Perceptions of family caregivers of persons with Alzheimer's disease: Communication with physicians

Beisecker, Analee E.; Chrisman, Susan Kasal; Wright, Linda J.

doi:10.1177/153331759701200205

Cited by 30 publications

(30 citation statements)

References 15 publications

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“…Fifth, the more impaired the older patient, the more protective the third party is of the patient (Hasselkus, 1994). Sixth, physician-patient-family caregiver interaction during office visits change over time to the point where all communication occurs between physicians and family caregivers (Beisecker et al, 1997). Finally, older patients regard the third person as an asset during medical encounters, as well as before and after physician visits; in terms of helping them make important medical decisions (Prohaska & Glasser, 1996).…”

Section: Addition Of the "Third Person" In Older Patient-physician Enmentioning

confidence: 96%

“…The "triadic encounter" is organized into domains that represent the purposes of the encounter, with specific reference to dementia care issues shown in the literature to be important to family caregivers (Beisecker et al, 1997;Fortinsky & Hathaway, 1990;Glasser and Miller, 1998;Malone Beach et al, 1992;Silliman, 2000). These domains include: diagnosis of dementia-related symptoms; non-pharmacological dementia symptom management before and after diagnosis; medication management for dementia symptoms and co-morbidities; community support service linkage; and emotional support to family caregivers.…”

Section: Presentation Of the Modelmentioning

confidence: 99%

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Health care triads and dementia care: integrative framework and future directions

Fortinsky

2001

Aging Mental Hlth

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Physicians are usually the first contact in the health care system for persons with dementia and their family caregivers. This paper provides a synopsis of research findings and knowledge gaps regarding interactions among these participants in the health care triad--primary care physicians, family caregivers, and persons with dementia. Research traditions that inform knowledge about health care triads and dementia care include: older patient-physician relationships; the stress-coping social-support health model that dominates family caregiver research; the social learning-self-efficacy model; and literature on the quality of medical care. An integrative framework is presented to illustrate how the quality of interaction in dementia care encounters may be influenced by specific characteristics of members of the health care triad. Domains of dementia care interaction include symptom diagnosis, symptom management, medication management, support service linkage, and emotional support. The integrative framework also links the quality of interaction in these domains with health-related outcomes relevant to each of the health care triad members. Most empirical research in this area has found that family caregivers are dissatisfied with many aspects of physicians' dementia care, but measurement techniques vary widely and little is known about how the quality of physician care is associated with health-related outcomes. Physician surveys have shown that they are least certain about the quality of support service linkage advice they provide. Virtually no research has examined how the person with dementia experiences medical care encounters with physicians and their family members. Much remains to be learned about the longitudinal experience of each member of the health care triad, and how the quality of dementia care encounters changes over the course of the disease process. In this era of rapidly expanding educational and support service interventions for persons with dementia and their family caregivers, as well as computer-based information about dementia care, the influence of these external factors on health care triad interactions and outcomes also remains to be studied.

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Section: Addition Of the "Third Person" In Older Patient-physician Enmentioning

confidence: 96%

Section: Presentation Of the Modelmentioning

confidence: 99%

Health care triads and dementia care: integrative framework and future directions

Fortinsky

2001

Aging Mental Hlth

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“…Most of the included studies presented only qualitative data, but a few studies reported both qualitative and quantitative data. 25,26,55 Most studies were conducted in the United Kingdom, United States, Canada or Australia. The total sample size of the studies was 1866, with a mean sample size of 41 participants.…”

Section: Selection Of Studiesmentioning

confidence: 99%

Health care experiences of people with dementia and their caregivers: a meta-ethnographic analysis of qualitative studies

