PedsQL Gastrointestinal Symptoms Module

Varni, James W.; Bendo, Cristiane Baccin; Denham, Jolanda; Shulman, Robert J.; Self, Mariella M.; Neigut, Deborah A.; Nurko, Samuel; Patel, Ashish; Franciosi, James P.; Saps, Miguel; Verga, Barbara; Smith, Alicia; Yeckes, Alyson; Heinz, Nicole; Langseder, Annette; Saeed, Shehzad Ahmed; Zacur, George M.; Pohl, John F.

doi:10.1097/mpg.0000000000000414

Cited by 91 publications

(85 citation statements)

References 50 publications

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“…Perhaps, as suggested by De Los Reyes [21], some treatments may demonstrate better child outcomes when assessed by child self-report (e.g., cognitive behavior therapy for anxiety [internalizing symptoms] disorders in which the child is the focus of the intervention), and some treatments may demonstrate better child outcomes when assessed by parent proxy-report (e.g., behavioral parent training for conduct disorders (externalizing symptoms) in which the parent is the focus of the intervention). Finally, some treatments may demonstrate better child health outcomes when both the child and parent agree on the presence and severity of the symptoms (e.g., gastrointestinal symptoms in which both the child and parent agree [36], and concur that the symptoms warrant pharmaceutical and/or dietary intervention which may potentially enhance their joint adherence to the treatment regimen). Notably, prior research in children with emotional and behavioral problems referred to mental health clinics found that only 63 % of parent–child dyads agreed on the presence of even a single symptom or problem, with higher agreement on externalizing rather than internalizing symptoms or problems [37].…”

Section: Discussionmentioning

confidence: 99%

Item-level informant discrepancies between children and their parents on the PROMIS® pediatric scales

et al. 2015

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Objective The study objective was to describe the individual item-level discrepancies between children ages 8–17 years and their parents for the PROMIS® pediatric scales. Contextual effects on item-level informant discrepancies for the pediatric pain interference items were further analyzed conditional on whether the child, the parent, or anyone else in the household experienced chronic pain. Methods Parallel pediatric self-report and parent proxy-report items were completed by approximately 300 parent–child dyads depending on form assignment and individual nonresponse. Agreement between parent and child responses to individual items was measured using the polychoric correlation coefficient and weighted κ. The Chi-square test of symmetry was utilized for a comparison of the pattern of parent–child item discrepancies on the response scales, and the differences between the child and parent responses on the 1–5 item response scale are summarized. Results A continuum of higher item-level parent–child discrepancies was demonstrated starting with peer relationships, anger, anxiety, and depressive symptoms, followed by progressively lower parent–child discrepancies for energy, fatigue, asthma impact, pain interference, upper extremity, and mobility items. Parent–child discrepancies for pain interference items were lower in the context of chronic pain either in the child or in the parent. Conclusions Parent–child item-level discrepancies were lower for more objective or visible items than for items measuring internal states or less observable items measuring latent variables such as peer relationships and fatigue. Future research should focus on the child and parent characteristics that influence domain-specific item-level discrepancies, and under what conditions item-level parent–child discrepancies predict child health outcomes.

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Section: Discussionmentioning

confidence: 99%

Item-level informant discrepancies between children and their parents on the PROMIS® pediatric scales

et al. 2015

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“…The PedsQL GI Module (10) is also available to measure baseline GI-specific quality of life and could be used to assess changes in health status over time. These scales contribute to research and clinical practice by measuring changes on a broad spectrum of GI symptoms over time.…”

Section: Discussionmentioning

confidence: 99%

“…Recognizing the increasing importance of patient-reported outcomes (PROs) which integrate the patient’s perspective and the critical perspectives of parents into the assessment and treatment of patients (9–10), we developed child and parent report versions of the screening tools.…”

Section: Introductionmentioning

confidence: 99%

Screening for Psychosocial and Family Risk in Pediatric Gastrointestinal Disorders

