Person-centered dementia care: current perspectives

Manthorpe, Jill; Samsi, Kritika

doi:10.2147/cia.s104618

Cited by 75 publications

(69 citation statements)

References 25 publications

(26 reference statements)

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“…Person‐centredness is described by McCormack & McCance () as living one's own life while doing meaningful activities despite symptoms of dementia. Further, Edvardsson et al () described person‐centredness in the caring context, person‐centred care, which is commonly seen as a standard for high‐quality care, especially in the care of persons with dementia (Manthorpe & Samsi, ; Ruggiano & Edvardsson, ). It is possible for persons with dementia to be cared for by their spouses in a unique person‐centred way because of their life experience together in a manner that only they could achieve.…”

Section: Discussionmentioning

confidence: 99%

The value of “us”—Expressions of togetherness in couples where one spouse has dementia

Swall

Williams

Hammar

2019

Int J Older People Nursing

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Background: Living with dementia involves both illness and health, and self-care and care from others. As most persons with dementia live in their own homes, dementia affects not only the person with the disease, but also family, commonly the partner.Research shows that spousal carers feel as though they are losing their partners since they can no longer share thoughts, feelings and experiences as a couple.Aim: The aim of the study was to describe the sense of togetherness of the spouses when one spouse has dementia. Method:The sample consists of 18 recorded conversations between 15 persons with dementia and their spouses. The filmed conversations were transcribed verbatim and then analysed using qualitative content analysis. Findings:One overarching theme arose: Dementia preserved and challenged the value of "us." It can be challenging for a couple in which one partner has dementia to preserve a sense of togetherness and to have the relationship they wish for. Conclusion:Based on our results, we suggest that practitioners should help couples to strengthen their bond as a couple so as to maintain a sense of well-being. Future studies should examine couplehood under differing conditions, such as long-versus short-term relationships. Prior relationship quality may also be a factor that influences the sense of couplehood following a serious health challenge, such as dementia. Implication for practice: When spouses were able to live together, their relationship was enriched at many levels. Their love for each other strengthened them as a unit -as an "us" -where togetherness seemed to be strong. Future studies need to examine whether the sense of couplehood varies depending on the length of the relationship (i.e., a relationship of many years or a relatively new relationship).

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Section: Discussionmentioning

confidence: 99%

The value of “us”—Expressions of togetherness in couples where one spouse has dementia

Swall

Williams

Hammar

2019

Int J Older People Nursing

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“…In response to growing worldwide demand for health and social care, policy makers and service providers are the developing strategies and interventions that reflect their capacity and resources, and align with their country's public health principles, priorities and culture (Manthorpe & Samsi, ; World Health Organization, ). The standard and availability of support to people with dementia has a direct influence on their independence, health and well‐being, which, in turn, determine their quality of life (Eggenberger, Heimerl, & Bennett, ; Hallberg et al, ; Rothera et al, ).…”

Section: Introductionmentioning

confidence: 99%

“…A person‐centred framework is accepted widely as the gold standard in this regard (Downs & Collins, ; Love & Pinkowitz, ). Commonly associated with the work of Kitwood and Bredin (), the principles of person‐centred care recognise that each person with dementia has an enduring sense of self that comprises their individual feelings, thoughts and preferences (Manthorpe & Samsi, ). Fundamental to person‐centred care are effective verbal and non‐verbal communication, developing rapport, and being focused on the person, rather than completing a task (Hansen et al, ; Livingston et al, ).…”

Section: Introductionmentioning

confidence: 99%

‘I know they are not trained in dementia’: Addressing the need for specialist dementia training for home care workers

Polacsek

Goh

Malta

et al. 2019

Health Soc Care Community

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Global population ageing has meant a rapid increase in the numbers of older people with dementia, most of whom live in their own homes. Staying at home is an important determinant of health and well-being. As care needs increase, the quality of community support which older people receive directly influences their capacity to remain in their own homes. While many are supported informally by family carers, formal support provided by home care workers often enables them to remain at home for longer period. However, providing community-based care for people with dementia can be challenging. Workers often lack training in dementia-specific care for clients with increasingly complex needs, and typically work without direct supervision.As the demand for person-centred home care for people with dementia increases, specialist dementia training for home care workers is urgently needed. In this qualitative study, we used in-depth interviews of a purposive sample, comprising 15 family carers and four older people with dementia, to understand the experience of receiving community care. Data analysis was guided by Braun and Clarke's approach to thematic analysis and revealed the following five overlapping themes, relating to home care workers' understanding of dementia, person-centred care, communication and rapport, mutual collaboration, and the influence of organisational constraints on continuity of care. Although participants acknowledged that service providers operated under challenging circumstances, they were frustrated with home care workers' lack of dementia knowledge and inconsistent staff rostering. Conversely, an understanding of the lived experience of dementia, effective communication and rapport, and continuity of care contributed significantly to a positive experience of receiving care.The findings of this study will be used to inform the essential elements of a training

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“…This implies, among other things, supporting the physical and mental health of persons suffering from dementia, and the facilitation of coping, belonging, and experience of meaningfulness. Person-centred care is highly emphasized, 10,11 and environmental treatments, such as song and music therapy, are described as a central approach. Studies have shown that implementing song and music therapy in dementia care has positive impacts, and familiar and preferred music is found to increase the sense of environmental familiarity for people suffering from dementia.…”

Section: Introductionmentioning

confidence: 99%

<p>Systematic Use of Song and Music in Dementia Care: Health Care Providers’ Experiences</p>

Ekra

Dale

2020

JMDH

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Background and Aim: Using song and music in a systematic way in residential dementia care may have several positive impacts on the patients, as well as the care providers. The aim of this study was to explore how health care providers experienced taking responsibility for conducting a song and music program in dementia care in nursing homes. Methods: An explorative, qualitative study design was used. Focus groups were formed by 17 health care providers from 3 different nursing homes. These providers had experience implementing and using the "Gjenklang" ("reverberation") song and music program especially developed for people with dementia. Focus group interviews were transcribed verbatim, and systematic text condensation was used for analysing the data. Results: Three categories with associated subcategories emerged from the analysis process. The categories were 1) the music program increased the staff's consciousness and awareness; 2) the music program evoked the patients' emotions and reactions; and 3) maintaining enthusiasm over time. Conclusion: The general opinion among the participants was that using the song and music program in a systematic and planned way had many benefits and positive impacts on the patients, as well as the staff. However, it was challenging to make it a part of the daily routine. Thus, it is important that the leaders of the units take responsibility to ensure continuity and maintain engagement among the staff over time.

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Person-centered dementia care: current perspectives

Cited by 75 publications

References 25 publications

The value of “us”—Expressions of togetherness in couples where one spouse has dementia

The value of “us”—Expressions of togetherness in couples where one spouse has dementia

‘I know they are not trained in dementia’: Addressing the need for specialist dementia training for home care workers

<p>Systematic Use of Song and Music in Dementia Care: Health Care Providers’ Experiences</p>

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