People with Spinal Cord Injury in Poland

Tederko, Piotr; Jagodzinski, Robert; Krasuski, Marek; Tarnacka, Beata

doi:10.1097/phm.0000000000000639

Cited by 10 publications

(6 citation statements)

References 3 publications

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“…In SCI, it has been estimated that approximately 81% of SCI patients will undergo some degree of urinary dysfunction within 1 year, and <1% of these patients will make a full recovery. 3 Currently, there are no studies that have investigated the prevalence of SCI in Poland, but the incidence tends to be twofold lower than that of MS. 25,26 The numbers presented here to indicate possible targets of the Polish version of NBSS justify the rigorous translation and validation process.…”

Section: Discussionmentioning

confidence: 94%

Neurogenic bladder symptom score: Polish translation, adaptation and validation of urinary disorder‐specific instrument for patients with neurogenic lower urinary tract dysfunction

Przydacz

Dudek

Gołąbek

et al. 2020

Int. J. Clin. Pract.

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Introduction There is no comprehensive and specific questionnaire translated, adapted and validated in the Polish language for evaluating symptoms, quality of life and complications associated with the neurogenic lower urinary tract dysfunction (NLUTD). The aim of this study was to translate, culturally adapt and validate a Polish version of the Neurogenic Bladder Symptom Score (NBSS) for patients who experience NLUTD. Material and Methods Standardised guidelines and well‐established methods were used for translation and cross‐cultural adaptation of the NBSS. Adult patients with multiple sclerosis and spinal cord injury completed the NBSS, the International Consultation on Incontinence Questionnaire‐Short Form (ICIQ‐SF), the International Prostate Symptom Score (IPSS) and the SF‐Qualiveen. Responses were recorded twice within a 14‐day period. Results Two hundred seventy‐four Polish‐speaking patients with NLUTD were included in the study. Content validity was optimal. Significant relationships between NBSS (Incontinence) and ICIQ‐SF, NBSS (Storage and Voiding) and IPSS, and NBSS (Quality of Life) and SF‐Qualiveen confirmed good construct/criterion validity. An intercorrelation study revealed that internal consistency was good for the total NBSS and specific domains (Cronbach's alpha >0.7). Test‐retest reliability (reproducibility) demonstrated strong stability (intra‐class correlation coefficients >0.7 for the total NBSS). No ceiling or floor effects were present. Conclusions The Polish NBSS demonstrated good measurement properties for a large cohort of patients with NLUTD. It is a suitable tool to assess NLUTD symptoms, consequences and quality of life. The Polish NBSS will support routine clinical practice of all types of physicians in Poland who care for patients with NLUTD.

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Section: Discussionmentioning

confidence: 94%

Neurogenic bladder symptom score: Polish translation, adaptation and validation of urinary disorder‐specific instrument for patients with neurogenic lower urinary tract dysfunction

Przydacz

Dudek

Gołąbek

et al. 2020

Int. J. Clin. Pract.

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“…In the light of recommendations regarding exercising by SCI subjects of 2015 [12], this may indicate a lack of awareness of the patients in relation to assessment of needs and necessity of APTE. This may results from a gap in the system of supervision and counselling in the aspect of encouraging patients to participate in the exercises, which may be observed in the long-term care of SCI patients in Poland [27].…”

Section: Discussionmentioning

confidence: 99%

Adherence to prescriptions of therapeutic exercises in patients with traumatic spinal cord injury

Frasuńska¹,

Tederko²,

Wasiak

et al. 2021

Ann Agric Environ Med.

