Penile cancer information on the internet: a needle in a haystack

Teh, Jiasian; Hoog, Stephanie Op't; Nzenza, Tatenda; Duncan, Catriona; Wang, Judy; Radojcic, Matija; Feng, Cheng; Lawrentschuk, Nathan

doi:10.1111/bju.14532

Cited by 16 publications

(13 citation statements)

References 17 publications

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“…However, this could only be achieved if this knowledge was readily available for all members in the society [28]. For instance, campaigns to raise cancer awareness among certain ethnic groups would not be effective if disparities in access to digital and social media were present [29].…”

Section: Discussionmentioning

confidence: 99%

Ethnic and socio‐economic disparities in prostate cancer screening: lessons from New Zealand

2020

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To investigate the presence of ethnic and socio-economic disparities in prostate cancer (PCa) screening and identify its impact on cancer outcomes. Materials and MethodsFrom January 2008 to December 2017, all men in the Northern region of New Zealand who had a prostate-specific antigen (PSA) test performed in the community were identified from the electronic laboratory reports database. Asymptomatic men, with no known diagnosis of PCa, were included. Variables collected were age, ethnicity, social deprivation, medical therapy, PSA test information and cancer data. Disparities were investigated by comparing the frequency of PSA testing, proportions of men screened, and rates of cancer detection, between M aori (indigenous) and non-M aori ethnic groups. ResultsThe study cohort included 248 491 men, who each received approximately 3.45 PSA tests over the 10-year study period. M aori men were less likely to be tested compared to non-M aori men (25.4% vs 46.1% of the total aged-matched region population; P < 0.001). Moreover, they received less frequent PSA testing irrespective of their deprivation status (mean difference of 0.97 PSA tests per person; P < 0.001). The higher testing frequency in non-M aori men was associated with increased PCa diagnosis rates. Nevertheless, cancers detected in M aori men were 73% more likely to be of high grade (Gleason 8 or above), compared to those in non-M aori men. ConclusionThere were significant ethnic disparities in PCa screening rates in the Northern region of New Zealand. M aori men, regardless of other demographic factors, were disproportionately affected. The difference in the rates of screening by ethnicity had influenced the incidence and clinical significance of the diagnosed cancers.

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Section: Discussionmentioning

confidence: 99%

Ethnic and socio‐economic disparities in prostate cancer screening: lessons from New Zealand

2020

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“…Most studies were conducted in European and US contexts, with almost no evidence emerging from the Asia‐Pacific, including Australia. As the next generation of patients develop cancers such as BCa and penile cancer, there will be significant changes in how they interact with online information to manage their condition . It is therefore very important to assess how patients with BCa are accessing information and to determine the quality of that information.…”

Section: Discussionmentioning

confidence: 99%

Assessment of the use of the Internet and social media among people with bladder cancer and their carers, and the quality of available patient‐centric online resources: a systematic review

et al. 2019

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ObjectiveTo conduct a systematic synthesis of the literature evaluating the use of the Internet and social media by people with bladder cancer (BCa) and their carers, and to synthesize the evidence on the quality of available online resources for patients with BCa.Methods , written in the English language and meeting the inclusion criteria. Data sources included PubMed, PsycINFO, EMBASE, Web of Science and Scopus. ResultsA total of 15 studies were included in the review. Four studies explored patterns of Internet use among patients with BCa, five studies investigated social media use related to BCa and six studies evaluated the quality of online resources available for patients with BCa. Evidence in all these three dimensions was limited in its ability to establish rigorously if use of the Internet, social media and online resources for BCa is effective in improving the care outcomes for patients with BCa. ConclusionOur review emphasizes the forgotten status of BCa by establishing that, despite its high global incidence, it remains underrepresented in the building of evidence on patient information needs and the possible role of online spaces. Our synthesis establishes that further research is needed to examine the full impact of online information and social media use on the health management of people with BCa.

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“…The methods used to evaluate websites in this study have been previously described by Teh et al . [12]. A web search was performed using the Google search engine for 36 terms linked to urological anatomy, procedures, and conditions (the full list can be viewed in Table 2).…”

Section: Methodsmentioning

confidence: 99%

Online urological educational material for medical students: can search engines be trusted?

Gunasegaram

Ong²,

Swann

et al. 2021

BJU International

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Objectives To determine the credibility of online urological information that medical students are likely to encounter, determine possible discrepancies between the credibility of information pertaining to different areas within urology (especially those less relevant to patients), and assess trends in the sponsorship of online urological educational material. Materials and Methods Health on the Net (HON) principles were used as a validated benchmark to assess the reliability of websites that appeared in the first 150 results of a search using the Google search engine. A variety of urological search terms were used, grouped into three broad categories with varying relevance to patients and medical students. Further analysis focussed on the sponsorship of assessed websites. Results A total of 5400 websites were assessed for validation over a set of 36 search terms. Only 843/5400 (15.6%) of these were HONcode accredited, indicating a large proportion of unverified and potentially unreliable information. Search engine rankings usually favoured accredited websites (P = 0.009), and accreditation peaked at 51.1% (184/360) in the first page of results, but sorting became weaker outside the highest search results. The percentage of accredited websites varied significantly between different subcategories of search terms such as conditions (18.3% [329/1800], P = 0.003) and procedures (13.5% [243/1800], P = 0.043). Governmental/educational and commercial sources supported the majority of websites assessed for sponsorship (21% [31/150] and 33% [49/150], respectively), and the former were more likely to rank highly in search results. Conclusion Online urological information frequently lacks validation and is often of indeterminate credibility. There is a marked decrease in the proportion of accredited websites beyond the highest‐ranked results and when considering search categories more relevant to students and less relevant to patients. Students cannot necessarily rely on free online sources for accurate information and could benefit from the development of more rigorous novel tools and platforms.

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Penile cancer information on the internet: a needle in a haystack

Cited by 16 publications

References 17 publications

Ethnic and socio‐economic disparities in prostate cancer screening: lessons from New Zealand

Ethnic and socio‐economic disparities in prostate cancer screening: lessons from New Zealand

Assessment of the use of the Internet and social media among people with bladder cancer and their carers, and the quality of available patient‐centric online resources: a systematic review

Online urological educational material for medical students: can search engines be trusted?

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