People diagnosed with dementia in Sweden: What type of home care services and housing are they granted? A cross-sectional study

Odzakovic, Elzana; Hydén, Lars–Christer; Festin, Karin; Kullberg, Agneta

doi:10.1177/1403494818755600

Cited by 37 publications

(55 citation statements)

References 20 publications

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“…In addition, onefifth of people with dementia utilize day centres. International studies have reported similar tendencies of low use of community healthcare services (Brandao, Ribeiro, & Martin, 2016;Nelson et al, 2002;Odzakovic, Hyde´n, Festin, & Kullberg, 2018). Simultaneously, the unmet care needs among persons with dementia and their family caregivers are substantial (Black et al, 2013;Forbes, Morgan, & Janzen, 2006;Kerpershoek et al, 2017;van der Roest et al, 2009).…”

Section: Introductionmentioning

confidence: 93%

“…Notably, male care recipients used more respite care services than female care recipients, whereas male family caregivers reported the use of fewer services than female family caregivers. Female caregivers might have increased need for these services, as they are more likely to cohabit with the care recipient (Odzakovic et al, 2018) and to report higher levels of burden and depression, and lower levels of subjective well-being and physical health (Pinquart & Sorensen, 2006). The use of home-based and respite care service was more frequent among those who lived in urban areas compared to those who lived in rural areas.…”

Section: Factors Associated With the Use Of Servicesmentioning

confidence: 99%

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Factors affecting the use of home-based services and out-of-home respite care services: A survey of family caregivers for older persons with dementia in Northern Norway

et al. 2018

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Background: Family caregivers contribute substantially to the care for older home-dwelling people with dementia, although community healthcare services tend to be underutilized. In this /home/dem study, we aimed to explore the use and predictors of use of home-based and out-of-home respite care services available to older home-dwelling persons with dementia, as reported by the family caregivers. Method: A cross-sectional survey was administered to family caregivers (n = 430) in Northern Norway during April to November 2016. The use of healthcare services was categorized into two types according to principal component analysis: home-based services and out-of-home respite care services (R 2 = 44.1%). Predictors of service use were examined with bivariate correlation, multiple linear regression, and Poisson regression analyses. Results: The use of home-based services among persons with dementia was significantly higher for persons with advanced age, persons living in urban areas, persons living in an assisted living facility, persons living alone, and persons able to manage being alone for a short period of time. Among the family caregiver variables, higher age, status as a daughter, son, or other family member, higher educational level, and full-time employment also predicted greater use of home-based services. Same ethnicity was associated with use of fewer home-based services. The use of out-of-home respite care services was significantly higher among male persons with dementia and among those living in urban areas. In addition, fewer out-of-home respite care services were used by male caregivers or daughters of the care recipient, while the use was higher when the caregivers experienced more caregiving demands or had provided care for longer periods of time. Conclusions:These results indicate areas that policymakers and healthcare providers should consider to identify families who underutilize healthcare services and to achieve a more equal and efficient allocation of services in accordance with families' needs.

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Section: Introductionmentioning

confidence: 93%

Section: Factors Associated With the Use Of Servicesmentioning

confidence: 99%

Factors affecting the use of home-based services and out-of-home respite care services: A survey of family caregivers for older persons with dementia in Northern Norway

et al. 2018

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“…Existing research has shown that people with dementia are at risk of becoming isolated in their homes (Aminzadeh, Dalziel, Molnar, & Garcia, 2010;World Health Organization, 2012). In Sweden, a great majority of people with dementia (about 72 percent) are living at home and around half of these are in single households (Odzakovic, Hydén, Festin, & Kullberg, 2018).…”

Section: Introductionmentioning

confidence: 99%

‘Overjoyed that I can go outside’: Using walking interviews to learn about the lived experience and meaning of neighbourhood for people living with dementia

et al. 2018

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This study explores the relationships between people living with dementia and their neighbourhood as they venture out from home on a regular and often routine basis. Here, we report findings from the Swedish fieldsite of an international 5-year project: Neighbourhoods: our people, our places. The aims of this study were to investigate the lived experience of the neighbourhood for people with dementia and through this to better understand the meaning that neighbourhood held for the participants. In this study, we focus on the walking interviews which were conducted with 14 community-dwelling people with dementia (11 men and 3 women) and were analysed using an interpretative phenomenological method. Four themes were revealed from these interviews: life narratives embedded within neighbourhood; the support of selfhood and wellbeing through movement; the neighbourhood as an immediate social context; and restorative connections to nature. These themes were distilled into the 'essence' of what neighbourhood meant for the people we interviewed: A walkable area of subjective significance and social opportunity in which to move freely and feel rejuvenated. We have found that the neighbourhood for community-dwelling people with dementia holds a sense of attachment and offers the potential for freedom of movement. Our research indicates that a dementia diagnosis doesn't necessarily reduce this freedom of movement. The implications for practice and policy are considered: future research should explore and pay closer attention to the diverse living conditions of people living with dementia, and not least the particular challenges faced by people living alone with dementia.

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“…These numbers are expected to nearly double over the next 20 years (Wimo et al, 2014). A recent study showed that 72 per cent of all people diagnosed with dementia live in ordinary housing (Odzakovic, Hyd en, Festin, & Kullberg, 2019). This should be seen in addition to the fact that 75 per cent of all people 80 years or older in the Nordic countries live in single households (Nordic Welfare Centre, 2013a, 2013b.…”

Section: Introductionmentioning

confidence: 99%

Risks as dilemmas for home care staff caring for persons with dementia

Sandberg

Borell

Rosenberg

2020

Aging & Mental Health

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Objectives: Many persons with dementia live at home with support from home care services. Despite this, research is scarce concerning how risks in daily life among persons with dementia are perceived and handled by home care staff. This study aimed to explore how home care staff identify risks in the everyday lives of persons with dementia, and to inquire into how they reasoned about their own actions related to those risks. Method: A qualitative approach was applied for the study. Both individual interviews and focus groups were conducted with home care staff (n ¼ 23). Data was analysed using a constant comparative method. Results: Identifying, reasoning and acting upon risks in the everyday lives of persons with dementia were related to several dilemmas for the home care staff. These dilemmas are described and elaborated on in three categories: 1) Strategies for tracking risks, 2) Dilemmas concerning where to draw the line and deciding when to act, and 3) Dilemmas when acting on risks. Conclusion: The study provides new knowledge about the dilemmas that staff in home care services may face and how they reason about managing risks in the homes of persons with dementia. The study shows that the staff had to weigh risk and safety against the autonomy of persons with dementia. Based on these findings, we want to highlight the importance of competence among home care staff and the organizational conditions that must exist in order to manage the challenges of risky situations.

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People diagnosed with dementia in Sweden: What type of home care services and housing are they granted? A cross-sectional study

Cited by 37 publications

References 20 publications

Factors affecting the use of home-based services and out-of-home respite care services: A survey of family caregivers for older persons with dementia in Northern Norway

Factors affecting the use of home-based services and out-of-home respite care services: A survey of family caregivers for older persons with dementia in Northern Norway

‘Overjoyed that I can go outside’: Using walking interviews to learn about the lived experience and meaning of neighbourhood for people living with dementia

Risks as dilemmas for home care staff caring for persons with dementia

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