Pediatric Quality of Life in Congenital Hypothyroidism: an Indonesian Study

Rochmah, Nur; Faizi, Muhammad; Dewanti, Carrina Nenggar; Suryawan, Ahmad

doi:10.11106/ijt.2020.13.2.150

Cited by 5 publications

(3 citation statements)

References 31 publications

(27 reference statements)

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“…In 2014, the Indonesian Ministry of Health passed a decree mandating all states to conduct routine CH screening for all newborns. However, the cost was shifted towards states and individuals as this program was not yet funded by national health insurance or integrated into national health programs at that time [6,7].…”

Section: Brief Description Of Healthcare Profiles In Indonesiamentioning

confidence: 99%

An Insight into Indonesia’s Challenges in Implementing Newborn Screening Programs and Their Future Implications

Octavius,

Daleni,

Sagala

2023

Children

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Due to high entry barriers, countries might find it daunting to implement the NBS program, especially those just trying to start it. This review aims to discuss Indonesia’s barriers that hinder newborn screening (NBS) implementation while discussing the future implications. Literature in Pubmed and Google Scholar was scoured with keywords such as “Newborn Screening”, “Neonatal Screening”, “Indonesia”, “Asia Pacific”, “Barriers”, and “Challenges”. We also searched for relevant references in those published articles. Grey literature, such as state regulations, informative webinars on the topics by experts regarding current situations, and press releases by the Indonesian Minister of Health (MoH), was also searched. Newborn screening is no longer considered just a laboratory test but an array of well-harmonized systems that must be orchestrated well. Some of the barriers Indonesia faces in implementing NBS are a lack of prevalence data, ethical issues, infrastructure, cost-benefit analysis, logistical issues, government support, patient issues, a lack of commitments, and a lack of healthcare workers, specialization, and training. Government support with professional advocates and support groups, proper infrastructure, and a single-payer system for NBS programs are necessary to accelerate NBS programs in Indonesia.

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Section: Brief Description Of Healthcare Profiles In Indonesiamentioning

confidence: 99%

An Insight into Indonesia’s Challenges in Implementing Newborn Screening Programs and Their Future Implications

Octavius,

Daleni,

Sagala

2023

Children

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“…The study found the incremental cost-effectiveness ratio (ICER) of congenital hypothyroid children by comparing the cost (∆C) and the difference in the quality of life (∆QALY), which demonstrated savings of 13413 US dollars. In Indonesia, research conducted by Rochmah et al (2020) revealed that congenital hypothyroid children who received early hormone therapy had a significant difference in the quality of life (QALY) when compared to those who received treatment later. .…”

Section: Output Evaluationmentioning

confidence: 99%

The Evaluation of Congenital Hypothyroidsm Screening Program in Indonesia: A Literature Review

Setyaningsih

Wulandari

2022

J. Sci. n.a

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Congenital hypothyroidism is one of the main causes of mental retardation which can be prevented. Reasearch in 2020 found that the prevalence of congenital hypothyroidism in Indonesia was 1:1167. During the previous 18 years of impelementation of the Congenital Hypothyroidsm Screening Program (CHSP), it was found that only 4,6% of newborns. This study aims to conduct a literature review to identify problems and obtain information on improving the implementation of congenital hypothyroidism screening programs in Indonesia. This research was carried out between November-December 2021 and consists of a review of a range of research articles and journals which have been publishes within the last decade. Several studies have shown that during the implementation of the CHSP, several onstacles were found which hindered the effectiveness of the program, namely the lack of training for health workers, sources of financing which have not been fully borne by the center, accuracy of collection and sample delivery, and less than optimal management function in regulating the implementation of the program thus a more in-depth evaluation needed, especially in terms of economic benefits and the level of effectiveness of the screening program.

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“…SHK penting dilakukan mengingat dampaknya dimasa mendatang dapat mengganggu pertumbuhan dan perkembangan anak. Hasil penelitian yang dilakukan oleh Rochmah et al, (2020)…”

Section: Prinsip Physical Distancingunclassified

Kesesuaian Bidan Dalam Menerapkan Prosedur Pelayanan Persalinan Di PMB Pada Masa Pandemi Covid-19

Zulfa¹,

Hidayat²

2022

J. Curr. Health. Sci

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During the Covid-19 pandemic, all health care facilities including PMB have tried to adjust delivery services to the Covid-19 health protocol. This study aimed to explore in depth the suitability of midwives in implementing delivery service procedures at PMB during the Covid-19 pandemic. The research method uses a qualitative descriptive study with a phenomenological approach. Data was collected using one on one in-depth online interviews with 10 informants using a semi-structured interview guide, then manual analysis using thematic analysis was carried out. The results of data analysis show that the use of masks, the application of hand hygiene, Covid-19 screening, and postnatal care education have been carried out by the Covid-19 health protocol. On the other side, the use of personal protective equipment, installation of delivery chambers, use of masks by patients, application of physical distancing, sampling of congenital hypothyroid screening, and self-isolation 14 days before delivery has not been fully implemented according to the Covid-19 health protocol. Intensive socialization and guidance through training activities for midwives in PMB related to delivery service guidelines during the Covid-19 pandemic are essential. Abstrak: Selama pandemi Covid-19, seluruh fasilitas pelayanan kesehatan termasuk PMB telah berupaya menyesuaikan pelayanan persalinan sesuai dengan protokol kesehatan Covid-19. Tujuan penelitian ini untuk menggali secara mendalam kesesuaian bidan dalam menerapkan prosedur pelayanan persalinan di PMB pada masa pandemi Covid-19. Metode penelitian menggunakan studi deskriptif kualitatif dengan pendekatan fenomenologi. Data dikumpulkan dengan cara one on one indepth interview online dengan 10 informan menggunakan panduan wawancara semi terstruktur, kemudian dilakukan analisis secara manual menggunakan analisis tematik. Hasil analisis data menunjukkan penggunaan masker, penerapan hand hygiene, screening Covid-19, serta edukasi perawatan pasca melahirkan telah dilaksanakan sesuai protokol kesehatan Covid-19. Disisi lain, penggunaan alat pelindung diri, pemasangan delivery chamber, penggunaan masker oleh pasien, penerapan physical distancing, pengambilan sampel skrining hipotiroid kongenital dan isolasi mandiri 14 hari sebelum persalinan belum sepenuhnya dilaksanakan sesuai protokol kesehatan Covid-19. Sosialisasi dan pembinaan secara intensif melalui kegiatan pelatihan kepada bidan di PMB terkait pedoman pelayanan persalinan pada masa pandemi Covid-19 sangat diperlukan.

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Pediatric Quality of Life in Congenital Hypothyroidism: an Indonesian Study

Cited by 5 publications

References 31 publications

An Insight into Indonesia’s Challenges in Implementing Newborn Screening Programs and Their Future Implications

An Insight into Indonesia’s Challenges in Implementing Newborn Screening Programs and Their Future Implications

The Evaluation of Congenital Hypothyroidsm Screening Program in Indonesia: A Literature Review

Kesesuaian Bidan Dalam Menerapkan Prosedur Pelayanan Persalinan Di PMB Pada Masa Pandemi Covid-19

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