Perceived healthcare provider reactions to patient and caregiver use of online health communities

Rupert, Douglas; Moultrie, Rebecca; Read, Jennifer; Amoozegar, Jacqueline; Bornkessel, Alexandra; O’Donoghue, Amie C.; Sullivan, Helen W.

doi:10.1016/j.pec.2014.05.015

Cited by 118 publications

(102 citation statements)

References 26 publications

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“…We noted for example that participants felt that online support group information in particular was less well received by HCPs. This supports previous work suggesting that people are sometimes tempted to obfuscate the source when the information has been derived from an online health community [16].…”

Section: Discussionsupporting

confidence: 88%

“…Despite this, patients report that HCPs sometimes react negatively to information derived from online sources [16] or believe that the HCP will perceive them to be challenging [14]. If the HCP has a dominant communication style [17] discussing online health information could negatively affect the relationship making it less likely that patients will choose to divulge or discuss online resources [15].…”

Section: Introductionmentioning

confidence: 99%

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(How) do People Negotiate Online Information into their Decision Making with Healthcare Professionals?

Bussey

Sillence

2017

Proceedings of the 2017 International Conference on Digital Health

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In this paper, we describe how people negotiate and communicate with healthcare professionals (HCPs) about information they have found online for the purposes of making health decisions. Drawing on 55 interviews with people using the Internet as part of their health decisionmaking we show how online information can be successfully integrated into decision-making leading to decision satisfaction and perceived positive outcomes. We describe what successful integration looks like as well as detail the ways in which integration of information can be disguised during negotiations with HCPs. Finally, we document what happens when integration fails, potentially valuable information resources are lost or the patient decides to bypass the HCP altogether. By exploring successful and unsuccessful integration examples we make three suggestions about how integration of online health information into HCP discussions around decision-making could be improved via (1) improved digital curation tools (2) providing communication scaffolding for the doctor-patient consultation and (3) harnessing the power of collective resources.

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Section: Discussionsupporting

confidence: 88%

Section: Introductionmentioning

confidence: 99%

(How) do People Negotiate Online Information into their Decision Making with Healthcare Professionals?

Bussey

Sillence

2017

Proceedings of the 2017 International Conference on Digital Health

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“…When patients bring social media content to the consultation, this can lead to increased processes of sorting information, transforming the potential risk to the healthcare professional, and challenging the healthcare professional’s expertise [13]. Additionally, if the healthcare professional reacts negatively to what patient learned from social media, this might decrease the patient’s subjective well-being [1]. The effect of suboptimal interaction between the patient and healthcare professional was identified in two articles.…”

Section: Resultsmentioning

confidence: 99%

“…Social media can serve as an aid to patients. For example, it fosters their autonomy by complementing the information provided by healthcare professionals [1] and by providing psychosocial support [2]. Social media use by patients can also be an aid to healthcare professionals by providing a tool to strengthen the organization’s market position [3, 4] and stimulating conversation for brand building and improved service delivery [4, 5].…”

Section: Introductionmentioning

confidence: 99%

Social media use in healthcare: A systematic review of effects on patients and on their relationship with healthcare professionals

Smailhodžić

Hooijsma

Boonstra

et al. 2016

BMC Health Serv Res

554

439

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BackgroundSince the emergence of social media in 2004, a growing percentage of patients use this technology for health related reasons. To reflect on the alleged beneficial and potentially harmful effects of social media use by patients, the aim of this paper is to provide an overview of the extant literature on the effects of social media use for health related reasons on patients and their relationship with healthcare professionals.MethodsWe conducted a systematic literature review on empirical research regarding the effects of social media use by patients for health related reasons. The papers we included met the following selection criteria: (1) published in a peer-reviewed journal, (2) written in English, (3) full text available to the researcher, (4) contain primary empirical data, (5) the users of social media are patients, (6) the effects of patients using social media are clearly stated, (7) satisfy established quality criteria.ResultsInitially, a total of 1,743 articles were identified from which 22 were included in the study. From these articles six categories of patients’ use of social media were identified, namely: emotional, information, esteem, network support, social comparison and emotional expression. The types of use were found to lead to seven identified types of effects on patients, namely improved self-management and control, enhanced psychological well-being, and enhanced subjective well-being, diminished subjective well-being, addiction to social media, loss of privacy, and being targeted for promotion. Social media use by patients was found to affect the healthcare professional and patient relationship, by leading to more equal communication between the patient and healthcare professional, increased switching of doctors, harmonious relationships, and suboptimal interaction between the patient and healthcare professional.ConclusionsOur review provides insights into the emerging utilization of social media in healthcare. In particular, it identifies types of use by patients as well as the effects of such use, which may differ between patients and doctors. Accordingly, our results framework and propositions can serve to guide future research, and they also have practical implications for healthcare providers and policy makers.Electronic supplementary materialThe online version of this article (doi:10.1186/s12913-016-1691-0) contains supplementary material, which is available to authorized users.

