Perceptions of parents and children regarding asthma management responsibilities

Ekim, RN Ayfer; Ocakci, RN Ayse Ferda

doi:10.1111/jspn.12037

Cited by 12 publications

(12 citation statements)

References 31 publications

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“…These findings are consistent with international studies, indicating that school-age children aged ≥8 years can develop asthma self-management skills [10,13,16,22]. This ability to take responsibility for asthma management is likely to result from developmental changes.…”

Section: Discussionsupporting

confidence: 89%

“…This study follows that theory because it shows that managing asthma requires family support. Between the ages of 7 and 12, the role of parents must be transitioned from controlling guardians to gentle supporters [13]. Findings from this study indicated that family support encouraged children's active engagement with self-management behaviors through teaching them about the use of inhalers, as well as supervising them to be responsible for their own medicine management.…”

Section: Discussionmentioning

confidence: 93%

“…According to Piaget's cognitive development theory, school-age children (age 7-12 years old) have logical thoughts that allow them to plan, solve problems and make decisions and understand the reasons for adhering to medical regimens [12]. As a result, this age is vital for mastering self-management of any chronic conditions, including asthma [10,13].…”

Section: Introductionmentioning

confidence: 99%

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Perspectives on managing asthma and facilitators in asthma self-management among Thai school-age children: a qualitative study

Sangnimitchaikul

Srisatidnarakul

Ladores

2020

JHR

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PurposeThis study explored self-management in the context of asthma experiences of school-age children and the factors that facilitate asthma self-management.Design/methodology/approachThis is qualitative research used in-depth interviews. Purposive sampling was employed to select 15 school-age children with asthma attending the outpatient pulmonary department at university hospital in Thailand. Semistructured in-depth individual interviews were conducted. which were audiotaped and transcribed verbatim. Content analysis was used to analyze the data.FindingsTwo major themes emerged from this study: (1) perspectives on managing asthma and (2) facilitators in asthma self-management. Four subthemes emerged from the first major theme related to views on managing asthma: (1) emphasizing use of an inhaler for asthma, (2) self-monitoring for symptom, (3) difficulties with the daily regimens and (4) family support on asthma self-management. Two subthemes emerged from the second major theme related to facilitators in asthma self-management: (1) confidence in performing asthma care behaviors and (2) asthma communication.Originality/valueThis study described strategies that support asthma management of children in Thailand and provided insight into factors that influence asthma self-management. Findings will inform the development of future self-management interventions for school-age children with asthma.

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Section: Discussionsupporting

confidence: 89%

Section: Discussionmentioning

confidence: 93%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Perspectives on managing asthma and facilitators in asthma self-management among Thai school-age children: a qualitative study

Sangnimitchaikul

Srisatidnarakul

Ladores

2020

JHR

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“…12 13 The answer to this problem lies in shared asthma management by the parent-child dyad, 12 13 with the school-age years the ideal developmental period for children to begin sharing responsibility with their parents and establishing lifelong health behaviours. [22][23][24][25] Using a Human-Centred Design framework, we collaborated with parent-child dyads to codesign Improving Asthma Care Together (IMPACT), a tailored shared management mobile health (mHealth) application that pairs the parent and child together as a shared management team. 26 27 IMPACT aims to help families tailor asthma management strategies to fit the realities of their social environments while facilitating intentional transition of asthma management to the child.…”

Section: Strengths and Limitations Of This Studymentioning

confidence: 99%

Improving Asthma Care Together (IMPACT) mobile health intervention for school-age children with asthma and their parents: a pilot randomised controlled trial study protocol

