Perceived quality of life of children after successful bridging to heart transplantation

Wray, Jo; Lunnon-Wood, T; Smith, Liz; Orrells, Claire; Iguchi, Akane; Burch, Milbre; Brown, Kate

doi:10.1016/j.healun.2011.11.014

Cited by 19 publications

(29 citation statements)

References 28 publications

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“…a group with more severe heart failure. 24 Ezon et al confirmed this finding with a similar study that evaluated patients after HT, looking specifically at patients who had a VAD placed as BTT and again found no difference in QoL following HT when compared with those who did not require MCS. 14 Overall, QoL after pediatric HT is considered good, though studies have noted psychosocial and neurocognitive difficulties in some pediatric patients posttransplant.…”

Section: Discussionmentioning

confidence: 78%

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Pediatric Quality of Life while Supported with a Ventricular Assist Device

et al. 2015

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Section: Discussionmentioning

confidence: 78%

“…evaluated the QoL of pediatric patients after HT, and compared patients who required MCS prior to HT to those who did not. They found no significant difference between groups, a significant finding as those patients bridged to transplant with MCS likely represented a group with more severe heart failure . Ezon et al.…”

Section: Discussionmentioning

confidence: 94%

Pediatric Quality of Life while Supported with a Ventricular Assist Device

et al. 2015

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“…Before transplantation, children and adolescents are often socially isolated due to their deteriorating health and frequent hospitalizations . There are often restrictions on social and recreational activities as a result of increasing physical limitations, as well as parental anxiety and overprotective behavior . Children and adolescents often feel alienated from peers, with almost no interest in play or other interactions with the environment, resulting in depression and low self‐esteem .…”

Section: Psychosocial Implicationsmentioning

confidence: 99%

Waiting for transplant: Physical, psychosocial, and nutritional status considerations for pediatric candidates and implications for care

Anthony

Annunziato

Fairey

et al. 2014

Pediatric Transplantation

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The waiting period for an organ transplant has been described as a time of tremendous uncertainty and vulnerability, posing unique challenges and stressors for pediatric transplant candidates and their families. It has been identified as the most stressful stage of the transplant journey, yet little attention has been given to the physical, psychological, or social impact of the waiting period in the literature. In this review, we discuss the physical, nutritional, and psychosocial implications of the waiting period for child and adolescent transplant candidates and the impact on their parents and siblings. We identify areas for future research and provide recommendations for clinical practice to support children, adolescents, and families during the waiting period.

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“…In the pediatric patient, QoL while supported with a VAD has not been investigated. It has been shown that patients who require MCS prior to HT, assuming they survive to HT, have an equivalent post-HT QoL to those who do not require MCS [73]. This was confirmed by another study which evaluated VADs specifically and again showed no detriment to the QoL for patients who require VAD support compared to those who do not require MCS [74].…”

Section: Quality Of Life and Cost-effectivenessmentioning

confidence: 85%

Current approaches to device implantation in pediatric and congenital heart disease patients

Miller

Lancaster

Eghtesady³

2015

Expert Review of Cardiovascular Therapy

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Summary The pediatric ventricular assist device (VAD) has recently shown substantial improvements in survival as a bridge to heart transplant for patients with end-stage heart failure. Since that time, its use has become much more frequent. With increasing utilization, additional questions have arisen including patient selection, timing of VAD implantation and device selection. These challenges are amplified by the uniqueness of each patient, the recent abundance of literature surrounding VAD use, as well as the technological advancements in the devices themselves. Ideal strategies for device placement must be sought, for not only improved patient care, but for optimal resource utilization. Here, we review the most relevant literature to highlight some of the challenges facing the heart failure specialist, and any physician, who will care for a child with a VAD.

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Perceived quality of life of children after successful bridging to heart transplantation

Cited by 19 publications

References 28 publications

Pediatric Quality of Life while Supported with a Ventricular Assist Device

Pediatric Quality of Life while Supported with a Ventricular Assist Device

Waiting for transplant: Physical, psychosocial, and nutritional status considerations for pediatric candidates and implications for care

Current approaches to device implantation in pediatric and congenital heart disease patients

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