Performance of the EQ-5D-Y Interviewer Administered Version in Young Children

Amien, Razia; Scott, Des; Verstraete, J

doi:10.3390/children9010093

Cited by 5 publications

(4 citation statements)

References 34 publications

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“…When considering missing responses on the EQ-TIPS the majority (50%) were attributed to caregivers from the crèche group. Independent completion may have been difficult for these caregivers with previous validation of the EQ-5D in isiXhosa making use of interviewers 34 . Although the questionnaires were not interviewer administered in the hospital group there was a researcher available for questions or clarification.…”

Section: Discussionmentioning

confidence: 99%

The reliability and validity of the isixhosa version of the euroqol toddler and infant populations (EQ-TIPS) health related quality of life instrument

Janine,

Razia

2023

Afr H. Sci.

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Background: Considering the high burden of disease in young children measurement of Health-Related Quality of Life is needed to evaluate the burden of morbidity. This study aims to report on the validity and reliability of the isiXhosa EuroQol Toddler and Infant Populations (EQ-TIPS) measure for South Africa.Methods: A sample of 181 caregivers of children 0-36 months were recruited from a hospital in-patient (inpt) and outpatient (outpt) facility and crèches. The EQ-TIPS, Ages and Stages Questionnaire (ASQ), Faces, Leg, Activity, Cry, Consolability (FLACC) and dietary information were administered at baseline. EQ-TIPS was administered one week later in crèche children for test-retest reliability.Results: Known groups showed significant differences for pain (X2=37.21, p<0.001), and EQ-TIPS level sum score (KWH=25.9, p<0.001) between health groups. The Visual Analogue Scale was unable to discriminate general health between groups (KW-H=3.92, p=0.141). Concurrent validity was weak to moderate and significant for all dimensions hypothesised to correlate. There was significant fair to moderate test-retest reliability for EQ-TIPS dimensions of movement, play, pain and eating.Conclusion: The isiXhosa EQ-TIPS is valid and reliable for very young children in South Africa and we suggest that it be included in the assessment of children with health conditions within this context.

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Section: Discussionmentioning

confidence: 99%

The reliability and validity of the isixhosa version of the euroqol toddler and infant populations (EQ-TIPS) health related quality of life instrument

Janine,

Razia

2023

Afr H. Sci.

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“…Participants in the P-MIC study completed instruments faster when compared with completion times available in the literature. The mean time for participants in the P-MIC study to complete the EQ-5D-Y-3L was 46.7 s, whilst completion times for the EQ-5D-Y-3L in studies conducted in South Africa and the United Kingdom (UK) range between 78 and 157 s [17][18][19]. The mean time taken for participants in the P-MIC study to complete the CHU9D was 56.3 s, whilst completion times for the CHU9D in a study conducted in the UK was 148 s [19].…”

Section: Discussionmentioning

confidence: 99%

“…However, other aspects of acceptability, such as users' own perspectives on the difficulty or ease of completing instruments, are lacking. Similarly, the feasibility of completing HRQoL instruments is often evaluated by assessing time to complete; however, only a few studies across different populations have presented such data for paediatric HRQoL instruments [17][18][19]. Furthermore, the existing evidence on the acceptability and feasibility of paediatric HRQoL instruments is focused on single instruments and or populations (e.g., specific conditions and age groups), precluding head-to-head comparisons of instrument acceptability and feasibility across a range of contexts [10,11].…”

Section: Introductionmentioning

confidence: 99%

Collecting Paediatric Health-Related Quality of Life Data: Assessing the Feasibility and Acceptability of the Australian Paediatric Multi-Instrument Comparison (P-MIC) Study

