Perceived unmet needs of informal caregivers of people with dementia in Singapore

Vaingankar, Janhavi Ajit; Subramaniam, Mythily; Picco, Louisa; Eng, Goi Khia; Shafie, Saleha; Sambasivam, Rajeswari; Zhang, Yun Jue; Sagayadevan, Vathsala; Chong, Siow Ann

doi:10.1017/s1041610213001051

Cited by 72 publications

(114 citation statements)

References 37 publications

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“…E xiste evidencia de que el costo del cuidado de personas con enfermedad crónica en diferentes partes del mundo es alto (1)(2). Por ende, en muchos casos este cuidado no se realiza por parte de personal profesional sino por familiares que asumen esta labor.…”

Section: Introductionunclassified

Mujeres cuidadoras familiares de personas con enfermedad crónica en Colombia

Díaz

Barrera-Ortiz

Rosero

et al. 2016

rev. cienc. cuidad.

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RESUMENObjetivo: describir las características sociodemográficas y la sobrecarga en cuidadoras colombianas, y explorar la asociación existente entre la sobrecarga y las variables de edad, escolaridad, estrato, tiempo como cuidadora y número de horas que cuida al día. Materiales y Métodos: estudio descriptivo y de asociación con 1183 cuidadoras de las cinco regiones de Colombia. Se midieron las variables sociodemográficas y de sobrecarga con el cuidado, a partir de la aplicación de la Encuesta para la Caracterización del Cuidador Familiar de una Persona con Enfermedad Crónica y la Escala de Sobrecarga del Cuidador de Zarit. Resultados: el rango de edad de las cuidadoras que predomina está entre los 36 y 59 años, el nivel educativo es heterogéneo, la mitad de las cuidadoras se dedica al hogar como ocupación principal, religión predominante es la católica. El 80 % cuida a la persona con enfermedad crónica desde el momento de su diagnóstico. Más de la mitad del grupo de participantes presentó ausencia de sobrecarga con el cuidado. La edad, el tiempo como cuidadora y el estrato socioeconómico tienen una asociación estadísticamente significativa pero de magnitud débil con la sobrecarga de cuidado. No se encontró una asociación significativa entre la escolaridad de las cuidadoras. Conclusiones: se encontraron asociaciones de magnitud leve entre la edad, el estrato socioeconómico, el tiempo como cuidadora y la sobrecarga del cuidado; es vital consolidar un modelo que explique las variables que inciden en la sobrecarga de cuidadoras de personas con enfermedad crónica en el país.

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Section: Introductionunclassified

Mujeres cuidadoras familiares de personas con enfermedad crónica en Colombia

Díaz

Barrera-Ortiz

Rosero

et al. 2016

rev. cienc. cuidad.

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“…Education/ counseling [59][60][61][62][63][64][65][66][67][68][72][73][74][75]79,80,82,[85][86][87][88][89][92][93][94][95][96][97] Need for specific information on medical and interpersonal aspects of the disease, meaningful counseling on dealing with behavioral problems, guidelines on dementia before and after diagnosis.…”

mentioning

confidence: 99%

“…Financial support/ planning 53,55,57,59,66,88,89,92,93,96,97 Need for assistance with access to financial programs that can help if the caregiver quits a job to take care of the patient and help deal with household and medication expenses.…”

mentioning

confidence: 99%

“…Needs of the caregiver Emotional support 53,57,59,[62][63][64]74,80,95,97 Need for assistance with feelings of being alone, abandoned, helpless, exhausted, and mentally burdened.…”

mentioning

confidence: 99%

“…Social support 53,56,58,59,62,67,75,81,87,88,91,97 Needs to have social outlets such as time alone, social interaction with friends, opportunities to shop and to go out.…”

mentioning

confidence: 99%

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Family Physician–Case Manager Collaboration and Needs of Patients With Dementia and Their Caregivers: A Systematic Mixed Studies Review

