Perceptions of patient participation amongst elderly patients with end‐stage renal disease in a dialysis unit

Aasen, Elin Margrethe; Kvangarsnes, Marit; Heggen, Kåre

doi:10.1111/j.1471-6712.2011.00904.x

Cited by 77 publications

(141 citation statements)

References 35 publications

Supporting

Mentioning

130

Contrasting

Unclassified

Order By: Relevance

“…When commencing hemodialysis, some participants struggled with feelings of vulnerability and their dependency on both dialysis treatment and caregivers (24,26,(28)(29)(30)(31)(32)(35)(36)(37)(38)(39)(40). The "assembly line" (26) nature of dialysis and lack of interest shown by staff could result in a loss of personal identity (24,26,28,35). Interference with earlier roles in society and social networks could also affect identity.…”

Section: Synthesismentioning

confidence: 99%

“…Additionally, patients have fluid and dietary restrictions to which they are expected to adhere. These restrictions were often cited as sources of distress and adversely affected quality of life (24,25,(28)(29)(30)(31)33,(35)(36)(37)39,40). Participants described weighing up adherence to these restrictions against effects on their quality of life (28,30,(35)(36)(37)39).…”

Section: Synthesismentioning

confidence: 99%

“…Some participants reported physical symptoms, such as fatigue and pain (24,25,(27)(28)(29)(30)(32)(33)(34)(35)(36)(37)39,40), or emotional symptoms, including depression, anger, and isolation (24,(27)(28)(29)(30)(32)(33)(34)(35)(36)(37)(38)(39)(40). Physical symptoms, such as fatigue, were seen to further restrict the opportunities to participate in desired activities (21,24,29,30,33) and had deleterious effects on mental wellbeing (23,24,29,33). Many symptoms were seen to result from or be exacerbated by dialysis, and some expressed anxiety about the deterioration in health that they experienced, despite ongoing dialysis treatment (30,31,35,39).…”

Section: Synthesismentioning

confidence: 99%

“…With time, participants developed their own knowledge and abilities, and this was seen as important for regaining control (26,(28)(29)(30)(31)34,36). For some, this knowledge came through testing boundaries set by health professionals (24,26,27), whereas others reported that professionals facilitated their knowledge acquisition (30,33). Participants stressed the importance of their expertise being acknowledged by professionals to allow shared decision making (24,(26)(27)(28)32,34,(38)(39)(40).…”

Section: Synthesismentioning

confidence: 99%

See 3 more Smart Citations

A Thematic Synthesis of the Experiences of Adults Living with Hemodialysis

Reid

Seymour

Jones

2016

CJASN

View full text Add to dashboard Cite

Background and objectives Patients on in-center dialysis spend significant amounts of time in the dialysis unit; additionally, managing ESRD affects many aspects of life outside the dialysis unit. To improve the care provided to patients requiring hemodialysis, their experiences and beliefs regarding treatment must be understood. This systematic review aimed to synthesize the experiences of patients receiving in-center hemodialysis.Design, setting, participants, & measurements We searched Embase, MEDLINE, CINAHL, PsychINFO, Google Scholar, and reference lists for primary qualitative studies published from 1995 to 2015 that explored the experiences of adult patients receiving treatment with in-center hemodialysis. A thematic synthesis was conducted.Results Seventeen studies involving 576 patients were included in the synthesis. Four analytic themes were developed. The first theme (a new dialysis-dependent self) describes the changes in identity and perceptions of self that could result from dialysis dependence. The second theme (a restricted life) describes the physical and emotional constraints that patients described as a consequence of their dependence. Some patients reported strategies that allowed them to regain a sense of optimism and influence over the future, and these contributed to the third theme (regaining control). The first three themes describe a potential for change through acceptance, adaption, and regaining a sense of control. The final theme (relationships with health professionals) describes the importance of these relationships for in-center patients and their influence on perceptions of power and support. These relationships are seen to influence the other three themes through information sharing, continuity, and personalized support.Conclusions Our synthesis has resulted in a framework that can be used to consider interventions to improve patients' experiences of in-center hemodialysis care. Focusing on interventions that are incorporated into the established relationships that patients have with their health care professionals may enable patients to progress toward a sense of control and improve satisfaction with care.

