Perception of physical health by patients with severe mental illness and their family caregivers: A qualitative study

Ince, Sevecen Çelik; Günüşen, Neslihan Partlak; Serçe, Özgü

doi:10.1111/ppc.12416

Cited by 5 publications

(4 citation statements)

References 21 publications

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“…Consumers felt their physical and mental health were interconnected and part of a holistic system of health ( 35 – 37 ). Physical health was identified as having the potential to negatively impact mental health, and vice versa; consumers understood this interrelationship as affecting their quality of life ( 35 , 38 ). Accordingly, good physical health was seen as critical to mitigating the negative symptoms of mental health concerns ( 39 , 40 ).…”

Section: Experience Of and Contributors To Physical Health For Mental...mentioning

confidence: 99%

A critical review of research into mental health consumers' perspectives on their physical health: Is there an absence of consumers in the design, conduct, analysis and reporting of this research?

Green

Elwyn

Hill

et al. 2023

Front. Public Health

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We conducted a critical review, using systematic methods, of the literature examining mental health consumer perspectives on their physical and mental health in academic research published between 2005 and 2021. This review examined the inclusion, extent, type and centrality of consumer perspectives regarding their mental and physical health. The search produced 1,865 papers from which 116 met the inclusion criteria. Studies predominantly focused on consumers' individual experiences of their physical and mental health, including but not limited to their understandings and experiences of medication and associated risk factors. They also captured some social aspects of mental health consumers' physical health, including factors that impacted individual agency, stigma, and social and interpersonal factors. Structural factors affecting physical and mental health, such as accessibility of services and financial constraints, were also identified. The review revealed that in comparison to clinician perspectives, the direct representation of consumer perspectives was lacking. Similarly, while clinician and carer perspectives on structural factors were investigated, the consumer perspective in this area was missing. The review also found few genuine codesigned or coproduced research studies. To better identify and respond to the health needs as prioritized by consumers, this paper argues it is imperative that future studies prioritize codesigned and coproduced research. It is argued that a focus on “services as provided” rather than “services as received” has contributed to a lack of progress in addressing the life expectancy gap for consumers. It is recommended that journals, ethics committees and research policy organizations develop guidelines and standards to inform best practice in research on consumer perspectives and experience and to support the implementation of codesigned and/or coproduced approaches in future research. Respecting and including consumers as equal partners in the research process will lead to more meaningful insights to inform policy and practice and reduce the life expectancy gap for people living with mental health concerns.

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Section: Experience Of and Contributors To Physical Health For Mental...mentioning

confidence: 99%

A critical review of research into mental health consumers' perspectives on their physical health: Is there an absence of consumers in the design, conduct, analysis and reporting of this research?

Green

Elwyn

Hill

et al. 2023

Front. Public Health

View full text Add to dashboard Cite

show abstract

“…Individuals with SMI show a higher risk of being diagnosed with cancer at advanced stages, including a delay in cancer diagnosis [ 5 , 6 , 7 ] and lower rates of cancer screening compared to the general population [ 8 , 9 ], which can be related to barriers such as information, poor staff–client relationships, travel difficulties, etc. [ 8 , 10 ]. Leahy et al’s [ 11 ] review shows that uncontrolled psychiatric symptoms and their adverse impact on engaging with cancer care, and also stigmatising attitudes from staff and systems barrier-fragmentation, were barriers to cancer screening and treatment in individuals with concurrent SMI and cancer.…”

Section: Introductionmentioning

confidence: 99%

“…SMI can negatively affect individuals’ cognitive abilities including memory, volition, and ability to articulate needs in daily life [ 16 , 17 ], which can impede help-seeking, disease insight, and adherence to treatment. High rates of smoking, alcohol consumption, and psychotropic drugs-related effects with sedation, sedentary lifestyles, and obesity in persons with SMI can affect health negatively [ 10 , 18 , 19 ]. Adherence to pharmacological treatment can be affected by disease symptoms, previous experience with specific drugs, and debilitating secondary effects of treatment [ 20 , 21 ].…”

