Person-Centered Web Support to Women with Type 1 Diabetes in Pregnancy and Early Motherhood—The Development Process

Berg, Marie; Adolfsson, Annsofie; Ranerup, Agneta; Sparud-Lundin, Carina

doi:10.1089/dia.2012.0217

Cited by 28 publications

(33 citation statements)

References 33 publications

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“…The frequency or type of prompt might be one; inactive women in the intervention group received a short reminder via text messaging every 2 weeks. The design of the intervention may not have hit the mark, even though it was based on previous research , with patient representatives involved during development . Key elements may have been missed, such as the possibility of sending direct messages to healthcare professionals (we were unable to provide this at the project start).…”

Section: Discussionmentioning

confidence: 99%

“…To further support the women's well‐being and diabetes management, the intervention offered complementary web‐based support, inspired by previously identified needs , and developed with a participatory design involving experts, patient representatives and researchers . The theoretical basis for the intervention was person‐centred care , and it was designed to assist in decision‐making, based on the woman's own documentation, to support self‐care and to facilitate contact with peers.…”

Section: Methodsmentioning

confidence: 99%

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Person‐centred, web‐based support in pregnancy and early motherhood for women with Type 1 diabetes mellitus: a randomized controlled trial

et al. 2017

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AimsTo report results from and explore use of a multicentre, parallel‐group, unblinded, randomized controlled trial testing the effectiveness in terms of well‐being and diabetes management of a person‐centred, web‐based support programme for women with Type 1 diabetes, in pregnancy and postpartum.MethodsBetween 2011 and 2014, 174 pregnant women with Type 1 diabetes were randomly allocated (1:1) to web‐based support and standard care (intervention group, n=83), or standard care (control group, n=91). The web‐based support consisted of evidence‐based information; a self‐care diary for monitoring of daily activities; and peer support in a discussion forum. The primary outcomes (mean difference, measured at 6 months after childbirth) were well‐being and diabetes management.ResultsNo differences were found with regard to the primary outcome measure scores for general well‐being [1.04 (95% CI –1.28 to 3.37); P=0.68] and self‐efficacy of diabetes management [0.08 (95% CI –0.12 to 0.28); P= 0.75], after adjustment for baseline differences in the insulin administration method, nor with regard to the secondary outcome measures.ConclusionsAt 6 months after childbirth, the web‐based support plus standard care was not superior to standard care in terms of general well‐being or self‐efficacy of diabetes management. This might be explained by the low number of participants who had a high activity level. Few simultaneously active participants in the web‐based programme and stressors in motherhood and diabetes postpartum were the main barriers to its use. Further intervention studies that offer web‐based support are needed, with lessons learned from the present study.(Clinicaltrials.gov identification number: NCT015665824)

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Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Person‐centred, web‐based support in pregnancy and early motherhood for women with Type 1 diabetes mellitus: a randomized controlled trial

et al. 2017

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“…New internet oriented methods of obtaining reliable information include webpages andwebsites that provide systematic, specific and research based knowledge [2][3][4]. A number of different empirical studies have been conducted that form the basis of the knowledge and research in the development of the EKC model.…”

Section: Methodsmentioning

confidence: 99%

The EKC-Model Provides Empathy, Knowledge and Care for Women that Encounter Health issues During the Reproductive Life

Adolfsson¹,

Jordmorfag²

2016

Int J Gynecol Clin Pract

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The EKC model (Empathy, Knowledge and Care) provides the necessary empathy, knowledge and care for the women who encounter health issues during their reproductive life. This approach to caring requires that healthcare workers are knowledgeable in order to confirm that a patient has suffered a miscarriage or a IUFD (Intra-uterine fetus death). Through understanding and training in the EKC model the healthcare professional increases their ability to be sympathetic and empathetic to a patient's needs. The workers get training in sexual and reproductive health in order to intimately understand how they affect the lives of individuals and their families.Sexual and reproductive health is a cross-sectional science that includes medicine, psychology, sociology and the caring sciences. Some of the more commonly experienced issues are in the areas of spontaneous abortion, miscarriages, invitrofertilization and adoption. Issues such as sexual abuse and violence towards women is another issue that is treatable with the EKC model. Pregnant women with diabetes type 1 fall under "maternity and diabetes" issues.Intimate knowledge about how the grieving process works is essential to be able to provide the necessary support to the patient. It is possible that the support will give them the courage and motivation to try and conceive again. One key aspect of the EKC model is to provide open and clear communication between the healthcare personnel and the patient, whether that communication is done face-to-face or otherwise. The structured EKC conversation provides a viable tool to help healthcare professionals assist their patients in coming to terms and resolving their loss.

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“…Concerning the organizational aspects of development processes, Elwyn et al [17] and Ekberg et al [18] proposed ideal models of activities. Berry et al [19] and Berg et al [20] described development processes of Web-based decision support, providing an overview of phases. Pasternack et al [21] described "the process and the challenges" when developing decision support, noting the risk of lack of feedback from patients as well as the need for careful thinking in selecting what to include in the design.…”

Section: The Development Of Decision Support For Patientsmentioning

confidence: 99%

Actors and intentions in the development process of a mobile phone platform for self-management of hypertension

Ranerup

Hallberg

2014

Informatics for Health and Social Care

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This is an electronic version of an article published in: Agneta Ranerup and Inger Hallberg, Actors and intentions in the development process of a mobile phone platform for self-management of hypertension, 2015, Informatics for Health and Social Care,(40) Abstract AimThe aim of this study was to enhance the knowledge regarding actors and intentions in the development process of a mobile phone platform for self-management of hypertension. MethodsOur research approach was a 14-month longitudinal "real-time ethnography" method of description and analysis. Data were collected through focus groups with patients and providers, patient interviews, and design meetings with researchers and experts. The analysis was informed by the concepts of actors and inscriptions in Actor-Network Theory (ANT). ResultsOur study showed that laypersons, scientific actors, as well as technology itself, might influence development processes of support for self-management of hypertension. The intentions were inscribed into the technology design as well as the models of learning and treatment. ConclusionsThis study highlighted important aspects of how actors and intentions feature in the development of the mobile phone platform to support self-management of hypertension. The study indicated the multifacetedness of the participating actors, including the prominent role of technology. The concrete results of such processes included questions in the self-report system, learning and treatment models.-3 -

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Person-Centered Web Support to Women with Type 1 Diabetes in Pregnancy and Early Motherhood—The Development Process

Cited by 28 publications

References 33 publications

Person‐centred, web‐based support in pregnancy and early motherhood for women with Type 1 diabetes mellitus: a randomized controlled trial

Person‐centred, web‐based support in pregnancy and early motherhood for women with Type 1 diabetes mellitus: a randomized controlled trial

The EKC-Model Provides Empathy, Knowledge and Care for Women that Encounter Health issues During the Reproductive Life

Actors and intentions in the development process of a mobile phone platform for self-management of hypertension

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