show abstract

Section: Synthesismentioning

confidence: 99%

Section: Synthesismentioning

confidence: 99%

Section: Synthesismentioning

confidence: 99%

Section: Synthesismentioning

confidence: 99%

See 2 more Smart Citations

A Thematic Synthesis of the Experiences of Adults Living with Hemodialysis

Reid

Seymour

Jones

2016

CJASN

View full text Add to dashboard Cite

show abstract

“…Tanto pacientes como familiares dedican bastante tiempo a buscar información que les ayude a hacer llevadero el proceso; describen como fuentes: el equipo de salud (34,(70)(71)(72), internet, amigos cercanos, otros pacientes (73, 74) y, quizás la más relevante, el aprendizaje a partir de la propia experiencia (70,75). La comprensión de la enfermedad y el tratamiento emerge del tejido de discursos y concepciones (76,77), por un lado, la incorporación de lo biomédico al lenguaje propio y por otro, las explicaciones relacionadas con el contexto y la cultura (63,64,78). Con este tejido discursivo las personas fabrican autointerpretaciones y explicaciones sobre la enfermedad y el cuidado, facilitando el afrontamiento (27) y la adherencia (44,79).…”

Section: Temáticas Sintetizadasunclassified

Terapias de sustitución de la función Renal: Metaestudio y síntesis de evidencias cualitativas

et al. 2017

View full text Add to dashboard Cite

El objetivo del presente estudio fue sintetizar en términos de evidencias cualitativas o evidencias Q hallazgos derivados de estudios cualitativos frente al tema de las terapias de sustitución de la función renal (TSFR). Método: metaestudio cualitativo desarrollado en cuatro momentos. Resultados: se integraron 75 estudios. De los cuales, 52 exploraban experiencias relacionadas con hemodiálisis (HD), 10 de diálisis peritoneal (DP), 6 trasplante, 6 DP y HD al mismo tiempo y 1 estudio exploró las 3 TSFR. Los estudios incluidos describen y representan el fenómeno de vivir en una condición de cronicidad y estar sometido a una TSFR de manera muy semejante, que se agruparon en patrones comunes del fenómeno, estos son descritos en tres grandes temáticas: la metamorfosis de la vida; dolores diversos y la terapia invade la vida. Conclusión: los resultados dan cuenta de la estrecha interrelación de las dimensiones humanas, por esto el fenómeno de vivir en una TSFR genera una transfiguración el “Ser”, como totalidad, pues no es posible desligar una dimensión de otra, de allí la importancia de pensar la atención de las necesidades en perspectiva relacional y no jerarquizada.

show abstract

Patient participation in the clinical pathway—Nurses’ perceptions of adults’ involvement in haemodialysis

et al. 2019

Self Cite

View full text Add to dashboard Cite

Aim To develop knowledge of nurses’ perceptions of participation for patients treated with haemodialysis and their next of kin. Design A qualitative study with a hermeneutic approach. Methods The data were collected in 2015 through focus groups with 13 nurses in Central Norway. Results The nurses reported that patient participation ranging from non‐involvement to shared decision‐making was related to whether dialysis was initiated as acute or scheduled. The restrictions required in chronic haemodialysis limited participation. The next of kin were not involved. The nurses highlighted interventions on both the individual and system levels to strengthen participation. Conclusion Dialysis units should develop strategies for participation related to individual needs and design treatment in cooperation with patients and their families, ensuring involvement early in the clinical pathway. Further research is needed on issues related to next of kin, including their desired level of involvement.

show abstract

Perceptions of patient participation amongst elderly patients with end‐stage renal disease in a dialysis unit

Cited by 77 publications

References 35 publications

A Thematic Synthesis of the Experiences of Adults Living with Hemodialysis

A Thematic Synthesis of the Experiences of Adults Living with Hemodialysis

Terapias de sustitución de la función Renal: Metaestudio y síntesis de evidencias cualitativas

Patient participation in the clinical pathway—Nurses’ perceptions of adults’ involvement in haemodialysis

Contact Info

Product

Resources

About