Section: Introductionmentioning

confidence: 99%

Experiences of Everyday Life among Individuals with Co-Existence of Serious Mental Illness and Cancer—A Qualitative Systematic Literature Review

2023

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Daily life with severe mental health (SMI) and cancer comorbidity entails multiple challenges. The study aims to explore everyday life experiences among individuals with SMI and cancer comorbidity from the perspectives of patients, significant others, and involved healthcare professionals. The study is registered in PROSPERO (CRD42021259604). A qualitative systematic review was conducted through searches in the databases MEDLINE, CINAHL, PsychInfo, and Web of Sciences (last search 14 February 2023). Inclusion criteria were empirical qualitative research studies investigating experiences of healthcare and everyday life among persons living with SMI and who were subsequently diagnosed with cancer from the perspective of the individuals themselves, their significant others, and healthcare professionals involved in their care. Exclusion criteria: Literature reviews, quantitative studies, intervention studies, quantitative parts of mix-methods studies, non-English languages, persons <18 years, dementia/learning disabilities, diagnosed with anxiety/depression as a consequence of cancer. Seven articles, published between January 2011 and February 2023, were included and analysed through a thematic analysis. The PRISMA 2020 checklist guided the study. The results were presented in four themes: ‘Navigating between different worlds and logics’, ‘Decision-making capacity depending on the assessor’, ‘Cancer must give way to severe mental illness or vice versa’, and ‘Significant others as a safety net’. Research about the everyday lives of persons with SMI and cancer comorbidities from patients’ and relatives’ perspectives is lacking and thus called for.

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“…Several studies have explored the representations and experiences of patients [ 22 , 23 ], carers [ 23 , 24 ], psychiatric health professionals [ 25 , 26 ] and primary care providers [ 27 ] in terms of the physical health of PSMI. However, to the best of our knowledge, no published work to date has focused all four of these populations in the same study.…”

Section: Introductionmentioning

confidence: 99%

Results of a Qualitative Study Aimed at Building a Programme to Reduce Cardiovascular Risk in People with Severe Mental Illness

Costa

Meunier-Beillard²,

Guillermet

et al. 2022

IJERPH

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People with severe mental illness (PSMI) have a shorter life expectancy and are more likely to have cardiovascular disease than the general population. Patients, carers, psychiatric professionals and primary care providers can all play a role in increasing PSMI physical health. The present qualitative exploratory study aimed to explore the views of these four populations as part of the multi-phase COPsyCAT project, whose objective is to build and test a cardiovascular risk prevention programme for PSMI. Overall, 107 people participated in the study’s 16 focus groups, which were transcribed and analysed in a thematic analysis. With a view to building the health promotion programme, major themes identified in the corpus were translated into a list of needs as follows: communication, information, training and support. Results show that it is essential to improve communication between all the different stakeholders in mental health. The greatest challenge facing this programme will be to adapt it to the needs and expectations of PSMI while facilitating work between the various mental health stakeholders. Simple and inexpensive actions could be taken to improve the cardiovascular health of PSMI and will be experimented with during the programme’s feasibility study which will start in September 2022.

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Perception of physical health by patients with severe mental illness and their family caregivers: A qualitative study

Cited by 5 publications

References 21 publications

A critical review of research into mental health consumers' perspectives on their physical health: Is there an absence of consumers in the design, conduct, analysis and reporting of this research?

A critical review of research into mental health consumers' perspectives on their physical health: Is there an absence of consumers in the design, conduct, analysis and reporting of this research?

Experiences of Everyday Life among Individuals with Co-Existence of Serious Mental Illness and Cancer—A Qualitative Systematic Literature Review

Results of a Qualitative Study Aimed at Building a Programme to Reduce Cardiovascular Risk in People with Severe Mental Illness

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