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“…4,[29][30] However, consumer use of social media for health information has grown rapidly, and even though few pharmaceutical companies use social media to make drug product claims, consumers frequently discuss their own personal drug experiencesincluding effectiveness and side effects-on social media. 5,[31][32][33] Thus, we need to understand how pharmaceutical companies use social media, how consumers react to direct promotion (eg, product-specific Twitter feed) vs. subtle promotion (eg, online illness forum hosted by drug manufacturer), and how consumers use information gleaned from social media in their decisions. Although relatively few of the warning letters in Kim's 1 sample directly involved social media, concerns over social media activities by prescription drug marketers are likely to increase in the future.…”

Section: Social Media Drug Promotion and Medication Decisionsmentioning

confidence: 99%

Future Challenges and Opportunities in Online Prescription Drug Promotion Research Comment on "Trouble Spots in Online Direct-to-Consumer Prescription Drug Promotion: A Content Analysis of FDA Warning Letters"

Southwell¹,

Rupert²

2016

Int J Health Policy Manag

Self Cite

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Despite increased availability of online promotional tools for prescription drug marketers, evidence on online prescription drug promotion is far from settled or conclusive. We highlight ways in which online prescription drug promotion is similar to conventional broadcast and print advertising and ways in which it differs. We also highlight five key areas for future research: branded drug website influence on consumer knowledge and behavior, interactive features on branded drug websites, mobile viewing of branded websites and mobile advertisements, online promotion and non-US audiences, and social media and medication decisions. A s Kim 1 notes, the emergence of online prescription drug promotion warrants research, both to inform regulation in countries that allow direct-to-consumer (DTC) promotion and to understand consumer behavior around the world. Although healthcare providers continue to be highly trusted sources of health information, consumers often first consult Internet-based sources to answer questions about health conditions or medications.2,3 At the same time, pharmaceutical companies are increasingly using online promotional tools, such as branded drug websites, online videos (eg, YouTube), and social media (eg, Facebook, Twitter, online forums, and chat rooms), to provide information about prescription drugs.4-8 Yet these online tools-as demonstrated by Kim and others [9][10][11] -often fail to present balanced information about prescription drug benefits and risks. Despite the availability of online promotional tools, however, the evidence on online prescription drug promotion is far from conclusive. Kim's study helps to address the need for new research; her overview of a decade of warning letters issued by the U.S. Food and Drug Administration (FDA) highlights some important observations. She notes that online promotion, like conventional broadcast and print advertising, harbors numerous instances of inaccurate description of drug benefits and risks. Unlike conventional broadcast advertising, however, online promotion can pose unique space constraints (such as character and space limits in Internet search engine results) that can make benefit and risk description challenging. Moreover, social media applications beg new questions about the influence of interpersonal communication online. From a regulatory perspective, we should examine additional dimensions in FDA warnings beyond Kim's current analysis. Specifically, future research should compare online DTC warnings against conventional broadcast and print ad warnings, should distinguish between notices of violation and more serious warning letters, and should compare the volume of FDA warnings against the prevalence of each DTC activity. These assessments would help to identify how online DTC violations compare to traditional DTC violations and whether the high volume of warnings for branded drug websites is because such sites are more prevalent than other online DTC activities. From a decision science perspective, we need to expand onl...

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Perceived healthcare provider reactions to patient and caregiver use of online health communities

Abstract: HCPs should discuss OHC content with patients to help them avoid misinformation and make more informed decisions.

Cited by 118 publications

References 26 publications

(How) do People Negotiate Online Information into their Decision Making with Healthcare Professionals?

(How) do People Negotiate Online Information into their Decision Making with Healthcare Professionals?

Social media use in healthcare: A systematic review of effects on patients and on their relationship with healthcare professionals

Future Challenges and Opportunities in Online Prescription Drug Promotion Research Comment on "Trouble Spots in Online Direct-to-Consumer Prescription Drug Promotion: A Content Analysis of FDA Warning Letters"

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