Peer support groups after acquired brain injury: a systematic review

Hughes, Rachel; Fleming, Pete; Henshall, Lauren

doi:10.1080/02699052.2020.1762002

Cited by 40 publications

(18 citation statements)

References 34 publications

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“…Meanwhile, the sharing of resources between individuals from diverse backgrounds united by social and/or cultural cleavages also provide the grounds for bridging social capital, increasing acquisition of knowledge and social resources which facilitate adaptability and successful self-management [ 37 ]. Moreover, the experience of mutual identification, shared understanding, and sense of belonging in this context may foster positive psychological and physical health outcomes in individuals with chronic conditions [ 89 ], and improve quality of life [ 90 ] and adjustment [ 91 ] in individuals with acquired brain injury.…”

Section: Resultsmentioning

confidence: 99%

Riding the wave into wellbeing: A qualitative evaluation of surf therapy for individuals living with acquired brain injury

et al. 2022

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Nature has long demonstrated the capacity to facilitate wellbeing. Interventions involving the natural environment such as surf therapy, are increasingly being used to facilitate aspects of wellbeing in clinical populations. However, explorations of how nature-based interventions such as surf therapy may be used to promote wellbeing in the context of neurorehabilitation are missing from the peer-reviewed literature. Here we characterize the experience of a five-week surfing intervention involving fifteen adults living with the psycho-social and cognitive sequelae of acquired brain injury. Insights were analysed using reflexive thematic analysis, which highlighted the importance of seven overarching themes, including: 1) Connection to Nature, 2) Facilitating Trust and Safety, 3) Managing and Accepting Difficult Emotions, 4) Facilitating Positive Emotion, Meaning and Purpose, 5) Building Community through Social Connection, and 6) Positive Change. Barriers and opportunities (theme 7) were also identified as components on which clinical services may be improved. We present a theoretical model for the benefits of surf therapy in people living with acquired brain injury (ABI) based on these themes and reflections on findings from the wider literature. Findings emphasise the importance of leveraging community partnerships to augment the holistic model of neurorehabilitation and potential implications for service redesign are discussed, focusing on recent developments in wellbeing science.

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Section: Resultsmentioning

confidence: 99%

Riding the wave into wellbeing: A qualitative evaluation of surf therapy for individuals living with acquired brain injury

et al. 2022

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“…Numerous positive perceived impacts of peer support in individuals with TBI were identified in the current study, consistent with benefits identified in previous studies. For example, improved feelings of acceptance and empowerment, knowledge of TBI, overall quality of life, ability to cope with depression, ability to obtain friendships, sharing of coping strategies, and perceived social support have been previously demonstrated [ 10 – 12 , 38 ].…”

Section: Discussionmentioning

confidence: 99%

Using an integrated knowledge translation approach to inform a pilot feasibility randomized controlled trial on peer support for individuals with traumatic brain injury: A qualitative descriptive study

et al. 2021

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Introduction Traumatic brain injury (TBI) is estimated to affect 10 million people annually, making it a leading cause of morbidity and mortality worldwide. One cost-effective intervention that has been shown to minimize some of the negative sequelae after TBI is peer support. However, the evidence supporting the benefits of peer support for individuals with TBI is sparse and of low quality. Integrated knowledge translation (iKT) may be one approach to optimizing the evaluation of peer support programs among individuals with TBI. Therefore, the objectives are: (1) To understand key informants’ perspectives of the barriers and facilitators of participating in peer support research and programs among individuals with TBI; (2) to understand key informants’ perspectives on the perceived impacts of peer support programs on individuals with TBI; and, (3) to demonstrate how an iKT approach can inform the development and implementation of a pilot feasibility randomized controlled trial (RCT). Methods A qualitative descriptive approach using one-on-one semi-structured interviews was used. Purposive sampling of 22 key informants included 8 peer support mentors, 4 individuals with TBI who received peer support, 3 caregivers of individuals with TBI, 4 peer support program staff, and 3 academics in peer support and/or TBI. Results There were five main themes related to the barriers and facilitators to participating in peer support research and programs: knowledge, awareness, and communication; logistics of participating; readiness and motivation to participate; need for clear expectations; and matching. There were three main themes related to the perceived impact of peer support: acceptance, community, social experiences; vicarious experience/learning through others: shared experiences, role-modelling, encouragement; and “I feel better.” Discussions with our Research Partner led to several significant adaptations to our trial protocol, including removing the twice/week intervention arm, shortening of the length of trial, and changing the measure for the community integration outcome. Discussion/Conclusion This is the first study to use an iKT approach to inform a trial protocol and the first to assess the barriers and facilitators to participating in peer support research.