et al. 2022

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IntroductionAsthma is an incurable, lifelong condition that places children at increased risk for exacerbation, hospitalisation and school absences. Most paediatric asthma interventions target parents alone and are overly prescriptive. Improving Asthma Care Together (IMPACT) is a novel shared management system comprised of a mobile health (mHealth) application, symptom watch and tailored health intervention that pairs parent and child together as an asthma management team. IMPACT helps families monitor asthma status, tailor asthma management strategies and facilitate intentional transition of asthma management to the child. The purpose of this study is to determine the feasibility, acceptability and preliminary efficacy of the IMPACT intervention.Methods and analysisThis pilot randomised controlled trial will recruit 60 children with asthma (7–11 years) and one parent. All parent–child dyads will complete data collection sessions at baseline, postintervention and follow-up. Dyads randomised to the intervention group (IMPACT) will complete the 8-week intervention comprised of weekly activities including symptom monitoring, goal setting and progress monitoring. Dyads randomised to the control group will receive usual care but then be provided access to IMPACT at the end of the study. Feasibility will be measured by the proportion of eligible dyads enrolled and retained. Acceptability of IMPACT will be assessed using the Acceptability of Intervention Measure, the System Usability Scale and a semistructured interview. Preliminary efficacy is determined based on change in primary outcomes, parent-reported and child-reported asthma responsibility and asthma self-efficacy scores, from baseline.Ethics and disseminationThis study has been approved by the University of Washington Institutional Review Board; study ID: STUDY00010461. Participants gave informed consent to participate in the study before taking part. Study results will be disseminated in peer-reviewed journals and scientific conferences. A lay summary will be provided to study participants.Trial registration numberNCT04908384 (ClinicalTrials.gov identifier).

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“…If the elementary student self-carried, the nurses still wanted to be included, informed, and able to assess the student after each inhaler use, professedly for documentation and assessment purposes. This finding was supported by Ekim and Ocakci's (2013) study recommending that nurses continue to supervise and be involved in a child's care even as children increase their own self-care. Elementary school nurses believed that students who managed their asthma and self-carried had increased exacerbations and 9-1-1 calls due to overmedicating, pushing themselves, or forgotten medications.…”

Section: Manipulationmentioning

confidence: 79%

School Nurse Perceptions and Decisions about Children Self-Carrying Inhalers in School

Jaurigue¹,

Anne²

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Every state in the United States has passed legislation allowing students to selfcarry rescue inhalers in the school setting. Many organizations are stakeholders in respiratory issues, school health issues, and pediatric issues, recommending the support of this practice. Students' ability to self-carrying rescue inhalers in the school setting has been impacted by school nurse perceptions and decision-making. This study addressed the questions: (a) What are school nurse perceptions and attitudes in regard to children self-carrying inhalers in the school setting? (b) How do school nurses decide whether children can self-carry inhalers in the school setting? and, (c) Are school districts and school nurses aware of the laws and guidelines regarding children self-carrying inhalers in the school setting? In this grounded theory study, 20 elementary and high school nurse participants were interviewed. The taped interviews were transcribed and analyzed utilizing grounded theory methods. The data were categorized into a conditional matrix that addressed context, conditions, actions, and consequences. From this analysis, a substantive theory was developed, "Balancing decisions about the self-carry practice: Powerful influences." Various factors weighed on the nurses' decision-making, such as laws, policies, school characteristics, student characteristics, trust, knowledge deficits, teachers, safety nets, control, nursing philosophy, internal policies, praxis, and assessments of students. The consequences included elementary school nurses manipulating the situation and micromanaging; and high school nurses manipulating the situation, letting it go, and fostering independence and empowerment. Elementary school nurses neither encouraged nor facilitated the self-carrying of rescue inhalers unless the parent was adamant about the need to self-carry. Conversely, high school nurses iii encouraged and facilitated the self-carry practice. These findings have implications for nursing practice, nursing science, and policy development that could enhance self-carry practices. Based on these implications, future study could address many areas of limited research, such as manipulation of the self-carry situation, appropriate practices to support or prepare students for the self-carry practice, legislative evaluation, and outcomes with students who self-carry. iv

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Perceptions of parents and children regarding asthma management responsibilities

Abstract: It is important that nurses provide education and counseling to both children and their families to ensure that children take responsibility for disease management.

Cited by 12 publications

References 31 publications

Perspectives on managing asthma and facilitators in asthma self-management among Thai school-age children: a qualitative study

Perspectives on managing asthma and facilitators in asthma self-management among Thai school-age children: a qualitative study

Improving Asthma Care Together (IMPACT) mobile health intervention for school-age children with asthma and their parents: a pilot randomised controlled trial study protocol

School Nurse Perceptions and Decisions about Children Self-Carrying Inhalers in School

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