Perceptions of shared care among survivors of colorectal cancer from non-English-speaking and English-speaking backgrounds: a qualitative study

Tan, Lawrence; Gallego, Gisselle; Nguyen, Thi Thao; Bokey, Les; Reath, Jennifer

doi:10.1186/s12875-018-0822-6

Cited by 16 publications

(55 citation statements)

References 28 publications

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“…Non-English speaker: Non-English-speaking cancer patients face difficulties communicating with their healthcare providers, are commonly being diagnosed at later stages, lack immediate access to translated cancer information, and cannot gain access to the care they need, often resulting in worse outcomes [ 20 ]. Non-English speakers were defined as individuals whose electronic medical record (EMR) was flagged as requiring translation services [ 21 ].…”

Section: Methodsmentioning

confidence: 99%

A new proactive virtual resource center navigation model identifies patient risk factors to reduce barriers to cancer care during the COVID-19 pandemic

Bigelow

Hart

Shaban

et al. 2021

Support Care Cancer

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Purpose The COVID-19 pandemic has exacerbated cancer treatment disparities, including accessibility to resources. We describe the process and outcomes of a new proactive, virtual nurse-led, resource center navigation model enhanced by using volunteer patient navigators. Using known patient risk factors, this model provides interventions to reduce barriers to care, with an emphasis on non-English-speaking populations. Methods Patients were included if they (1) were in active cancer treatment and (2) had one or more known risk factors: distance from cancer hospital, needing complex care, 65 years or older, malignant hematological diagnosis, new treatment start, lives alone, non-English speaker, or a new hospital discharge . Nurse navigators triaged referrals to appropriate team members who identified and addressed barriers to care. Results The program engaged with 586 adult cancer patients over 1459 encounters. The most common risk factors included distance (59.7%), complex care (48.8%), and new treatment start (43.5%). The most common interventions were core education (69.4%), emotional support (61.2%), and education (35.7%). Statistical differences were found between Spanish-speaking ( n = 118) and non-Spanish-speaking patients ( n = 468). While Spanish-speaking patients had fewer risk factors (1.95 vs. 2.80, p ≤ .0001), they had nearly double the number of visits (4.27 vs. 2.04, p ≤ .0001) and 69% more interventions (8.26 vs. 4.90, p ≤ .0001). Many patients (42.7%) required follow-up visits. Conclusion We successfully established a new navigation model for the resource center during the pandemic that identified and reduced barriers to care, particularly in the Spanish-speaking population. Supplementary Information The online version contains supplementary material available at 10.1007/s00520-021-06147-3.

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Section: Methodsmentioning

confidence: 99%

A new proactive virtual resource center navigation model identifies patient risk factors to reduce barriers to cancer care during the COVID-19 pandemic

Bigelow

Hart

Shaban

et al. 2021

Support Care Cancer

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“…Medical and health scholarship on migrant experiences of cancer and cancer care has rarely used the language of “difference” (or similarity) between subjects. Rather, it has tended to place an emphasis on the status of the individual being cared for (or divergences in cultural or linguistic characteristics from the norm) (King et al, 2019; Mazza et al, 2019; Tan et al, 2018) instead of on specific relations of difference and their consequences between actors (see Broom, Kenny, et al, 2019; Broom, Parker, & Kenny, 2019; Kristiansen et al, 2010; Stone et al, 2019, for exceptions).…”

Section: Introductionmentioning

confidence: 99%

The (Co)Production of Difference in the Care of Patients With Cancer From Migrant Backgrounds

et al. 2020

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An extensive body of scholarship focuses on cultural diversity in health care, and this has resulted in a plethora of strategies to “manage” cultural difference. This work has often been patient-oriented (i.e., focused on the differences of the person being cared for), rather than relational in character. In this study, we aimed to explore how the difference was relational and coproduced in the accounts of cancer care professionals and patients with cancer who were from migrant backgrounds. Drawing on eight focus groups with 57 cancer care professionals and one-on-one interviews with 43 cancer patients from migrant backgrounds, we explore social relations, including intrusion and feelings of discomfort, moral logics of rights and obligation, and the practice of defaulting to difference. We argue, on the basis of these accounts, for the importance of approaching difference as relational and that this could lead to a more reflexive means for overcoming “differences” in therapeutic settings.

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“…All participating survivors in our study were English speaking. Non-English speaking cancer survivors are known to face additional barriers to care (eg, poor communication), 92 warranting further examination of their patterns of adherence in the future. It would also be valuable to compare adherence to healthcare recommendations provided through face-to-face clinic appointments with those provided through Re-engage’s remote delivery (including both written SCPs and telehealth).…”

Section: Discussionmentioning

confidence: 99%

Childhood Cancer Survivors’ Adherence to Healthcare Recommendations Made Through a Distance-Delivered Survivorship Program

Alchin¹,

Signorelli²,

McLoone³

et al. 2022

JMDH

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Purpose Ongoing survivorship care allows childhood cancer survivors the opportunity to address treatment-related health problems and improve their quality of life. However, many survivors do not adhere to their healthcare professionals’ recommendations and the factors supporting their adherence remain unclear. Patients and Methods Long-term childhood cancer survivors completed the “Re-engage” program, which assessed survivors’ heath needs and provided individualised recommendations for health interventions and surveillance developed by an expert multi-disciplinary team (MDT). We measured survivors’ recall of, and adherence to, their individualised healthcare recommendations at one and six months post-intervention. We conducted a series of univariate negative binomial regressions to investigate factors associated with the total number of recommendations that were correctly recalled and adhered to. Results We analysed the data of 25 childhood cancer survivors who participated in Re-engage (mean age = 31.9 years). On average, survivors were provided with 6.6 recommendations (range = 1–11). Survivors accurately recalled receiving 3.0 recommendations at one month post-intervention and 1.9 at six months. Survivors had adhered to an average of 1.3 recommendations by six-month follow-up. In total, 56% of participants reported that they did not adhere to any recommendations. By six-month follow-up, greater adherence to MDT recommendations was associated with having a history of a second cancer ( B = 1.391; 95% confidence interval [CI], 0.686 to 2.097; p < 0.001) and reporting a greater level of worry about late effects ( B = 1.381; 95% CI, 0.494 to 2.269; p = 0.002). Conclusion Survivors reported sub-optimal levels of adherence and demonstrated limited recall of their healthcare recommendations. Effective communication of recommendations and clear discussion of barriers limiting adherence, coupled with late effects education, may be critical to ensure that survivors engage with their recommendations, to improve their quality of life and health outcomes. Trial Registration Number ACTRN12618000194268.

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Perceptions of shared care among survivors of colorectal cancer from non-English-speaking and English-speaking backgrounds: a qualitative study

Cited by 16 publications

References 28 publications

A new proactive virtual resource center navigation model identifies patient risk factors to reduce barriers to cancer care during the COVID-19 pandemic

A new proactive virtual resource center navigation model identifies patient risk factors to reduce barriers to cancer care during the COVID-19 pandemic

The (Co)Production of Difference in the Care of Patients With Cancer From Migrant Backgrounds

Childhood Cancer Survivors’ Adherence to Healthcare Recommendations Made Through a Distance-Delivered Survivorship Program

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