Perceptions of the Term Palliative Care

Abstract

Better definition of and explanation to families and health care providers about what palliative care programs offer may improve perceptions about palliative care and increase program utilization.

Perceptions of palliative care among patients with advanced cancer and their caregivers

“…In these studies, participants responded more favourably to a program called "supportive care," rather than "palliative care," regardless of the description of that service. 9,15 At least 1 oncology palliative care service reported earlier outpatient referrals after such a name change, 35 although oncologists did not perceive that they had changed their referral practices.…”

“…Previous surveys of patients and/or caregivers have solicited opinions about either the quality of palliative care received 13,14 or about the acceptability of the name "palliative care" versus "supportive care" for those who might be referred. 9,15 With the exception of a study that validated a measurement tool to assess perceptions of palliative care, 16 a detailed exploration of how patients…”

A palliative care hotline for multiple sclerosis: A pilot feasibility study

“…Due to lacking records on the number of (severely affected) MS patients, the number of potential callers could not be estimated in advance. A qualitative study by our department (Boldt et al, 2006;McInturff & Harrington, 2011).…”

On Being Fired: Experiences of Patient-Initiated Termination of the Patient–Physician Relationship in Palliative Medicine

“…Some patients may have negative associations with the term "palliative care," while for others the term may be completely new. 22 Patients may assume that palliative care clinicians have been consulted to assist solely with symptom control, and be taken by surprise when the palliative care clinician inquires about goals of care and plans for the future. In the initial meeting, therefore, it is critical that palliative care clinicians clarify ways in which they can be helpful to patients, from pain and symptom management, to communication, to planning for the future.…”