults: a systematic review of questionnaire-based scales and their measurement properties

Cited by 55 publications

References 43 publications

A discrete choice experiment to explore carer preferences

A discrete choice experiment to explore carer preferences

Measuring the patient experience in community mental health services for older people: A study of the Net Promoter Score using the Friends and Family Test in England

Comorbidities between tuberculosis and common mental disorders: a scoping review of epidemiological patterns and person-centred care interventions from low-to-middle income and BRICS countries

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