Jones,

O’Loughlin,

Xiong

et al. 2023

Children

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Background: Collecting data using paediatric health-related quality of life (HRQoL) instruments is complex, and there is a paucity of evidence regarding the comparative performance of paediatric HRQoL instruments. The Australian Paediatric Multi-Instrument Comparison (P-MIC) study was conducted to address this paucity of evidence. This study aims to understand the (1) feasibility of collecting data using paediatric HRQoL instruments in a research setting and (2) acceptability and feasibility for children and their caregivers to complete common paediatric HRQoL instruments using data from the Australian P-MIC study. Methods: Data were from children aged 5–18 years from the Australian P-MIC study. Demographics, cost and time for data collection, dropout rates, and inconsistent responses were used to assess Aim 1. Participant-reported difficulty and completion time were used to assess Aim 2. Subgroup analyses included child age, report type (self/proxy), sample recruitment pathway (hospital/online), and online panel sample type (general population/condition groups). Results: Overall, 5945 P-MIC participants aged 5–18 years completed an initial survey, of these, 2346 also completed the follow-up survey (39.5% response rate). Compared with online panel recruitment, hospital recruitment was more costly and time-consuming and had higher follow-up completion (33.5% versus 80.4%) (Aim 1). Data were of similar good quality (based on inconsistent responses) for both recruitment pathways (Aim 1). Participants completed each instrument in <3 min, on average, and >70% reported each instrument as easy to complete (Aim 2). Conclusions: The Australian P-MIC study was able to collect good-quality data using both online panel and hospital recruitment pathways. All instruments were acceptable and feasible to children and their caregivers.

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“…As the EQ-5D-Y-3L self-complete version has been successfully tested for validity, reliability and responsiveness in South African children aged 8–10-years [ 35 ], this study compared the performance of the EQ-5D-Y-3L IA in children 5–7-years with those aged 8–10-years [ 19 , 27 , 36 , 37 ]. The sample size was considered for each psychometric property in accordance with the COSMIN guidelines where n > 100 per group is considered very good for convergent validity and reliability [ 38 ].…”

Section: Instrumentsmentioning

confidence: 99%

The validity and reliability of the interviewer-administered EQ-5D-Y-3L version in young children

Amien

Scott

Verstraete

2023

Health Qual Life Outcomes

Self Cite

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Objectives The aim of this study was to determine the validity and reliability of the EQ-5D-Y-3L interviewer-administered (IA) version in South African children aged 5–7-years compared to 8–10-years. Methods Children aged 5–10-years (n = 388) were recruited from healthcare facilities, schools for learners with special educational needs and mainstream schools across four known condition groups: chronic respiratory illnesses, functional disabilities, orthopaedic conditions and the general population. All children completed the EQ-5D-Y-3L IA, Moods and Feelings Questionnaire (MFQ), Faces Pain Scale-Revised (FPS-R) and a functional independence measure (WeeFIM) was completed by the researcher. Cognitive debriefing was done after the EQ-5D-Y-3L IA to determine comprehensibility. Test–retest of the EQ-5D-Y-3L IA was done 48 h later and assessed using Cohen’s kappa (k). Results Results from children aged 5–7-years (n = 177) and 8–10-years (n = 211) were included. There were significantly higher reports of problems in the Looking After Myself dimension in the 5–7-year-olds (55%) compared to the 8–10-year-olds (28%) (x2 = 31.021; p = 0.000). The younger children took significantly longer to complete the measure (Mann-Whitney U = 8389.5, p < 0.001). Known-group validity was found at dimension level with children receiving orthopaedic management reporting more problems on physical dimensions across both age-groups. Convergent validity between Looking After Myself and WeeFIM items of self-care showed moderate to high correlations for both age-groups with a significantly higher correlation in the 8–10-year-olds for dressing upper (z = 2.24; p = 0.013) and lower body (z = 2.78; p = 0.003) and self-care total (z = 2.01; p = 0.022). There were fair to moderate levels of test-retest reliability across age-groups. Conclusion The EQ-5D-Y-3L IA showed acceptable convergent validity and test–retest reliability for measuring health in children aged 5–7-years. There was more report of problems with the dimension of Looking After Myself in the 5–7-year group due to younger children requiring help with dressing, including buttons and shoelaces due to their developmental age, rather than their physical capabilities. Therefore, it may be useful to include examples of age-appropriate dressing tasks. There was further some reported difficulty with thinking about the dimensions in the younger age-group, most notably for Usual Activities which includes a large number of examples. By decreasing the number of examples it may reduce the burden of recall for the younger age-group.

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Performance of the EQ-5D-Y Interviewer Administered Version in Young Children

Cited by 5 publications

References 34 publications

The reliability and validity of the isixhosa version of the euroqol toddler and infant populations (EQ-TIPS) health related quality of life instrument

The reliability and validity of the isixhosa version of the euroqol toddler and infant populations (EQ-TIPS) health related quality of life instrument

Collecting Paediatric Health-Related Quality of Life Data: Assessing the Feasibility and Acceptability of the Australian Paediatric Multi-Instrument Comparison (P-MIC) Study

The validity and reliability of the interviewer-administered EQ-5D-Y-3L version in young children

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