Khanassov

Vedel

2016

Ann Fam Med

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PURPOSE Dementia case management (CM) in primary care is a complex intervention aimed at identifying the various needs of patients with dementia and their caregivers, as well as the organization and coordination of care. A key element of CM is the collaboration of family physicians with case managers. We conducted a systematic mixed-studies review to identify the needs of the patientcaregiver dyad and the effects of CM. METHODSWe searched MEDLINE, PsycINFO, and EMBASE up to October 2014, regardless of the study design. Our main outcomes were needs of patients and their caregivers and the effects of CM on these needs. We used narrative syntheses to develop a taxonomy of needs and to describe the effects of CM on those needs. We used meta-analysis to calculate the prevalence of needs and the standardized mean differences to evaluate the effects of CM on the needs identified.RESULTS Fifty-four studies were included. We identified needs of the patientcaregiver dyad and needs of the patient and caregiver individually. CM addressed the majority of the identified needs. Still, some very common needs (eg, early diagnosis) are overlooked while other needs (eg, education on the disease) are well addressed. Fully establishing the value of CM is difficult given the small number of studies of CM in primary care.CONCLUSIONS There is good evidence that case managers, in collaboration with family physicians, have a pivotal role in addressing the needs of the patientcaregiver dyad. 2016;14:166-177. doi: 10.1370/afm.1898. Ann Fam Med INTRODUCTIONT he proportion of people with dementia is growing dramatically. According to the US Alzheimer's Association, by 2030, 50% of Americans aged 65 years and older will be diagnosed with dementia. 1 In Canada in 2011, 747,000 Canadians lived with cognitive impairment.2 Today, the combined costs are $33 billion per year, 1 and they are projected to increase to $872 billion by 2038. 3,4 Worldwide, dementia is the main contributor to disability-adjusted life years (11.2%), representing a greater burden than cerebral vascular accident (9.5%), heart disease (5.0%), or cancer (2.4%). 5People with dementia need help with challenging changes in behavior, memory, physical disability, and mood. 6 The main source of help is family caregivers, who often suffer from the burdens of caregiving and from depression and health problems. 7 It has been shown that early intervention makes the greatest difference in management of symptoms. 1 The World Health Organization states that it would be challenging to intervene without effective involvement of primary care. 8 Dementia case management (CM) interventions are becoming a central component of primary health care organizations in North America and Europe. [9][10][11][12] According to the 167Case Management Society of America, case management is "a collaborative process of assessment, planning, facilitation, care coordination, evaluation, and advocacy for options and services to meet an individual's and family's comprehensive health needs through communi...

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Quantifying the unmet needs of caregivers of people with dementia: a critical review of the quality of measures

Mansfield

Boyes

Bryant

et al. 2016

Int J Geriat Psychiatry

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Objective The array of demanding tasks carried out by caregivers of people with dementia have significant negative impacts on their physical, mental and social well‐being. Needs assessment allows individuals to indicate the extent to which their needs across different areas have or have not been met, allowing for estimations of the prevalence of needs and the extent to which help is required. This approach is extremely valuable in a clinical context, as it enables identification of the areas with which caregivers report a particular desire for help and allows targeting of support and resources to those who identify high levels of unmet needs. This systematic review aimed to critically examine the psychometric properties of measures that assess unmet needs of caregivers of people with dementia. Methods Medline, Embase, PsycINFO and Cochrane electronic databases were searched between January 1990 and August 2015 for English‐language publications describing the development or validation of measures assessing the unmet needs of adult caregivers of people with dementia. The psychometric properties of included measures were assessed against standard criteria for psychometric quality. Results Four measures met the inclusion criteria. Only half of the indices of psychometric quality were tested across measures. Three measures had adequate internal consistency reliability, of which one also showed adequate test–retest reliability. Two measures reported adequate construct validity, while criterion validity was not assessed for any measure. Conclusions There is a clear need to develop a psychometrically rigorous instrument to identify the unmet needs of caregivers of people with dementia. Copyright © 2016 John Wiley & Sons, Ltd.

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Perceived unmet needs of informal caregivers of people with dementia in Singapore

Abstract: Informal caregivers face several challenges while caring for their relative with dementia and hence there is a clear demand to address their unmet needs for information, services, respite, and emotional and financial support.

Cited by 72 publications

References 37 publications

Mujeres cuidadoras familiares de personas con enfermedad crónica en Colombia

Mujeres cuidadoras familiares de personas con enfermedad crónica en Colombia

Family Physician–Case Manager Collaboration and Needs of Patients With Dementia and Their Caregivers: A Systematic Mixed Studies Review

Quantifying the unmet needs of caregivers of people with dementia: a critical review of the quality of measures

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