Perceptions of self-rated health among stroke survivors: a qualitative study in the United Kingdom

Mavaddat, Nahal; Sadler, Euan; Lim, Lisa; Williams, Kate; Warburton, Elizabeth A.; Kinmonth, Ann Louise; Mant, Jonathan; Burt, Jenni; McKevitt, Christopher

doi:10.1186/s12877-018-0765-8

Cited by 28 publications

(40 citation statements)

References 53 publications

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“…Findings were in congruence with the existing literature on SRH (Larsen et al, 2016;Mavaddat et al, 2013Mavaddat et al, , 2018, where functional disabilities alone do not fully explain SRH. This study further extended the findings from a previous qualitative study on the perceptions of SRH in stroke survivors (Mavaddat et al, 2018) in illustrating how the social environment of the family and community facilitated the path to good SRH. The participants with good SRH, despite their functional disabilities managed to reconstruct their self-identity via valued activities which are contextually driven, especially in terms of pre-stroke roles.…”

Section: Discussionsupporting

confidence: 83%

“…In terms of SRH specifically, the severity of physical deficits in stroke survivors too did not explain fully the perception of poor health (Mavaddat et al, 2018). Studies specifically on stroke survivors and SRH do not take into account much of the personal, social and cultural identities of an individual (as hypothesised by Jylhä (2009) to be contributors of the cognitive processes that forms SRH).…”

Section: Introductionmentioning

confidence: 96%

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Interpretations of self-rated health in stroke survivors from a semi-rural community in South East Asia

Yap

Warren

Reidpath

et al. 2019

International Journal of Qualitative Studies on Health and Well

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Purpose: Stroke survivors report poorer self-rated health (SRH) compared to the general population but there is limited understanding on what contributes to SRH. This ethnographic study examined the individual and contextual factors that shape stroke survivors' SRH in a rural middle income country situated in South East Asia. Methods: Ethnographic methods which encompasses various data collection methods from different data sources were used in this study to describe the sociocultural context of 16 stroke survivors living in a rural village. Within this context, the experiences of these participants were then interpreted in terms of what contributed to their perception of health and recovery, juxtaposed with objectively measure physical and cognitive states. Results: SRH reflected the post stroke adjustment of stroke survivors. Better SRH was influenced by good poststroke adjustment that was achieved by a combination of physical functioning, cognitive functioning, emotional well-being and family support. Poorer SRH appear to reflect poor post-stroke adjustment regardless of the objective physical and cognitive states of the stroke survivors. It was also observed that cognitive deficits, though its presence was acknowledged by participants, were usually not taken into account when rating SRH. However, while physical functioning was perceived by participants to directly impact SRH, the presence of cognitive deficits (often in tandem with depressive symptoms) indirectly complicated the recovery of physical functions treasured by participants. Conclusion: Stroke survivors reporting poorer SRH warrant further attention and intervention from health practitioners supporting the longer-term needs of stroke survivors in similar settings.

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Section: Discussionsupporting

confidence: 83%

Section: Introductionmentioning

confidence: 96%

Interpretations of self-rated health in stroke survivors from a semi-rural community in South East Asia

Yap

Warren

Reidpath

et al. 2019

International Journal of Qualitative Studies on Health and Well

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“…Of these, 49% ( n = 25) included subjects from European countries [5, 21, 22, 30–49] and 27.5% ( n = 14) included subjects from North America [50–63]. The majority had a longitudinal design ( n = 30, 58.8%) [5, 22, 30–32, 34, 36–42, 46–48, 52, 56–58, 60, 61, 63–69]. Only three longitudinal studies (10%) [34, 62, 65] were randomized clinical trials, and one (3.3%) [66] was a quasi-experimental study.…”

Section: Resultsmentioning

confidence: 99%

“…Of the studies that reported the sex of the participants ( n = 32, 62.7%) [5, 21, 22, 31–36, 38–42, 44, 46–49, 52–54, 57–60, 65, 67, 68, 70, 71], 23 (71.8%) [5, 31–33, 35, 38, 40–42, 44, 46–49, 55, 57, 58, 60, 65, 67, 68, 70, 71] used a male-dominated sample. In the 23 studies (45%) that provided information on age [5, 21, 22, 32–34, 36, 38, 39, 41, 42, 44, 46, 48, 52, 55, 57–60, 65, 67, 68], the mean age of the participants ranged from 43 ± 14 [45] to 77 ± 7 years [54]. Stroke was predominantly ischemic and in a chronic phase in all studies that provided this information ( n = 12, 23.5%; Table 1) [31–33, 39, 40, 42, 47, 48, 55, 57, 67, 68].…”

