Perceptions of burden among family caregivers of post-stroke elderly in Japan

Morimoto, Tadatsugu; Schreiner, A.; Asano, Hitoshi

doi:10.1097/00004356-200109000-00007

Cited by 12 publications

(18 citation statements)

References 12 publications

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“…The presence of more women as caregivers agrees with findings in other studies (Bugge et al 1999;Morimoto et al 2003;McCullagh et al 2005). This agrees with Almberg et al (1998)'s statement that female relatives are often more heavily involved in caregiving activities than male relatives.…”

Section: Patient and Caregiver Demographic Factorssupporting

confidence: 91%

“…The patient and caregiver mean ages are lower than those which have been reported elsewhere. Jönsson et al (2005) reported mean caregiver age to be 65 years and mean patient age to be 74 years while Morimoto et al (2003) reported mean caregiver age to be 60 years and the mean patient age to be 69 years. The finding of a younger mean age for stroke implies that stroke occurs at a younger age in this cohort of patients compared to findings from the developed world.…”

Section: Patient and Caregiver Demographic Factorsmentioning

confidence: 99%

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Caregiver strain and quality of life 6 - 36 Months post stroke

Hilton

Mudzi

Ntsiea

et al. 2013

South African Journal of Physiotherapy

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Section: Patient and Caregiver Demographic Factorssupporting

confidence: 91%

Section: Patient and Caregiver Demographic Factorsmentioning

confidence: 99%

Caregiver strain and quality of life 6 - 36 Months post stroke

Hilton

Mudzi

Ntsiea

et al. 2013

South African Journal of Physiotherapy

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“…It also enables the identification of unmet needs to be addressed to prevent the social environment from deteriorating (e.g. burden (23,24), depression (25,26) and change in participation (2)) and ensure its long-term viability given the increasing life expectancy after stroke (27).…”

Section: Variations In Actual Services Received and Factors Perceivedmentioning

confidence: 99%

Actual and ideal services in acute care and rehabilitation for relatives post-stroke from three perspectives: Relatives, stroke clients and health professionals

Rochette¹,

Racine²,

Lefebvre³

et al. 2014

J Rehabil Med

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Objective: To document the gap between actual and desired ideal services for relatives post-stroke from 3 perspectives: relatives, stroke clients and health professionals. Methods: A two-phase qualitative design and consisting of in-depth interviews (Phase 1) and 3 focus groups (Phase 2). The interview sample consisted of 25 relatives (mean age 53.4 (standard deviation 12.7); women = 21/25) and 16 individuals with a first stroke (mean age = 55.7 (standard deviation 11.2); women = 7/16). The focus group sample size varied from 5 to 7 participants. An interview guide validated by experts was used. Audio content was transcribed verbatim and rigorously analyzed by two team members. Results: Services received by relatives are diversified, and relatives' perceptions range from receiving no services to being satisfied with services received. Even when participants were satisfied, ideal services were still desired: they would have liked to receive services earlier and without having to seek. Four main factors emerged as influencing the amount and quality of services received, including the individual's ability to seek. Conclusions: A gap remains between actual and ideal services for relatives post-stroke. It is crucial to legitimized relatives' role as clients and to systematically assess the patient's social environment in order to provide services in accordance with needs.

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“…One suggestion has been that 'physiotherapists need to develop strategies whereby patients and caregivers take full responsibility for the bulk of therapy -for instance, training of balance, strength and endurance, repetition of simple tasks, group therapy, fitness-related training and family involvement' (De Weerdt and Feys, 2002). This sentiment has been re-iterated by several other authors (Morimoto et al, 2001;Jullamate et al, 2006Jullamate et al, , 2007.…”

Section: Duration Of Physiotherapymentioning

confidence: 99%

Physiotherapy after stroke in Ireland: a qualitative insight into the patients' and physiotherapists' experience

Galvin

Cusack²,

Stokes³

2009

International Journal of Rehabilitation Research

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The study aimed to examine the experience of inpatient physiotherapy intervention delivered after stroke in Ireland from two different perspectives: that of the person with stroke and that of the physiotherapist. A qualitative study was conducted involving semi-structured interviews with 10 people with stroke and two focus groups with 10 senior physiotherapists working in the area of neurology. All transcriptions were analysed using the grounded theory approach. People with stroke and physiotherapists agreed that people with stroke could benefit from more physiotherapy than is routinely provided in the rehabilitation setting. However, the timing of the intervention was disputed. Family-mediated exercise therapy was identified as an acceptable adjunct to routine physiotherapy after stroke. People with stroke identified walking and lower-extremity exercises as the most important components of their programme. Furthermore, they identified honesty and encouragement as two important traits in a physiotherapist working with people with stroke. Obtaining the perspective of patients is an important and valuable way of evaluating healthcare services. Physiotherapists need to be cognizant of the elements of rehabilitation that are important to people with stroke. Methods of delivery of stroke care need to evolve and incorporate families not only for practical purposes but also from a psychological aspect. Family-assisted exercise therapy after stroke may enhance the carry-over outside formal physiotherapy, giving patients and their families the opportunity to maximize recovery.

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Perceptions of burden among family caregivers of post-stroke elderly in Japan

Cited by 12 publications

References 12 publications

Caregiver strain and quality of life 6 - 36 Months post stroke

Caregiver strain and quality of life 6 - 36 Months post stroke

Actual and ideal services in acute care and rehabilitation for relatives post-stroke from three perspectives: Relatives, stroke clients and health professionals

Physiotherapy after stroke in Ireland: a qualitative insight into the patients' and physiotherapists' experience

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