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Introduction and objective. Spinal cord injury (SCI), which disrupts motor, sensory and autonomic functions, causes significant changes in the functioning of an individual. It is believed that most of the conditions secondary to SCI, i.e. osteoporosis, spasticity or cardiopulmonary diseases, are associated with immobility. The aim of the study is to assess the adherence to prescriptions of therapeutic exercises (APTE) in patients with SCI after acute phases of rehabilitation. Materials and methods. The criterionfor APTE recognition was the performance at least twice a week for a minimum of 30 minutes of active exercises with resistance, and exercises maintaining the range of movement of the joints The research tools were own questionnaire and the WHOQOL-BREF scale. Results. 46 subjects (63.9%) met the APTE criteria. The most frequent place for performing the exercises was the subject's home with 43 subjects (93.5%) with APTE performed the exercises in their homes. 17 subjects (36.9%) with APTE performed exercises during stays at various rehabilitation centres. The main cause for the lack of APTE was the limited availability of facilities considered necessary by the respondents to adhere to the instructions. In statistical analysis, the level of neurological injury correlated with meeting the APTE criteria. It was discovered that a subjective assessment of the exercise dose correlated with the place where the exercises were performed, but did not correlate with meeting the APTE criteria. Conclusions. The basic place for performing exercises (as instructed in hospital) was the subject's home. Limited access to reimbursed environmental therapy resulted in an increased cost of exercises supervised by commercially-employed physiotherapists. The current gaps in the system of supervision and counselling of subjects post-SCI necessitate changes in the Polish health care system.

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“…The International SCI Community Survey articles included in this review were conducted in the following countries: Spain, 20 Italy, 21 Germany, 22 Portugal, 23 Malaysia, 24 Switzerland, 25 Korea, 26 South Africa, 27 Lithuania, 28 Thailand, 29 the Netherlands, 30 Greece, 31 China, 32 United States of America, 33 Norway, 34 Poland, 35 Indonesia, 36 New Zealand, 37 and Israel. 38 By participating in the survey, each country described the epidemiology of SCI, the person with SCI's FIG.…”

Section: Descriptions Of the State Of Sci Carementioning

confidence: 99%

“…Ultimately, the reports summarized the country's current model of care for persons with SCI, highlighted gaps in the models of care, and provided recommendations for future research or changes to care. [20][21][22][23][24][25][26][27][28][29][30][31][32][33][34][35][36][37][38] The scope of the challenges persons with SCI encounter in accessing timely and appropriate healthcare services, specifically through primary care and challenges with payment for health services in the context of the U.S. were described in one article. 39 Three mutually reinforcing solutions with the potential to better meet the post-rehabilitation needs of persons with SCI included patient education and health behavior change (e.g., self-management and peer support), smoother transitions into community healthcare, and customized care delivery.…”

Section: Descriptions Of the State Of Sci Carementioning

confidence: 99%

Models of Care Delivery from Rehabilitation to Community for Spinal Cord Injury: A Scoping Review

Atchison

Noonan

et al. 2021

Journal of Neurotrauma

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Spinal cord injury (SCI) is a chronic condition that results in high healthcare utilization and lifetime cost across the care continuum. In the absence of a standardized model of care delivery for SCI in western countries such as Canada, a scoping review of the literature was performed to identify and summarize existing international SCI models of care delivery. Four databases were searched using key words and subject headings for concepts such as: ''spinal cord injury,'' ''delivery of healthcare,'' ''model of care,'' ''patient care planning,'' and ''care pathway.'' Title, abstract, and full text review were competed by two independent reviewers. A combined total of 46 peer-reviewed and gray literature articles were included. No single SCI model of care has been adopted across different countries internationally. However, optimal attributes of models of care were identified, including the importance of having multidisciplinary SCI specialty care providers along the continuum, provision of rural SCI services and outreach, integration of primary care, peer mentoring, and using a hub and spokes model of care. These findings inform the future development of an SCI model of care, which ideally would serve all geographical locations and span the continuum of care, improving the health status and quality of life of persons with SCI.

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People with Spinal Cord Injury in Poland

Cited by 10 publications

References 3 publications

Neurogenic bladder symptom score: Polish translation, adaptation and validation of urinary disorder‐specific instrument for patients with neurogenic lower urinary tract dysfunction

Neurogenic bladder symptom score: Polish translation, adaptation and validation of urinary disorder‐specific instrument for patients with neurogenic lower urinary tract dysfunction

Adherence to prescriptions of therapeutic exercises in patients with traumatic spinal cord injury

Models of Care Delivery from Rehabilitation to Community for Spinal Cord Injury: A Scoping Review

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