Perceptions of disability among mothers of children with disability in Bangladesh: Implications for rehabilitation service delivery

Abstract

Understanding mothers' perceptions of disability and treatment, and the myriad of factors that influence those perceptions, provides valuable knowledge to assist in planning and delivery of family centered rehabilitation services for CWD. Rehabilitation has a central role to play in assisting mothers' understanding of the nature of their children's disabilities and how they can be managed. Ultimately, such an understanding may translate into improved social and educational opportunities for CWD.

‘All is done by Allah’. Understandings of Down syndrome and prenatal testing in Pakistan

“…Participants in Account 2 expressed the view that Allah sent such children as a trial so that parents might learn forbearance and acceptance of God"s will through difficulty and sorrow. Studies conducted with South Asian families living in the UK have identified similar theological explanations of the birth of disabled children (Croot, Grant, Cooper, & Mathers, 2008;Maloni et al, 2010). Participants who expressed unfavourable attitudes towards prenatal testing and abortion framed their response within theological discourses while those with favourable attitudes employed discourses of emotional, financial and (particularly) social burden.…”

“…In these countries, prenatal screening has also become part of routine antenatal care and the argument that such screening leads to the devaluing of people with DS has also entered into social debate (Edwards, 2004). There has been little equivalent work in countries where the economic situation may lead the support of people with DS to be of low priority and the rights of those with learning disabilities to be less well defined and debated (Maloni, Despres, Habbous, Primmer, Slatten, Gibson et al, 2010;Miles, 1998). The literature commonly characterizes life for people with a learning disability in developing countries as one defined by rejection and suffering, and for their families as one defined by burden (Ghai, 2001).…”

Communication Disability in Fiji: Community Cultural Beliefs and Attitudes

“…The current research extended the survey by adapting concepts from Maloni et al (2010) and Marshall (1997). A pilot study of the survey in Fiji revealed good content validity despite the questions having originated in other parts of the world (e.g., Africa).…”

“…Beliefs and attitudes are informed by language, culture, and personal experience and are 'learned, global evaluations of an object (person, place, or issue) that influences thought and action' (Perloff, 2008). Research in international communities has revealed that the attitudes of people without disability towards people with disability influences the level of participation a person with disability has in society, and ultimately the level of handicap people with disability experience as a consequence of their disability (e.g., Haines-Wangda, 1996;Maloni et al, 2010;Thompson et al, 2011;Sanchez and Wood, 2016).…”

The impact of information and communication technology (ICT) on the lives of disabilities: a case in Bangladesh

“…The problems such as provision of adequate health service, education, social security service, and employment are seen regularly, besides the incidence of frequent natural disasters, particularly flood and cyclone. Various studies indicate that approximately 10% of the country's populace (around 16 million people) suffers from disabilities of any type, where 85% of them are children who are the most vulnerable [39].…”