Cunningham

Cho²,

Shaffer³

et al. 2016

J. pediatr. gastroenterol. nutr.

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Objectives Screening for psychosocial comorbidity is recommended for pediatric patients presenting at an initial gastroenterology (GI) outpatient consultation. We developed and evaluated the psychometric properties of the GI Screener to address the need for a screening tool specific to pediatric GI patients. Methods 128 patients (8–18 years old, 63% female) and 126 parents completed age-specific versions of the GI Screener and 3 validated psychosocial comparison instruments (The Behavioral Assessment System for Children, The Functional Disability Inventory, The General Functioning scale of the Family Assessment Device) at their initial GI consultation. (30%) of families repeated the measures two weeks later. We identified GI Screener content domains and retained items using exploratory factor analysis. We evaluated internal consistency, construct validity, cross-informant reliability, and test-retest reliability of the trimmed measures. Results Exploratory factor analysis identified two factors in both the parent and child scales: Symptom Impact and Emotional Functioning. Internal consistency estimates for the trimmed scales were good (Cronbach’s alpha >0.75) for both Child and Parent scales. We found that the GI Screener for both patient and parents had good construct validity. Cross-informant reliability between Parent and Child scales at baseline had an estimated correlation of 0.56, while intra class correlation coefficients between baseline and 2-week scores showed high test-retest reliability (>0.7). Conclusions The GI Screener is a brief, valid and reliable measure that can aid in identifying families who are at high risk for psychosocial comorbidity facilitating the targeted delivery of psychosocial intervention and efficient use of health care resources.

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“…Symptomatic gastroesophageal reflux is evaluated at 6 weeks, 12 weeks, 5 months and 1 year using the Infant Gastroesophageal Reflux Questionnaire Revised [31]. Gastrointestinal problems are measured at 30 months using the PedsQL-Gastrointestinal Symptoms Scale [32]. Measures of cardiometabolic health and systemic inflammation will be made using fasting blood collected from each participant at 3 years of age.…”

Section: Methodsmentioning

confidence: 99%

A comparison of intestinal microbiota in a population of low-risk infants exposed and not exposed to intrapartum antibiotics: The Baby & Microbiota of the Intestine cohort study protocol

et al. 2016

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BackgroundThe intestinal microbiota influences metabolic, nutritional, and immunologic processes and has been associated with a broad range of adverse health outcomes including asthma, obesity and Type 2 diabetes. Early life exposures may alter the course of gut microbial colonization leading to differences in metabolic and immune regulation throughout life. Although approximately 50 % of low-risk full-term infants born in Canada are exposed to intrapartum antibiotics, little is known about the influence of this common prophylactic treatment on the developing neonatal intestinal microbiota. The purpose of this study is to describe the intestinal microbiome over the first 3 years of life among healthy, breastfed infants born to women with low-risk pregnancies at full term gestation and to determine if at 1 year of age, the intestinal microbiome of infants exposed to intrapartum antibiotics differs in type and quantity from the infants that are not exposed.MethodsA prospectively followed cohort of 240 mother-infant pairs will be formed by enrolling eligible pregnant women from midwifery practices in the City of Hamilton and surrounding area in Ontario, Canada. Participants will be followed until the age of 3 years. Women are eligible to participate in the study if they are considered to be low-risk, planning a vaginal birth and able to communicate in English. Women are excluded if they have a multiple pregnancy or a preterm birth. Study questionnaires are completed, anthropometric measures are taken and biological samples are acquired including eight infant stool samples between 3 days and 3 years of age.DiscussionOur experience to date indicates that midwifery practices and clients are keen to participate in this research. The midwifery client population is likely to have high rates of breastfeeding and low rates of intervention, allowing us to examine the comparative development of the microbiome in a relatively healthy and homogenous population. Results from this study will make an important contribution to the growing understanding of the patterns of intestinal microbiome colonization in the early years of life and may have implications for best practices to support the establishment of the microbiome at birth.Electronic supplementary materialThe online version of this article (doi:10.1186/s12887-016-0724-5) contains supplementary material, which is available to authorized users.

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PedsQL Gastrointestinal Symptoms Module

Cited by 91 publications

References 50 publications

Item-level informant discrepancies between children and their parents on the PROMIS® pediatric scales

Item-level informant discrepancies between children and their parents on the PROMIS® pediatric scales

Screening for Psychosocial and Family Risk in Pediatric Gastrointestinal Disorders

A comparison of intestinal microbiota in a population of low-risk infants exposed and not exposed to intrapartum antibiotics: The Baby & Microbiota of the Intestine cohort study protocol

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