‘People like me don't make things like that’: Participatory video as a method for reducing leprosy-related stigma

Peters, Ruth; Zweekhorst, Marjolein; Brakel, Wim H. van; Bunders, Joske; Irwanto, Irwanto

doi:10.4324/9781315192536-10

Cited by 7 publications

(27 citation statements)

References 1 publication

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“…The most represented countries were Indonesia, [27][28][29][30][31] India [32][33][34][35] and the United Kingdom. [36][37][38][39] Study designs varied considerably: 3 (cluster-)randomized controlled trials, 27,28,39 2 quasi-experimental studies, 29,32 3 case-control studies [40][41][42] and 3 cohort studies 35,37,43 were supplemented by 5 qualitative studies, 30,33,34,44,45 2 case studies 31,38 and a secondary data analysis. 36 The 19 included studies referred to 15 different intervention programmes.…”

Section: Study Characteristicsmentioning

confidence: 99%

“…36 The 19 included studies referred to 15 different intervention programmes. One project pursued 4 different intervention approaches described in 4 publications; [27][28][29][30] results of another programme were described in 2 publications. 44,45 All interventions aimed at reducing stigmatization for a particular group of patients with a visible chronic skin disease.…”

Section: Study Characteristicsmentioning

confidence: 99%

“…44,45 All interventions aimed at reducing stigmatization for a particular group of patients with a visible chronic skin disease. Of the 15 programmes, 9 addressed patients with leprosy [27][28][29][30][32][33][34][35][40][41][42]44,45 while 1 programme each focused on patients with onychomycosis, leg ulcer, 36 facial disfigurement, 37 atopic dermatitis, 38 vitiligo 39 and alopecia. 31 Ten studies focussed on the reduction in self-stigma, 29,[34][35][36][37][38][39]41,43,46 4 on public stigma by addressing the general public or specific groups such as schoolchildren, medical staff or family members.…”

Section: Study Characteristicsmentioning

confidence: 99%

“…28,32,40,42 Another 5 studies aimed at reducing public stigma and selfstigma. 27,30,33,44,45 Same as the target group, the sample size under study varied considerably and ranged from 2 to 1711 participants.…”

Section: Study Characteristicsmentioning

confidence: 99%

See 3 more Smart Citations

Strategies to reduce stigma related to visible chronic skin diseases: a systematic review

Topp

Andrees

Weinberger

et al. 2019

Acad Dermatol Venereol

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Many patients with a visible chronic skin disease experience discrimination and stigmatization. This results in psychosocial impairments in addition to the burden of disease and emphasizes the urgency to implement effective stigma‐reduction strategies. To synthesize what is known globally about effective interventions to reduce stigma associated with visible chronic skin diseases, a systematic review was conducted. Four electronic databases were searched until May 2018. Studies evaluating interventions to reduce stigmatization in patients with visible chronic skin diseases and applying at least one stigma‐related outcome measure were included. Data were extracted on study design, country, study population, outcome measures and main findings. Results were subsequently synthesized in a narrative review. Critical Appraisal Skills Programme tools were used to assess study quality. Nineteen studies were included in the review. Study design was very heterogeneous and study quality rather poor. Thirteen studies addresses patients with leprosy in low‐ and middle‐income countries, and one study each targeted patients with onychomycosis, leg ulcer, facial disfigurement, atopic dermatitis, vitiligo and alopecia. Evaluated interventions were mainly multi‐faceted incorporating more than one type of intervention. While 10 studies focused on the reduction in self‐stigma and 4 on the reduction in public stigma, another 5 studies aimed at reducing both. The present review revealed a lack of high‐quality studies on effective approaches to reduce stigmatization of patients with visible chronic skin diseases. Development and evaluation of intervention formats to adequately address stigma is essential to promote patients’ health and well‐being.

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Section: Study Characteristicsmentioning

confidence: 99%

Section: Study Characteristicsmentioning

confidence: 99%

Section: Study Characteristicsmentioning

confidence: 99%

Section: Study Characteristicsmentioning

confidence: 99%

See 2 more Smart Citations

Strategies to reduce stigma related to visible chronic skin diseases: a systematic review

Topp

Andrees

Weinberger

et al. 2019

Acad Dermatol Venereol

View full text Add to dashboard Cite

show abstract

“…Table describes the principal characteristics of the 30 studies included . They came from seven countries belonging to two WHO regions, Southwest Asia (20 programmes) and Africa (10 programmes) . The countries where most programmes were implemented were India (eight interventions) and Indonesia (seven interventions) .…”

Section: Resultsmentioning

confidence: 99%

Scoping review: Community‐based programmes with people affected by leprosy

Martos-Casado

Vives‐Cases

Gil-González

2019

Tropical Med Int Health

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objective To analyse community intervention programmes for people affected by leprosy in 'global priority countries'.methods Scoping review of articles in the databases PubMed, Scopus, SciELO, Lilacs and Web of Knowledge that made reference to community intervention programmes aimed at people affected by leprosy in global priority countries and which presented an evaluation of results. Analytical variables analysed were methodological characteristics of the study, type of intervention classified according to the Community-Based Rehabilitation Matrix, indicators and results of the evaluation, and the degree of participation of the community, which was graphically represented as a spidergram.results Thirty articles met the inclusion criteria. They were mostly related to the health component of the RBC matrix and aimed at the adult population. All evaluated the indicators used positively. The degree of participation generally ranged between mobilisation and collaboration.conclusion Community intervention programmes for people affected by leprosy have a positive effect on health. There are attempts to include affected people and the community in implementing these programmes, but it is not possible to establish a direct relationship with effects of their participation on health due to the study designs used. Future research using more robust methods that include leprosy patients are necessary to evaluate the effectiveness of community participation.keywords leprosy, community programmes, RBC matrix, health indicators, community participation Sustainable Development Goals (SDGs): SDG 1 (no poverty), SDG 3 (good health and well-being), SDG 5 (gender equity)

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Collaborative Filmmaking: A Participatory, Visual Research Method

Baumann

Lhaki²,

Burke

2020

Qual Health Res

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Filmmaking is a visual method that provides a unique opportunity for generating knowledge, but few studies have applied filmmaking in public health research. In this article, we introduce Collaborative Filmmaking as a public health research method, including a description of the six steps for implementation and an illustrative example from Nepal. Collaborative Filmmaking is an embodied, participatory, and visual research method in which participants are trained to create, analyze, and screen films to answer a research question. The method is useful for exploring sensitive health topics and providing nuanced insight into practices, relationships, and spaces that are difficult to capture using existing methods; however, its use requires close attention to ethical considerations. Building upon the trajectory of other visual and community-based research methods, Collaborative Filmmaking is valuable for gathering granular details and sensory data, co-analyzing data in partnership with participants, and producing participant-generated films that serve as powerful and authentic advocacy tools.

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‘People like me don't make things like that’: Participatory video as a method for reducing leprosy-related stigma

Cited by 7 publications

References 1 publication

Strategies to reduce stigma related to visible chronic skin diseases: a systematic review

Strategies to reduce stigma related to visible chronic skin diseases: a systematic review

Scoping review: Community‐based programmes with people affected by leprosy

Collaborative Filmmaking: A Participatory, Visual Research Method

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