Perceived mental health and needs for mental health services following trauma with and without brain injury

Ouellet, Marie‐Christine; Sirois, Marie-Josée; Lavoie, André

doi:10.2340/16501977-0306

Cited by 16 publications

(12 citation statements)

References 33 publications

(42 reference statements)

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“…Disability caused by TBI and multiple trauma affects everyday life and social and vocational participation [ 14 , 16 ]. Mental health problems [ 17 ], cognitive disability and effects on self-awareness [ 18 , 19 ] can also occur, possibly leading to additional challenges in the implementation of user involvement in practice.…”

Section: Introductionmentioning

confidence: 99%

User involvement and experiential knowledge in interprofessional rehabilitation: a grounded theory study

Slomic

Christiansen

Søberg

et al. 2016

BMC Health Serv Res

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BackgroundUser involvement is increasingly important in developing relevant health care services. The aim of this study was to contribute to a deeper understanding of user involvement and patients’ experiential knowledge as recognized and incorporated into clinical practice by rehabilitation professionals.MethodsA qualitative design using a grounded theory approach was applied. Data were collected by observations of the interprofessional meetings at two rehabilitation units treating patients with traumatic brain injury and multiple trauma and by individual semi-structured interviews with rehabilitation professionals.ResultsThe professionals recognized and incorporated user involvement into clinical practice as formal or authentic. Formal user involvement was sometimes considered pro forma. Incorporating patient’ experiential knowledge was considered a part of authentic user involvement. Possible gaps between the patients’ experiential knowledge and professional expertise were recognized. Challenges included dealing with ‘artifacts’, sources of information external to the patients’ own experiences, and addressing the patients’ possibly reduced insight due to trauma.ConclusionPatients’ experiential knowledge was recognized as an essential component of the professionals’ knowledge base. The professionals considered user involvement and patients’ experiential knowledge as part of their clinical practice. Implementation of user involvement and contribution of patients’ experiential knowledge could be improved by understanding the issues raised in practice, such as possible negative consequences of user involvement in form of burdening or disempowering the patients. A better understanding of the characteristics and measures of user involvement is necessary in order to be able to offer its full benefits for both the patients and the professionals.Electronic supplementary materialThe online version of this article (doi:10.1186/s12913-016-1808-5) contains supplementary material, which is available to authorized users.

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Section: Introductionmentioning

confidence: 99%

User involvement and experiential knowledge in interprofessional rehabilitation: a grounded theory study

Slomic

Christiansen

Søberg

et al. 2016

BMC Health Serv Res

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“…In one study, 29% of children and young adults with severe TBI received mental health services within 20 years after injury [12]. Research with adults also indicates limited access to mental health services after traumatic injuries [13]. Overall, few studies have examined the rate of use of mental health services and the characteristics of children that receive these services after TBI.…”

Section: Introductionmentioning

confidence: 99%

Behavioral Predictors of Outpatient Mental Health Service Utilization Within 6 Months After Traumatic Brain Injury in Adolescents

Kurowski

Wade

Kirkwood

et al. 2013

PM&R

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Objective To characterize utilization of mental health services and determine the ability of a behavior problem and clinical functioning assessment to predict utilization of such services within the first 6 months after moderate and severe traumatic brain injury (TBI) in a large cohort of adolescents. Design Multicenter cross-sectional study. Setting Outpatient setting of four tertiary pediatric hospitals, two tertiary general medical centers, and one specialized children's hospital. Participants Adolescents age 12-17 years (N=132), 1 to 6 months after moderate to severe TBI. Methods Logistic regression was used to determine the association of mental health service utilization with clinical functioning as assessed by the Child and Adolescent Functional Assessment Scale (CAFAS) and behavior problems assessed by the Child Behavioral Checklist (CBCL). Main Outcome Measure Mental health service utilization measured by the Service Assessment for Children and Adolescents (SACA). Results Behavioral or functional impairment occurred in 37 to 56%. Of the total study population, 24.2% reported receiving outpatient mental health services, 8.3% reported receiving school services, and 28.8% reported receiving any type of mental health service. Use of any (school or outpatient) mental health service was associated with borderline to impaired total CAFAS (OR [CI] = 3.50 [1.46, 8.40], p < 0.01) and CBCL total competence (OR [CI] = 5.08 (2.02, 12.76), p < 0.01). Conclusions A large proportion of participants had unmet mental health needs. Both the CAFAS and CBCL identified individuals who would likely benefit from mental health services in outpatient or school settings. Future research should focus on methods to ensure early identification by health care providers of adolescents with TBI in need of mental health services.

