Perceptions of Health Care, Information, and Social Support Among Women Affected by Zika Virus Infection During Pregnancy in Two U.S. States

Abstract

Objectives To understand the information needs and experiences with health care and social support among women with confirmed or possible Zika virus infection during pregnancy. Methods We conducted in-depth interviews with 18 women whose pregnancies were part of surveillance efforts in two states, Pennsylvania and Virginia. Using a semi-structured guide available in English and Spanish, we asked women about their experiences. We conducted a thematic analysis using NVivo 11. Results Only one participant reported that her infant had been diagnosed with health problems related to congenital Zika virus infection. Most participants said they received the information they needed about Zika virus and their infant's medical care. Most participants primarily spoke Spanish and described satisfactory experiences communicating with providers, either using a mix of Spanish and English or using an interpreter. Coordination of care and clear communication among different providers was a key factor in participants' satisfaction with health care received. Participants noted high levels of stress around the uncertainty associated with Zika virus exposure during pregnancy. Conclusions for Practice Although participants reported satisfaction with care, they also reported high levels of anxiety and challenges coping with the uncertainties along their journeys. Study findings support the need for guidance for providers about how to talk with women about Zika virus infection during pregnancy and specifically how to discuss the uncertainties about diagnosis and outcomes.

Musculoskeletal pain and quality of life in mothers of children with microcephaly, due to congenital Zika virus syndrome

“…The above reports of mothers corroborate the findings of other investigations, which believe that such mothers may be a vulnerable group to develop mental health problems, such as depression, stress and anxiety (Kuper et al, 2019;Ornelas Pereira et al, 2020;Santos, Tavares, et al, 2021;Squiers et al, 2021). Such symptoms may be related to these mothers' uncertainties and challenges regarding their children, their journeys, a worse perception of personal competence, triggering psychological distress and worse quality of life in mothers of children with microcephaly (Santos, Tavares, et al, 2021;Squiers et al, 2021), as we found in this study.…”