Perception of family need in pediatric oncology

Barnhart, Leslie L.; Fitzpatrick, Vanessa D.; Sidell, Nancy L.; Adams, Margaret; Shields, Glenn; Gomez, Sheila

doi:10.1007/bf01875772

Cited by 10 publications

(6 citation statements)

References 20 publications

(9 reference statements)

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“…A large number of parents expressed that they need information on special educational institutions meant for disabled children. Regarding the nature of requirements expressed by parents, the pattern described by parents in the present study is in accordance with those reported in previous researches (Baily et al, 1992;Cooper and Allred, 1992;Sexton et al, 1992;Garshelis and Mc Connell, 1993;Barnhart et al, 1994;Bailey and Simeonssion, 1988). Many parents expressed the desire to know the child's disability and technique of handling them.…”

Section: Discussionsupporting

confidence: 93%

Parenting Stress and Need Assessment of Families with Disabled Children across Himachal Himalaya

Ranta¹,

Sharma²,

Gupta³

2015

IJSSR

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The study pertains to the parenting stress, which is believed to be the resultant of child disability and further assesses the needs of the families across selected pockets of Himachal Himalaya. Perceived Stress Questionnaire (PSQ) and Need Assessment Scale were used for the purpose. For assessing the stress level among the parents, PQS was administered among two hundred parents having disabled children, herein called experimental group and two hundred parents with normal children, herein called control group. A three point Need assessment scale was used to measure the needs of 200 families on five different parameters. The result of t-test shows the significant difference between experimental and control groups indicating that the parents of disabled children experience more stress than their control counterpart. The study indicates that people need proper guidance and information regarding a child’s disability, nutritional requirements of a child, vocational training and child management. There is a need for proper counselling for parents suffering from stress and creating consciousness among parents of children with disabilities and in the society.

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Section: Discussionsupporting

confidence: 93%

Parenting Stress and Need Assessment of Families with Disabled Children across Himachal Himalaya

Ranta¹,

Sharma²,

Gupta³

2015

IJSSR

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“…At the suggestion of the Family Needs Survey (FNS) authors, minor wording changes were made. The Latina mothers used the FNS to self-report their needs for 35 items in the areas of: Information (n=7), Family and Social Support (n=8), Financial (n=6), Explaining to Others (n=5), Child Care (n=3), Professional Support (n=3), and Community Services (n=3), areas "critical to family functioning" (Barnhart, Fitzpatrick, Sidell, Adams, & Gomez, 1994). Examples of items include "information about my child's condition or disability," and "explaining my child's condition to other children."…”

Section: Methodsmentioning

confidence: 99%

Obstacles Faced by Latina Mothers of Children with Autism

Iland

Weiner

Murawski

2012

CALIF J HEALTH PROMOT

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The CDC's most recent autism prevalence estimates document the continued trend of higher prevalence among non-Hispanic white children compared to Hispanic children. The disproportionate underrepresentation of Latino children in the health, education and service systems is measurable, disadvantaging the child and family. This quantitative study identifies support needs and obstacles experienced by 96 Latina mothers of children with autism, active in Spanish-language parent groups in California. Study measures included the Family Needs Survey and the Caring for My Child Survey. To determine the significance of the results on the Family Needs Survey, an item-by-item chi-square analysis compared results to those of to a similar population from a different study that used the same measure. A high proportion of mothers reported substantial levels of unmet needs in their role as primary caregiver using the Family Needs Survey: all 35 survey items were unmet for at least 50% of mothers; 28 items were common needs. The level and number of unmet needs of mothers in the present study in areas such as social support and care services were significantly greater than the comparison group. On the Caring for My Child Survey, mothers identified multiple barriers personally encountered in obtaining assistance for their children including psychosocial, economic, political, and healthcare factors. Findings are relevant to improve access for Latinos in the health, education and service systems, and to establish a baseline for comparison.

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“…In particular, these families need help communicating with friends and families about their child's cancer and they worry about the long-term emotional effects on both the children with cancer and their siblings [10][11][12][13].…”

Section: Introductionmentioning

confidence: 99%

Psychosocial needs of ethnic minority, inner-city, pediatric cancer patients

Moody

Mannix

Furnari

et al. 2010

Support Care Cancer

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Given the high prevalence of reported unmet informational needs, efforts should be made to provide patients and families with education tailored to their informational needs and level of education. This population may benefit from psychoeducational interventions, including community-based informational and peer support groups. Such interventions may augment efforts to lessen health gaps experienced in this population.

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Perception of family need in pediatric oncology

Cited by 10 publications

References 20 publications

Parenting Stress and Need Assessment of Families with Disabled Children across Himachal Himalaya

Parenting Stress and Need Assessment of Families with Disabled Children across Himachal Himalaya

Obstacles Faced by Latina Mothers of Children with Autism

Psychosocial needs of ethnic minority, inner-city, pediatric cancer patients

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