People with intellectual disability and human science research: A systematic review of phenomenological studies using interviews for data collection

Corby, Deirdre; Taggart, Laurence; Cousins, Wendy

doi:10.1016/j.ridd.2015.09.001

Cited by 74 publications

(53 citation statements)

References 44 publications

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“…Bereavement research in LD populations has increased (Todd, Bernal, & Forrester‐Jones, ) but has predominately focused on observation of behaviour change or mental health (Dodd, Dowling, & Hollins, ). The need to “give voice” to PWLD continues to be highlighted (Corby, Taggart, & Cousins, ; Gilrane‐McGarry & Taggart, ). Difficulty recruiting PWLD in research has been well documented (Cameron & Murphy, ) and is further confounded by sensitive topics.…”

Section: The Absence Of Pwld's Voices In Bereavement Researchmentioning

confidence: 99%

“…Corby et al. () conducted a systematic review of the phenomenological research that has endeavoured to “give voice” to PWLD. Of the 28 papers reviewed, none related to bereavement, although two explored ageing.…”

Section: The Absence Of Pwld's Voices In Bereavement Researchmentioning

confidence: 99%

“…Bereavement research in LD populations has increased (Todd, Bernal, & Forrester-Jones, 2013) but has predominately focused on observation of behaviour change or mental health (Dodd, Dowling, & Hollins, 2005). The need to "give voice" to PWLD continues to be highlighted (Corby, Taggart, & Cousins, 2015;Gilrane-McGarry & Taggart, 2007).…”

Section: The Absence Of Pwld's Voices In Bereavement Researchmentioning

confidence: 99%

“…Research that has recruited PWLD has acknowledged the role "gatekeepers" have had in facilitating recruitment (McEvoy et al, 2012;McRitchie, McKenzie, Quayle, Harlin, & Neumann, 2014) which may have biased the sample. Corby et al (2015) conducted a systematic review of the phenomenological research that has endeavoured to "give voice" to PWLD. Of the 28 papers reviewed, none related to bereavement, although two explored ageing.…”

Section: The Absence Of Pwld's Voices In Bereavement Researchmentioning

confidence: 99%

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“I carry her in my heart”: An exploration of the experience of bereavement for people with learning disability

Thorp

Stedmon

Lloyd

2018

Brit J Learn Disabil

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Accessible summary Four people with learning disability talked about what it was like when someone they cared about had died. They said that it was important they were included, but that it was hard. They said they carried on loving the person after they died and that they missed them. Abstract BackgroundBereavement is a universal experience, yet little research has explored the lived experience of bereavement for people with learning disability (PWLD). Materials and methodsFour PWLD were interviewed about their experience of bereavement. Data were analysed using interpretative phenomenological analysis. ResultsFour themes were identified: “Needing to know: Being included,” “Struggling to say: The emotional experience,” “Love after death: A continuing relationship” and “Missing their presence: The wider impact of death.” ConclusionsPWLD should have the opportunity to make informed choices about their level of involvement and to develop their emotional experience. PWLD should be supported to develop a continued bond with the deceased and the wider impact of their loss recognised.

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Section: The Absence Of Pwld's Voices In Bereavement Researchmentioning

confidence: 99%

Section: The Absence Of Pwld's Voices In Bereavement Researchmentioning

confidence: 99%

Section: The Absence Of Pwld's Voices In Bereavement Researchmentioning

confidence: 99%

Section: The Absence Of Pwld's Voices In Bereavement Researchmentioning

confidence: 99%

See 2 more Smart Citations

“I carry her in my heart”: An exploration of the experience of bereavement for people with learning disability

Thorp

Stedmon

Lloyd

2018

Brit J Learn Disabil

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“…Phenomenology, proposed by philosopher Edmund Husserl, is a philosophical methodology [11]. Phenomenological researchers believe that people usually cognitive the world through direct experience and ideological processing, which is called ‘phenomenological method’ in the field of physics.…”

Section: Theoriesmentioning

confidence: 99%

A research on syndrome element differentiation based on phenomenology and mathematical method

et al. 2017

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BackgroundAs an empirical medical system independent of conventional Western medicine (CWM), over thousands of years, traditional Chinese medicine (TCM) has established its own unique method of diagnosis and treatment. The perspective of holism and system in TCM is essentially different from the view of Reductionism in CWM. With the development of modern science and technology, the restriction of reductionism is more and more prominent, and researchers begin to pay more attention to holistic thinking in TCM. Confronted with the above situation, there is an urgent need to explore the diagnosis of TCM by the techniques of modern science.MethodsTo explore the feasibility of using modern science to describe and realize the diagnosis of TCM, in this paper, a method of syndrome element differentiation based on phenomenology is proposed. The proposed method is implemented by mathematical mapping, and then it is testified through analysis of 670 medical records: Based on the original mapping data between two data sets (set of syndrome elements and set of clinical manifestations), new mapping data is generated, and thus the corresponding quantitative diagnostic results are calculated and evaluated. Finally, knowledge discovery of the diagnosis results based on attribute partial-ordered structure diagram is conducted.ResultsThe value order’s matching results between original and new results show that the matched degree of each record is no less than 65%, while there are at least 87% records whose matched degree is more than 80%. In addition, the knowledge discoveries of new results are basically identical with the ones of original results as well.ConclusionUsing phenomenology to describe syndrome differentiation should be feasible, and further research on mapping relations between various sets (symptoms, formulas, drugs) of TCM should be conducted and evaluated through clinical trials in future.Electronic supplementary materialThe online version of this article (doi:10.1186/s13020-017-0141-1) contains supplementary material, which is available to authorized users.

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The lived experiences of individuals with high‐functioning autism during the job interview process: A phenomenological study

Ellestad,

Beymer,

Villegas

2023

Journal of Employment Couns

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Individuals with high‐functioning autism (HFA) have demonstrated they have many significant benefits that they can contribute to an employer. However, given their social and behavioral differences, many individuals find themselves unemployed or underemployed. Presented here is a phenomenological study consisting of 12 self‐identified HFA adults, which analyzes the lived experiences of these individuals specifically during a job interview. Four major themes emerged from this study: Interview Structure, Perceived Competency, Social Camouflaging, and Forced Normality. The findings of this study are clear that the standard interview processes used cause undue stress and anxiety for neurodivergent populations.

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People with intellectual disability and human science research: A systematic review of phenomenological studies using interviews for data collection

Cited by 74 publications

References 44 publications

“I carry her in my heart”: An exploration of the experience of bereavement for people with learning disability

“I carry her in my heart”: An exploration of the experience of bereavement for people with learning disability

A research on syndrome element differentiation based on phenomenology and mathematical method

The lived experiences of individuals with high‐functioning autism during the job interview process: A phenomenological study

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