Perceived support from a caregiver's social ties predicts subsequent care-recipient health

Kelley, Dannielle; Lewis, Megan A.; Southwell, Brian

doi:10.1016/j.pmedr.2017.08.001

Cited by 21 publications

(23 citation statements)

References 15 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…To make it possible for older adults to live in the community, it is necessary to alleviate the burden on caregivers. Previous studies showed that community involvement had potential positive effects for both patients and family caregivers in long-term care (Barber 2013;Kelley et al 2017).…”

Section: Introductionmentioning

confidence: 99%

Family Caregivers’ Perspectives for the Effect of Social Support on their Care Burden and Quality of Life: A Mixed-Method Study in Rural and Sub-Urban Central Japan

Haya

Ichikawa

Wakabayashi

et al. 2019

Tohoku J. Exp. Med.

View full text Add to dashboard Cite

Japan has adopted community-based integrated long-term care, which has shifted the burden of care from institutions to the home. However, family caregivers have received less attention compared with care recipients. Many family caregivers are also older adults, and it is important that caregivers receive appropriate support to alleviate the burden of care. In rural and suburban area with limited resources compared to urban area, it is necessary to know which support to be prioritized. Therefore, this study aimed to understand family caregivers' perceptions of social support, the type and source of support which were considered important, and how it affected their caregiving burden and quality of life (QOL). We conducted a convergent mixed-method study with 174 primary family caregivers of older adults receiving home care in rural and suburb area of Central Japan. The mixed-method approach enabled qualitative data to complement quantitative results. Strong family support and higher education had positive effects on QOL, while higher caregiving burden and longer duration of care had negative effects on QOL. Provision of tangible support from family and healthcare professionals was central in reducing caregiving burden and improving caregivers' QOL. Support from distant relatives or neighbors, which was deemed inappropriate by caregivers, had a negative effect on caregivers' emotional status. In conclusion, family caregivers perceived support positively, but the effects depended on who provided support. While tangible support from close family and professionals was perceived positively, support from neighbors or distant relatives should consider caregivers' needs and condition to avoid a negative impact.

show abstract

Section: Introductionmentioning

confidence: 99%

Family Caregivers’ Perspectives for the Effect of Social Support on their Care Burden and Quality of Life: A Mixed-Method Study in Rural and Sub-Urban Central Japan

Haya

Ichikawa

Wakabayashi

et al. 2019

Tohoku J. Exp. Med.

View full text Add to dashboard Cite

show abstract

“…In addition, when caregivers engage in social activities, this may also influence the health of care-recipients. In a study in the United States, Kelley, Lewis, and Southwell (2017) found that social engagement (religious services, went to a support group, visited with friends or family not living in the same home, participated in club meetings or group activities, or went out for enjoyment) for caregivers had a direct positive association with the care-recipient’s health.…”

Section: Introductionmentioning

confidence: 99%

Social Participation and Health Outcomes Among Caregivers and Noncaregivers in Great Britain

et al. 2019

View full text Add to dashboard Cite

This study investigates the relationship between social participation and health outcomes between caregivers and noncaregivers in Great Britain. Previous studies indicate that the impact of informal caregiving on the carer’s health is complex, and the intensity of care provision has an adverse impact on the caregivers’ health, while social participation could have a protective role in this respect. Using qualitative and quantitative data from Wave 8 of the 1958 National Child Development Study, the analysis shows that social participation has a positive effect on the carers’ mental health and subjective well-being. Individuals who did not engage in social participation reported lower levels of mental health and control, autonomy, self-realization and pleasure (CASP) scores than those engaged in social participation. The qualitative results showed the barriers to social participation of caregivers to be time, energy, and finance. We discuss ways in which the government could address such barriers to improve the level of social participation among caregivers.

show abstract

“…Moreover, the potential impact of social networks in health goes beyond the networks of patients. For instance, there is evidence that a caregiver's social engagement is associated with care-recipient's health [35]. Thus, interventions that target the social support needs of Latina breast cancer survivors and their caregivers may potentially affect breast cancer related outcomes.…”

Section: Discussionmentioning

confidence: 99%

Engaging Latina breast cancer survivors in research: building a social network research registry

Hurtado‐de‐Mendoza

Serrano

Zhu

et al. 2018

Translational Behavioral Medicine

View full text Add to dashboard Cite

Disparities persist in breast cancer outcomes between Latina survivors and non-Hispanic Whites. Identifying methods to ensure that Latinas participate in and benefit from translational behavioral medicine research is important to reduce disparities. We developed a "Social Network Research Registry" to enhance Latina survivors' engagement in research and explored the social networks and research/cancer organization participation in this population. We initially recruited 30 Latina breast cancer survivors ("seeds") from community organizations and identified other survivors through snowball sampling. Guided by Social Network Analysis, we assessed the structural (e.g., size) and functional (e.g., social support) characteristics of the network, willingness to join the registry, prior research participation, involvement in cancer organizations, and interest in different types of research and roles in research. The resulting network size was 98, including 53 women who enrolled in the study and 45 who were listed in the network but did not enroll. All enrolled participants (N = 53) agreed to be part of the registry. We identified 15 participants who occupied strategic positions as hubs and/or bridges. Women who were currently involved in cancer organizations were more likely to have participated in research (70.3% vs. 18.8%); χ2 (1, 53) = 11.97, p = .001. Most were interested in surveys/interviews (98%), behavioral interventions (96%), and becoming health promoters (79%). The Social Network Research Registry is an acceptable and feasible strategy to engage underrepresented Latina survivors in research. Social network analysis can be useful to identify members who occupy key positions to enhance recruitment and translational efforts.

show abstract

Perceived support from a caregiver's social ties predicts subsequent care-recipient health

Cited by 21 publications

References 15 publications

Family Caregivers’ Perspectives for the Effect of Social Support on their Care Burden and Quality of Life: A Mixed-Method Study in Rural and Sub-Urban Central Japan

Family Caregivers’ Perspectives for the Effect of Social Support on their Care Burden and Quality of Life: A Mixed-Method Study in Rural and Sub-Urban Central Japan

Social Participation and Health Outcomes Among Caregivers and Noncaregivers in Great Britain

Engaging Latina breast cancer survivors in research: building a social network research registry

Contact Info

Product

Resources

About