Perceptions of time spent pursuing cancer care among patients, caregivers, and oncology professionals

Hall, Evan; Sridhar, Deepa J.; Singhal, Surbhi; Fardeen, Touran; Lahijani, Sheila; Trivedi, Ranak; Gray, Caroline; Schapira, Lidia

doi:10.1007/s00520-020-05763-9

Cited by 13 publications

(24 citation statements)

References 31 publications

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“…Five studies were conducted in the USA [ 24 – 26 , 28 , 29 ], two in Israel [ 30 , 31 ], two in Australia [ 32 , 33 ], two in China [ 34 , 35 ], and the rest in various individual countries. Nine studies were qualitative [ 23 – 25 , 29 , 32 , 34 , 36 – 38 ], five studies were cross-sectional [ 26 , 31 , 33 , 35 , 39 ], and three were mixed-methods [ 28 , 30 , 40 ].…”

Section: Resultsmentioning

confidence: 99%

“…Nine studies were qualitative [ 23 – 25 , 29 , 32 , 34 , 36 – 38 ], five studies were cross-sectional [ 26 , 31 , 33 , 35 , 39 ], and three were mixed-methods [ 28 , 30 , 40 ]. All included studies were published between 1994 [ 30 ] and 2021 [ 24 , 40 ]. The median sample size was 31 participants.…”

Section: Resultsmentioning

confidence: 99%

“…Ten of 17 studies included domains related to instrumental care [ 24 , 28 – 32 , 34 , 36 , 37 , 40 ]. In 5/10 studies, caregivers were involved in most domestic tasks such as home maintenance, food preparation, shopping, laundry, and cooking during the postoperative phase and while patients were receiving chemotherapy and radiotherapy [ 30 , 31 , 34 , 36 , 37 ].…”

Section: Resultsmentioning

confidence: 99%

“…In this review, caregiver burden and psychological distress were assessed separately from HRQOL. Previous studies of cancer caregivers have shown that an increased burden on caregivers has led to poor physical and psychological health and decreased HRQOL [ 23 , 24 ]. The degree to which the spousal caregiver experiences distress in the caregiving role directly affects their ability to care for the spouse with cancer, as suggested by previous literature on family caregivers of cancer survivors [ 25 , 26 ].…”

Section: Methodsmentioning

confidence: 99%

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Care provided by older adult caregivers to a spouse in active cancer treatment: a scoping review

Donison

Toledano

Sigal

et al. 2022

Support Care Cancer

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Purpose Due to population aging, the number of older adults with cancer will double in the next 20 years. There is a gap in research about older adults who are the caregiver of a spouse with cancer. Therefore, this review seeks to answer the overarching research question: What is known about the association of providing care on Health-Related Quality of Life (HRQOL), psychological distress, burden, and positive aspects of caregiving for an older adult caregiver to a spouse with cancer? Methods This scoping review was guided by the framework of Arksey and O’Malley and refined by Levac et al. Comprehensive search strategies were conducted in Medline, Excerpta Medica Database (EMBASE), PsycINFO, and Cumulative Index to Nursing and Allied Health Literature (CINAHL) from inception until April 15, 2021. Two independent reviewers screened abstracts, full text, and completed data abstraction. A gray literature search and two stakeholder consultations were conducted. Results A total of 8132 abstracts were screened, and 17 articles were included. All studies outlined caregivers provided preventive, instrumental, and protective care to a spouse in active cancer treatment. However, the time spent on caregiving was rarely examined ( n = 4). Providing care had a negative association on HRQOL, perceived burden, and psychological distress outcomes. Five studies examined positive experiences of caregivers. Conclusion The scoping review findings highlight the informal care provided by older adult caregivers to a spouse with cancer and how the care provided is associated with HRQOL, burden, psychological distress, and the positive aspects of caregiving. Supplementary Information The online version contains supplementary material available at 10.1007/s00520-022-07176-2.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

See 2 more Smart Citations

Care provided by older adult caregivers to a spouse in active cancer treatment: a scoping review

Donison

Toledano

Sigal

et al. 2022

Support Care Cancer

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“…The lives of patients and family members change completely when a diagnosis of cancer is received. Caregivers must make adjustments and arrangements to care for the patient, making a considerable time investment in therapies aimed at controlling and treating the disease, situation that can impact the wellbeing of both the patient as well as the caregiver (22). Another consideration is the time required for paperwork, which may result in losses, even including the loss of a partner or a job (12).…”

Section: End-of-life In Cancer Patients: Family Perspectivesmentioning

confidence: 99%

End of life of the cancer patient: patient, family and physician perceptions

Flga

Arango-Gutiérrez

Vries

2022

Colomb. J. Anesthesiol.

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Chronic diseases such as cancer have imposed challenges on health systems. Colombia has worked on the construction and implementation of a legal framework for palliative care, but a comprehensive approach to the care provided to cancer patients at the end of their lives is still lacking. Such an approach should be based on understanding of the perceptions of its different actors in order to allow for adequate decision-making and improved support during this stage. Currently, the infrastructure to provide adequate oncological support is insufficient, the administrative procedures that patients and families have to go through to get authorization for treatments and medications for symptom relief are overwhelming and, many times, costs must be paid out of pocket. On the other hand, it is important to train healthcare personnel to develop communication skills to approach patients from a place of compassion, personal development and reflection, creating spaces in which patients can speak openly about their wishes, fears and worries, even if they come together with the desire to accelerate the end of life. In addition, healthcare staff should support and initiate conversations about life and the end of life between patients and their families if this communication is complicated, given its importance for healthcare, quality of life and death. This article seeks to reflect on the end of life of the cancer patient from the perceptions of the actors involved, namely, patients, caregivers and healthcare professionals.

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