Perceptions of Treatment Burden Among Caregivers of Elders With Diabetes and Co-morbid Alzheimer’s Disease and Related Dementias: A Qualitative Study

Dickson, Victoria Vaughan; Melnyk, Halia; Ferris, Rosie; Leon, Alejandra Serrano; Arcila-Mesa, Mauricio; Rapozo, Crystalinda; Chodosh, Joshua; Blaum, Caroline S.

doi:10.1177/10547738211067880

Cited by 1 publication

(12 citation statements)

References 30 publications

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“…Additionally, two studies noted that many caregivers found medication management, for both oral medication and insulin, home glucose monitoring, doctor visits, exercise and diet, challenging and time consuming and had concerns related to medication safety and medication errors 30,32 …”

Section: Resultsmentioning

confidence: 99%

“…Informal carers reported feeling very stressed, helpless and frustrated. A study by Dickson et al 32 . illustrated this following a qualitative study of 33 informal carers providing support to people with dementia and diabetes mellitus 32 .…”

Section: Resultsmentioning

confidence: 99%

“…Although some social support was available for limited specified times – i.e. practical assistance in medicine management, information or emotional psychological assistance – 50% required home health care support, and/or a non‐medical care service, describing their role as caregiver ‘24‐7’ in coordination and supervision in the absence of the social support 32 …”

Section: Resultsmentioning

confidence: 99%

“…Studies were grouped into the fol lowing categories: (1) individuals with these conditions, (2) informal carers, and (3) health care profes sionals. Six papers [23][24][25][26][27][28] focused on the implications of those diagnosed with both conditions, four [29][30][31][32] on the implications for their informal carers. Of the 11 papers, two 29,32 included both the individuals and their informal carers.…”

Section: Resultsmentioning

confidence: 99%

“…Six papers [23][24][25][26][27][28] focused on the implications of those diagnosed with both conditions, four [29][30][31][32] on the implications for their informal carers. Of the 11 papers, two 29,32 included both the individuals and their informal carers. One of the studies reported the experiences of health care professionals.…”

Section: Resultsmentioning

confidence: 99%

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Managing diabetes and dementia, a challenging duo: a scoping review

Sharkey,

Coates

2023

Practical Diabetes

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This paper aims to describe experiences and challenges when managing diabetes along with dementia from the perspectives of those living with these conditions, their informal carers and health care professionals.The scoping review included studies published within the last 10 years (2012–2022) from EBSCO Research Databases: CINAHL, Health Business, Soc Index, ERIC, Medline, Information Science & Technology Abstracts and a review of reference lists. Three hundred and fifty‐six papers were identified of which 11 studies met the inclusion criteria that focused on the experiences of managing the comorbidities of diabetes and dementia.Six papers focused on the implications of those individuals diagnosed with both conditions, four on implications for their informal carers (unpaid), two included both the individuals and their informal carers. There was one study that reported experiences of health care professionals. Individuals faced extraordinary challenges managing both conditions to perform activities of self‐care such as taking medications, monitoring glucose levels, healthy eating, exercising and attending appointments. Informal carers reported that caring for both conditions was burdensome, sometimes overwhelming and they wanted more support from family and patients’ health care providers.This scoping review revealed that many individuals and their informal carers were struggling with the impact of these comorbid conditions. Challenges such as lack of information and support were evident but there were few examples of solutions to improve diabetes management in those with dementia. To provide holistic care we need to integrate knowledge and skills from the areas of diabetes, mental health and social care. There is very little information relating to the experiences of health care professionals who work with those living with these conditions. Copyright © 2023 John Wiley & Sons.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%