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“…Previous systematic reviews of peer support interventions for brain injury have examined peer support for the rehabilitation of individuals with acquired brain injury [23]; one-to-one peer mentoring for people with TBI [4], and; peer support groups following acquired brain injury [25]. However, the effects of peer support for individuals with TBI have only been studied in two other RCTs [24]: a 2012 study by Hanks et al [50] which included peer mentoring for individuals with TBI (n = 96) and their caregivers or significant others (n = 62), and a 2011 study by Struchen et al [51] which examined a social peer mentoring program for individuals with TBI (n = 30).…”

Section: Similarity Of Results From the Obia Peer Support Program To Previous Studiesmentioning

confidence: 99%

“…However, many of these studies discuss the need for further research on the adaptation of interventions to the needs of individuals, populations, and settings, as well as the optimal implementation of specific intervention components and sustainability of intervention outcomes. Recent systematic reviews which have been conducted on peer support for individuals with brain injury have focused on acquired brain injury, one-to-one peer mentoring, and peer support groups, with further investigation of specific intervention characteristics such as dosage, length, and communication type recommended [4,[23][24][25]. A systematic review conducted by members of our research team showed a notable absence of underlying theories supporting the majority of interventions [24].…”

Section: Introductionmentioning

confidence: 97%

A Pilot Feasibility Randomized Controlled Trial on the Ontario Brain Injury Association Peer Support Program

Levy

Luong

Bayley

et al. 2021

JCM

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Background: The long-term consequences of traumatic brain injury can create major barriers to community integration. Peer support represents a sustainable model of support across this transition. The objective of the current study was to determine the feasibility of conducting a randomized controlled trial on the Ontario Brain Injury Association Peer Support Program and the preliminary effectiveness of the program on community integration, mood, health-related quality of life, and self-efficacy; Methods: A pilot feasibility randomized controlled trial with an embedded qualitative component was conducted. Mentees with moderate-to-severe traumatic brain injury (n = 13) were randomized to a weekly intervention or waitlist control group. Interviews were conducted with a subset of mentees and peer mentors (n = 10). Integration of the quantitative and qualitative data was completed using a joint display approach; Results: No statistically significant results were found for community integration, mood, or self-efficacy; however, changes in these outcomes were accompanied by moderate-to-large effect sizes. Within health-related quality of life, the mean pain score of the intervention group was significantly lower than that of the control group at the two-month timepoint but not at completion. Interviews revealed proximal improvements in knowledge, skills, and goals, and identified two domains related to trial acceptability: (1) environmental context and resources, and (2) reinforcement; Conclusions: Given the conceivable importance of proximal improvements in domains such as knowledge, skills, and/or goals for the attainment of more distal outcomes, modifications to the existing Peer Support Program may be warranted. The introduction of program recommendations which promote discussion around particular domains may help facilitate long-term improvements in health outcomes.

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Peer support groups after acquired brain injury: a systematic review

Cited by 40 publications

References 34 publications

Riding the wave into wellbeing: A qualitative evaluation of surf therapy for individuals living with acquired brain injury

Riding the wave into wellbeing: A qualitative evaluation of surf therapy for individuals living with acquired brain injury

Using an integrated knowledge translation approach to inform a pilot feasibility randomized controlled trial on peer support for individuals with traumatic brain injury: A qualitative descriptive study

A Pilot Feasibility Randomized Controlled Trial on the Ontario Brain Injury Association Peer Support Program

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