Prorok

Horgan

Seitz

2013

CMAJ

127

125

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T he global prevalence of Alzheimer disease and related dementias is estimated to be 36 million people and is expected to double in the next 20 years.1 Several recent strategies for providing care to patients with dementia have highlighted the importance of coordinated health care services for this growing population. [2][3][4][5] Gaps in the quality of care for people with dementia have been identified, [6][7][8] and improving their quality of care and health care experience has been identified as a priority area. [2][3][4][5] Incorporating the health care experience of patients and caregivers in health service planning is important to ensure that their needs are met and that person-centred care is provided. 9The health care experience of people with dementia and their caregivers provides valuable information about preferences for services and service delivery. 10 Matching available services to patient treatment preferences leads to improved patient outcomes 11,12 and satisfaction without increasing costs. 13 Qualitative research is ideally suited to exploring the experiences and perspectives of patients and caregivers and has been used to examine these experiences for other conditions.14 We performed a systematic review and meta-ethnographic synthesis of qualitative studies exploring the health care experience of people with dementia and their caregivers in primary care settings, and we propose a conceptual framework for understanding and improving these health care experiences. Methods Literature search

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confidence: 99%

“…The majority (70.2%) of the caregivers are female and are either wives (61.5%) or daughters (36.6%) of the person with AD. The median age of caregivers is 63.6 years and the median education is 14 years (Beisecker, Chrisman and Wright, 1997).The emotional burden on caregivers can be tremendous as they struggle to cope with the variety of AD symptoms. Although there is a large amount of information available on AD, it does not reach many of the caregivers that could benefit from it.…”

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confidence: 99%

The Use and Effectiveness of Caregiver Interventions for Alzheimer's Patients

Swim

Shehab

2000

Proceedings of the Human Factors and Ergonomics Society Annual

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BACKGROUND AD is a progressive brain disorder that results in memory loss, unusual behavior, personality changes, and a decline in cognitive abilities. The disease progression varies significantly from person to person. Typically, AD patients live for 4 to 8 years after diagnosis; however, the disease can continue for up to 20 years (National Institute on Aging, 1997). Currently, AD is irreversible.Untrained caregivers (e.g., spouses, relatives, and friends) form the backbone of the informal system of longterm care for AD patients. The majority (70.2%) of the caregivers are female and are either wives (61.5%) or daughters (36.6%) of the person with AD. The median age of caregivers is 63.6 years and the median education is 14 years (Beisecker, Chrisman and Wright, 1997).The emotional burden on caregivers can be tremendous as they struggle to cope with the variety of AD symptoms. Although there is a large amount of information available on AD, it does not reach many of the caregivers that could benefit from it. The information is not readily available nor is it easy to use. METHODOLOGY The research objective was to identify caregiver intervention strategies that are used to increase the quality of life for both AD patients and their caregivers. A survey was developed to use in interviewing AD caregivers. The survey str~chxe was guided by a set of intervention strategies developed in part from Taft's (1995) taxonomy of caregiving approaches, which incorporates seven domains: social, psychological, functional, behavioral, environmental, medical, and cognitive. The purpose of the survey was to determine the frequency of use and effectiveness of intervention strategies proposed by Taft (1995) and other strategies identified in the literature. Four AD caregivers were interviewed regarding intervention strategies and their effectiveness. The interviews were conducted by telephone and took approximately 1 hour each. RESULTS The results of the suwzy were summarized in a comprehensive list of the specific interventions used by the caregivers with usage and effectiveness ratings for each intervention approach. Strategies used by all caregivers included relating, empathetic caring, supportive touch, being responsive, and helping to remember. The individual interwntions that were rated the most effective (with an average rating of 5.0, 5 = very effective) were relating (social),

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Perceptions of family caregivers of persons with Alzheimer's disease: Communication with physicians

Cited by 30 publications

References 15 publications

Health care triads and dementia care: integrative framework and future directions

Health care triads and dementia care: integrative framework and future directions

Health care experiences of people with dementia and their caregivers: a meta-ethnographic analysis of qualitative studies

The Use and Effectiveness of Caregiver Interventions for Alzheimer's Patients

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