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“…In some publications (n = 5), instruments to assess HRQoL were only used partially (e.g. solely the mental or physical part, or selected subscales of the SF-36 or SF-12, chapter 'Disability' of the ICIDH) (34,54,55,71,78). Six publications conducted a retrospective collection of HRQoL via SF-36, SF-12, EQ-5D and TOP capturing the pre-trauma status (37,(46)(47)(48)(49)73).…”

Section: Characteristics Of Included Publicationsmentioning

confidence: 99%

“…A postal survey was most often used to assess HRQoL, ADL, and (social) participation (n = 17) (11, 33, 46-52, 56, 57, 67, 71, 74, 75, 77, 79). Next in frequency were telephone interviews (n = 5) (34,36,54,55,80), expert assessments (n = 2) (44, 63), face to face interview (n = 1) (81), and combinations of those (n = 16) (7,35,37,39,40,42,43,45,58,59,65,68,70,73,82,83). The research settings were: trauma centre (35,42,43,45,84), outpatient clinic (61,64,78), hospital (38), medical centre or place of patient´s residence (63), hospital and home (73).…”

Section: Application Of Instrumentsmentioning

confidence: 99%

Assessment of Patient-Reported Outcomes After Polytrauma: A Systematic Review

Ritschel

Kuske

Gnass

et al. 2020

Preprint

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Background: Tools assessing patient-reported outcomes (PROs) after polytrauma have not been systematically reviewed so far. Therefore, we sought to: (1) collect instruments that assess health-related quality of life (HRQoL), activities of daily living (ADL), and social participation during follow-up after polytrauma, (2) describe their use (e.g. frequency of application during follow-up), and (3) investigate other relevant PROs assessed in the included studies (e.g. pain, depression, anxiety).Methods: The search was conducted in MEDLINE, Embase, CINAHL, PsycINFO, CENTRAL, the trials registers ClinicalTrials.gov, and WHO ICTRP. All original empirical research published between January 2005 and April 2018 was included. Data extraction, narrative content analysis, and a critical appraisal were performed.Results: The search yielded 3496 hits and 54 publications were included in the review. Predominantly, HRQoL was assessed (in 48 of 54 publications), with Short Form-36 Health Survey (SF-36) applied most frequently. ADL and (social) participation were rarely assessed. The follow-up period lasted between 8 days and 17.5 years; assessments were performed between one and five times. Most used were a single assessment of PROs, a follow-up period of 1 to 1.5 years, and a postal survey. Other relevant PRO areas reported were function, mental disorders, and pain.Conclusions: There is a large variation in the assessment of PROs after polytrauma, impairing comparability of outcomes. First efforts to standardise the collection of PROs have been initiated, but further harmonisation between central players, such as trauma registers, is required. Definition and continuous collection of core outcome sets would improve comparability of study results, creating the basis for more targeted treatment. Additional knowledge on rarely reported PRO areas like (social) participation and social network may lead to their consideration in health services provision.Registration: PROSPERO (CRD42017060825)

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Perceived mental health and needs for mental health services following trauma with and without brain injury

Cited by 16 publications

References 33 publications

User involvement and experiential knowledge in interprofessional rehabilitation: a grounded theory study

User involvement and experiential knowledge in interprofessional rehabilitation: a grounded theory study

Behavioral Predictors of Outpatient Mental Health Service Utilization Within 6 Months After Traumatic Brain Injury in Adolescents

Assessment of Patient-Reported Outcomes After Polytrauma: A Systematic Review

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