Section: Resultsmentioning

confidence: 99%

Self-rated health after stroke: a systematic review of the literature

et al. 2019

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Background Self-rated health (SRH) allows for comparison and identification of the health status of various populations. The aim of this study was to conduct a systematic review of the literature to expand the understanding of SRH after stroke. Methods This systematic review was registered with PROSPERO (CRD42017056194) and conducted according to PRISMA guidelines. Studies published until December 2018 that evaluated the SRH of adults with stroke were included. Results Of the 2132 identified studies, 51 were included. Only four studies had experimental designs (7.8%). In 60.7% of the studies, SRH was assessed by variations on direct questions (i.e., general and comparative SRH). Analog visual scales and quality of life instruments were also used to evaluate SRH, but there is no consensus regarding whether they are appropriate for this purpose. The results of cross-sectional and longitudinal studies revealed significant associations between poor SRH and stroke as well as between SRH, function, and disability. The power of SRH to predict stroke mortality is still uncertain. Two interventions (a home-based psychoeducational program concerning stroke health care and family involvement in functional rehabilitation) effectively improved SRH. Conclusions Direct questions are the most common method of evaluating SRH after stroke. Studies reported significant associations between the SRH of individuals with stroke and several relevant health outcomes. However, few experimental studies have evaluated SRH after stroke. Interventions involving health education and family involvement had a significant impact on SRH.

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“…The percentage found in the acute phase of stroke in our study is higher than that in the other studies on breast cancer patients and chronic obstructive pulmonary disease patients ( 14 , 15 ). A previous study showed that stroke survivors' perceptions of self-rated health are multifactorial, comprising physical, psychological, and social components ( 16 ). The possible reason for the current finding is that many survivors in the acute phase remain physically or cognitively impaired, and the high incidence of disability and mortality might increase their SPB, especially physical burden.…”

Section: Discussionmentioning

confidence: 99%

Predictors and Changes of Self-Perceived Burden Among Stroke Survivors: A 3-Month Follow-Up Study

Wei

Ren

et al. 2020

Front. Neurol.

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Background and Purpose: Patients' self-perceived burden (SPB) is associated with distress, which has a potentially negative influence on disease rehabilitation and quality of life. Stroke represents a significant health and social burden. The aim of the study was to assess, compare, and identify predictors of SPB in stroke survivors during the first 3 months post-stroke. Methods: A prospective longitudinal study was used. Consecutive stroke inpatients were recruited from the neurology department of three general hospitals in Xi'an, China. Patients were surveyed using the Self-perceived Burden Scale (SPBS) on the fourth day of admission (Acute phase, Time 1, T1) and 1 month (Time 2, T2) and 3 months (Time 3, T3) post-stroke. Results: Considerable burden was experienced by 84.15–91.50% of patients in the first 3 months post-stroke. The mean score of physical burden was the highest. Over time, physical, emotional, and economic burden all declined. The following characteristics had significant association with increased patient SPB at T1, T2, and T3: age, self-evaluated economic pressure, comorbidity, and functional status ( P < 0.01). Patients' knowledge about stroke was only significantly associated with SPB at T3 ( P < 0.01). Conclusions: Patients experienced a high degree of SPB in the early stage after stroke. Addressing the characteristics and predicting factors as well as the development of a targeted intervention for SPB may improve survival and post-stroke disability.

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Perceptions of self-rated health among stroke survivors: a qualitative study in the United Kingdom

Cited by 28 publications

References 53 publications

Interpretations of self-rated health in stroke survivors from a semi-rural community in South East Asia

Interpretations of self-rated health in stroke survivors from a semi-rural community in South East Asia

Self-rated health after stroke: a systematic review of the literature

Predictors and Changes of Self-Perceived Burden Among Stroke Survivors: A 3-Month Follow-Up Study

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