Perceptions of Pediatricians‘ Helpfulness: A National Study of Mothers of Young Disabled Children

Abstract

SUMMARY A national sample of 503 mothers of young children (up to six years of age) with developmental disabilities was surveyed to determine the extent to which their family pediatricians are helpful in providing information and support. The respondents ranged from lower‐middle to upper class, with the mean SES reflective of middle socio‐economic status. Their children had a variety of disabilities that qualified them to receive early intervention services. The majority of the mothers found their pediatricians helpful about issues related directly to their child's medical condition. However, few found them helpful with issues relating to the effect of the disability on their child's development, or to their own personal or family needs. RÉSUMÉ Appréciation de l'assistance pédiatrique: étude nationale chez les mères de jeunes enfants handicapés Un échantillon national de 503 mères de jeunes enfants (âgés au plus de six ans) présentant un trouble du développement a étéétudié pour apprécier à quel point le pédiatre de famille peut fournir information et assistance. Ces mères avaient un statut économique et social allant du niveau basmoyen jusqu'au niveau supérieur avec prédominance de niveau moyen. Les enfants présentaient des troubles variés exigeant une intervention précoce de services. La majorité des mères reconnaissaient l'assistance des pédiatres concernant l'aspect médical direct de l'état de leurs enfants. Cependant, peu d'entre elles admettaient que le pédiatre les avait aidées à apprécier les conseq́uences des incapacités sur le développement de leurs enfants, ou les besoins personnels ou familiaux. ZUSAMMENFASSUNG Beurteilungen der Unterstützung durch den Pädiater: eine nationale Studie mit Müttern junger, behinderter Kinder Eine Gruppe von 503 Müttern von Kleinkindern (bis zum Alter von sechs Jahren) mit Entwicklungsstörungen wurde untersucht, um festzustellen wieviel Information und Unterstützung sie von ihren Kinderärzten bekommen. Die Mütter kamen aus der unteren Mittel‐bis Oberschicht, im Durchschnitt vertraten sie die mittlere sozio‐ökonomische Schicht. Ihre Kinder hatten verschiedene Störungen, wodurch sie frühe Betreuungsprogramme in Anspruch nehmen konnten. Die moisten Mütter fanden ihren Kinderarzt gut, was die direkte medizinische Situation ihres Kindes betraf. Wenige jedoch fanden ihren Kinderarzt hilfreich, wenn es um die Auswirkungen der Behinderung auf die Entwicklung ihres Kindes oder um ihre persönlichen oder familiären Bedürfnisse ging. RESUMEN Consideraciones acerca del papel de ayuda jugado por el pediatra: un estudio nacional en madres de niños con minusvalencias Se hizo el seguimiento de una muestra nacional de 503 madres de niños pequeños (hasta los seis años de edad) con minusvalencias del desarrollo, con el objeto de determinar hasta qué punto el pediatra de familia era (útil) para proporcionar información y ayuda. Las interesadas oscilaban entre la clase media baja y la clase alta, con un promedio de clase media. Sus hijos tenían diversos tipos de minusvalia que los hacia necesi...

Qualidade de vida de pacientes com artrogripose múltipla congênita após cirurgia e/ou reabilitação

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