Perceptions of dementia amongst the general public across Latin America: a systematic review

Farina, Nicolas; Suemoto, Cláudia Kimie; Burton, Jennifer; Oliveira, Déborah; Frost, Rachael

doi:10.1080/13607863.2020.1725738

Cited by 18 publications

(27 citation statements)

References 49 publications

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“…Awareness and Stigma ( Priority Rating: 23.7%, Time window: next 0‐5 years ). Low awareness and stigma have proved a barrier to early characterization of dementia 1,25,26,70–72 . Both factors are pervasive in LACs 73 .…”

Section: Knowledge Creationmentioning

confidence: 99%

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Dementia in Latin America: Paving the way toward a regional action plan

Parra¹,

Báez²,

Sedeño³

et al. 2020

Alzheimer's & Dementia

121

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Across Latin American and Caribbean countries (LACs), the fight against dementia faces pressing challenges, such as heterogeneity, diversity, political instability, and socioeconomic disparities. These can be addressed more effectively in a collaborative setting that fosters open exchange of knowledge. In this work, the Latin American and Caribbean Consortium on Dementia (LAC‐CD) proposes an agenda for integration to deliver a Knowledge to Action Framework (KtAF). First, we summarize evidence‐based strategies (epidemiology, genetics, biomarkers, clinical trials, nonpharmacological interventions, networking, and translational research) and align them to current global strategies to translate regional knowledge into transformative actions. Then we characterize key sources of complexity (genetic isolates, admixture in populations, environmental factors, and barriers to effective interventions), map them to the above challenges, and provide the basic mosaics of knowledge toward a KtAF. Finally, we describe strategies supporting the knowledge creation stage that underpins the translational impact of KtAF.

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Section: Knowledge Creationmentioning

confidence: 99%

“…1,25,26,[70][71][72] Both factors are pervasive in LACs. 73 Senior Latinos find it difficult to talk about cognitive evaluation because discussing cognitive and mental health is considered a taboo. 74 Messages used to promote awareness are often found to be vague and produce feelings of guilt.…”

Section: Epidemiological and Genetic Studiesmentioning

confidence: 99%

Dementia in Latin America: Paving the way toward a regional action plan

Parra¹,

Báez²,

Sedeño³

et al. 2020

Alzheimer's & Dementia

121

View full text Add to dashboard Cite

show abstract

“…Moreover, high levels of stigma and discrimination towards psychiatrists and patients with dementia and other types of mental and neurological conditions (Gaebel et al, 2015;Ndetei, Ngumi, Zipporah, Mutiso, Musyimi, & Kamau, 2013) may also contribute to uncoordinated pathways to dementia care. These low levels of resources and negative perceptions can have profound effects on the person with dementia and their carers leading to depression, social isolation, loneliness, diminished quality of care and reduced health-care seeking (Farina, Suemoto, Burton, Oliveira, & Frost, 2020;Tan, Yeo, Koh, Wong, & Lee, 2020). "…”

Section: Introductionmentioning

confidence: 99%

Perceptions and experiences of dementia and its care in rural Kenya

et al. 2021

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Objectives We aimed to explore the perceptions towards dementia and related care across three stakeholder groups in rural Kenya. Methods A total of 38 key stakeholders (carers of persons with dementia, health care providers and the general public) participated in focus group discussions. Additional five individual interviews were held with carers. Thematic analysis was used to analyse the data. Findings Across the three participant groups, a total of four themes were identified: (i) negative stereotypes of dementia, (ii) limited knowledge about dementia, (iii) diagnostic pathway and (iv) neglect and abuse. Conclusions We found a general lack of knowledge of dementia amongst family carers, healthcare professionals and the general public. The combination of poor awareness and ill-equipped healthcare systems leads to stigma manifested in the form of patchy diagnostic pathways, neglect and abuse. Local governments could take advantage of the existing family- and community-based systems to improve understanding of dementia nationally.

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“…Although information about cognitive impairment has been widely disseminated through numerous awareness campaigns and educational programs, several studies have revealed different gaps in the public's knowledge regarding dementia and AD [3][4][5][6]. Adequate AD knowledge throughout society could lead to earlier identification of this disorder in the population, which would result in earlier appropriate healthcare for people with dementia and would decrease the stigma associated with AD [3].…”

Section: Introductionmentioning

confidence: 99%

Quantifying Knowledge of Alzheimer’s Disease: An Analysis of the Psychometric Properties of the Alzheimer’s Disease Knowledge Scale

et al. 2021

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Introduction: The Alzheimer's Disease Knowledge Scale (ADKS) is one of the most popular instruments for assessing a person's knowledge regarding Alzheimer's disease (AD). The objective of this study was to explore ADKS item characteristics with item response theory (IRT) procedures. Methods: A noninterventional web-based study was conducted. A nonparametric IRT procedure, Mokken analysis, was used to explore the underlying latent structure of the ADKS and ADKS item characteristics regarding scalability and violations of the monotone homogeneity (MH) model. A random-effects meta-analysis was implemented that combined ADKS scores from independent studies.

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Perceptions of dementia amongst the general public across Latin America: a systematic review

Abstract: Perceptions of dementia amongst the general public across Latin America: a systematic review. Aging and Mental Health. pp. 1-10.

Cited by 18 publications

References 49 publications

Dementia in Latin America: Paving the way toward a regional action plan

Dementia in Latin America: Paving the way toward a regional action plan

Perceptions and experiences of dementia and its care in rural Kenya

Quantifying Knowledge of Alzheimer’s Disease: An Analysis of the Psychometric Properties of the Alzheimer’s Disease Knowledge Scale

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