Perioperative experiences and needs of patients who undergo colorectal cancer surgery and their family caregivers: a qualitative study

Wan, Su Wei; Chong, Choon Seng; Jee, Xin Pei; Pikkarainen, Minna; He, Hong

doi:10.1007/s00520-022-06963-1

Cited by 5 publications

(4 citation statements)

References 36 publications

(41 reference statements)

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“…However, with the improvement in treatment and an extended lifespan, CRC survivors gained confidence in their ability to manage the disease, leading to the development of a more positive attitude. Therefore, medical staff can help survivors recall positive experiences using mindfulness‐based stress reduction (Johns et al., 2016 ), cognitive behavioural therapy (Teo et al., 2020 ) and spouse dual coping (Wan et al., 2022 ) methods to guide CRC survivors to express and release negative psychological feelings.…”

Section: Discussionmentioning

confidence: 99%

The unmet rehabilitation needs of colorectal cancer survivors after surgery: A qualitative meta‐synthesis

Yi,

Yang,

Shi

et al. 2023

Nursing Open

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AimTo systematically review and synthesize the findings of qualitative research on the unmet rehabilitation needs of colorectal cancer survivors (CRC) after surgery.DesignA qualitative meta‐synthesis registered with PROSPERO (CRD42022368837).MethodsCNKI, Wanfang Data, PubMed, Scopus, Embase, Cochrane, Medline, PsychINFO and CINAHL were systematically searched for qualitative studies on the rehabilitation needs of CRC survivors after surgery from the inception of each database to September 2022.ResultsA total of 917 relevant reports were initially collected and 14 studies were finally included. A total of 49 needs were extracted and divided into 15 categories in 6 integrated findings: (1) the need to adopt healthy eating habits; (2) the need for exercise motivation and exercise guidance; (3) the conflicting needs to return to work; (4) unaddressed physiological needs; (5) spiritual needs; (6) the need for multi‐dimensional social support.Patient or Public ContributionNot applicable.

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Section: Discussionmentioning

confidence: 99%

The unmet rehabilitation needs of colorectal cancer survivors after surgery: A qualitative meta‐synthesis

Yi,

Yang,

Shi

et al. 2023

Nursing Open

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“…To avoid wasting too much time in the search process, these groups need an official and mobile platform that provides reliable professional information and treatment resources. Developed countries had their official institutions and support websites dedicated to hydrocephalus, which was very friendly for hydrocephalus patients and their caregivers [ 49 ], while we can consider the advantages of peer support in the Chinese cultural context to realize such shunt patients and caregivers to share experiences and learning, which may bridge the gap between self-care and professional help and promote a positive reconstruction of postoperative life [ 50 , 51 ]. Considering the limited medical resources and insurance system, some expensive surgical equipment and medications are not available in China with only self-pay reimbursement, especially for neurosurgical patients, and some improvements may need to be considered for future hydrocephalus equipment facilities and healthcare systems.…”

Section: Discussionmentioning

confidence: 99%

Experiences of family caregivers of patients with post-traumatic hydrocephalus from hospital to home: a qualitative study

Wang

Liu

Rosa

et al. 2022

BMC Health Serv Res

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Background Post-traumatic hydrocephalus (PTH) is a complication of traumatic brain injury (TBI) that requires treatment and postoperative care. The shunt is one of the main treatments for PTH, which presents with dysfunction and infection. Considering brain injury, hydrocephalus shunt malfunction, and infection, family caregivers need to be responsible for caring for PTH patients, recognizing shunt malfunction and infection, and managing those patients accordingly from hospital to home. Understanding the experiences and needs of caregivers is beneficial for knowing their competency and quality of health care, ameliorating and ensuring future transition care. The study aimed to explore the feelings, experiences, and needs of family caregivers when caring for patients with TBI, PTH and shunts. Methods This was exploratory research of a purposive sample of 12 family caregivers of adult patients with TBI, PTH and shunts in five neurosurgery departments at a general hospital in Zhengzhou, Henan Province, China, using a semi-structured interview method. Data were collected from October 2021 to March 2022 before being analyzed by content analysis methods. Results Caregivers required professional and social knowledge and support in the areas of TBI, PTH and shunts, caregiving interventions, psychological care needs, and health insurance, just as caregivers do, but unlike other general caregivers, care for patients with TBI, PTH, and shunt is fraught with uncertainty and the need to manage shunt setting, and caregivers often experience 'complex emotional reaction' during the transitional period, where care needs and complex emotions may lead to a lack of caregiver confidence, which in turn may affect caregiving behaviors, and experiences that affect care may be mediated through caregiving confidence. The perceived availability of resources, particularly those that are still available to them when they return home, has a significant impact on participants' emotional response and sense of confidence. Conclusions The emotional response and the impact of stressor caregivers after TBI, PTH, and shunt was important, and sometimes confidence in care appeared to be an intermediate and useful factor that needed to be considered as health professionals prepared to develop care resources on how to manage and empower patients with TBI, PTH, and shunt. Meanwhile, there may be gaps and inequities in supportive care for patients diagnosed with TBI, PTH, and shunt in China.

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“…During this time, for many patients, family caregivers (FCs) are often the primary caregivers for colorectal cancer patients. 4 …”

Section: Introductionmentioning

confidence: 99%

Trajectory of Caregiver Burden and Associated Factors in Family Caregivers of Individuals with Colorectal Cancer: A Longitudinal, Observational Multicenter Study

Wang,

Duan,

Geng

et al. 2024

PPA

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Purpose To (1) investigate the changes in 5 domains (lack of family support, impact on finance, impact on daily schedule, impact on health, and self-esteem) of family caregiver (FC) burden and overall burden for first diagnosed colorectal cancer; (2) exploring changes in FC burden for colorectal cancer patients over time and analyze the trajectory and sub-trajectories of FC burden; and (3) identify the FC‐related and patient‐related factors most associated with the overall FC burden and each of its sub-trajectories. Patients and methods This study is a descriptive longitudinal study. A convenience sampling method was used to recruit patients with colorectal cancer and their primary FCs from seven hospitals. Results A total of 185 pairs of first diagnosed colorectal cancer patient and their FC were investigated for 4 times. The results reveal the overall burden and 5 domains of burden showed a trend of increasing first and then decreasing, and the burden was the heaviest at the time in the middle of chemotherapy. In the course of time, the aspect that caused the greatest amount of burden on average transitioned from the “effect on daily schedule” (range= 3.3 and 3.9) to the “effect on finances” (range= 3.1 to 3.4). Conclusion Almost 88% of FCs have a either a moderate or a high level of burden. The quality of life of patients and the self-efficacy, social support and care ability of FCs have a great impact on the overall FC burden and each sub-trajectory.

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Perioperative experiences and needs of patients who undergo colorectal cancer surgery and their family caregivers: a qualitative study

Cited by 5 publications

References 36 publications

The unmet rehabilitation needs of colorectal cancer survivors after surgery: A qualitative meta‐synthesis

The unmet rehabilitation needs of colorectal cancer survivors after surgery: A qualitative meta‐synthesis

Experiences of family caregivers of patients with post-traumatic hydrocephalus from hospital to home: a qualitative study

Trajectory of Caregiver Burden and Associated Factors in Family Caregivers of Individuals with Colorectal Cancer: A Longitudinal, Observational Multicenter Study

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