Pediatric Palliative Care in Oncology

Snaman, Jennifer M.; McCarthy, Sarah; Wiener, Lori; Wolfe, Joanne

doi:10.1200/jco.18.02331

Cited by 107 publications

(115 citation statements)

References 94 publications

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“…Parents who have lost their child note that continued and personal follow up from their medical team was meaningful to them; by phone, mail, and in person. 68,69 Parents and siblings benefit from supportive contact with their loved one's care team, access to community support, and contact with other bereaved parents. 67 Despite the profoundness of loss, this loss can lead to personal growth.…”

Section: Family and Bereavementmentioning

confidence: 99%

“…Bereaved parents have a higher risk of physical and mental health problems, mortality, and divorce. Parents who have lost their child note that continued and personal follow up from their medical team was meaningful to them; by phone, mail, and in person 68,69 . Parents and siblings benefit from supportive contact with their loved one's care team, access to community support, and contact with other bereaved parents 67 .…”

Section: Family and Bereavementmentioning

confidence: 99%

“…The effects may be intense and long-lasting, which led to the recognition of bereavement care as a psychosocial standard of care in pediatric oncology 67. Three discrete terms are used to talk about the loss of a close relationship: bereavement (ie, the reaction to the loss of a close relationship), grief (ie, the emotional response caused by a loss including pain, distress, and physical and emotional suffering), and mourning (ie, the psychological process through which the bereaved person makes readjustments to the new reality after the death of a loved one through undoing his or her bonds to the deceased) 68. Death resulting from cancer is often predictable and expected, although the responses of family members may vary.…”

mentioning

confidence: 99%

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Palliative care considerations and practices for adolescents and young adults with cancer

Upshaw

Roche

Gleditsch

et al. 2020

Pediatric Blood & Cancer

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The definition of adolescents and young adults (AYAs) in oncology varies with upper limits up to age 39. Younger AYAs, ages 12-24 years, are often cared for within pediatrics. In caring for AYAs with cancer, there are unique considerations that become even more important to recognize, acknowledge, and address in AYAs with lifethreatening cancer receiving palliative care. This review highlights important factors such as psychosocial development, cultural considerations, and support structure, which should be considered when providing palliative care to AYAs with cancer during the various stages of care: introduction of palliative care; symptom management; advanced care planning (ACP); end-of-life (EOL) care; and bereavement. K E Y W O R D S adolescent and young adult, end-of-life care, palliative care, pediatric oncology, support care 1 INTRODUCTION While much medical advancements have occurred in pediatric oncology, challenges in functioning, quality of life, and living with a poor prognosis contribute to symptom burden and suffering within this population. 1 Interdisciplinary palliative care (PC) teams aim to provide specialized care to patients with serious illness, and help their families to improve symptom control, ease suffering, and attend to associated psychological challenges. 2-7 When caring for adolescents and young adults (AYAs) with cancer diagnoses, there are unique considerations given their stage of psychosocial development. In this study, AYA is defined as ages 12-24 years, 8 per the World Health Organization (WHO) definition. While the upper age range of AYAs can be defined as up to 39 years, 9 the intended audience of this study paper is pediatric

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Section: Family and Bereavementmentioning

confidence: 99%

Section: Family and Bereavementmentioning

confidence: 99%

mentioning

confidence: 99%

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Palliative care considerations and practices for adolescents and young adults with cancer

Upshaw

Roche

Gleditsch

et al. 2020

Pediatric Blood & Cancer

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“…Communication is an essential tool for building trust and alliance with seriously ill children and their families [ 1 , 2 , 3 , 4 ]. In pediatric oncology, delivering serious news represents one of the biggest challenges for physicians, although an honest approach and open communication can improve patients’ adherence to treatment [ 5 ].…”

Section: Introductionmentioning

confidence: 99%

“…Efforts to establish guidelines for clinical practice in pediatric oncology have been built upon successful initiatives from adult oncology and palliative medicine, such as the widely acknowledged SPIKES protocol [ 17 , 18 , 19 , 20 ]. Communication issues, especially the ones regarding end-of-life discussions and maintaining hope, have become one of the crucial topics in pediatric palliative care [ 4 , 21 ]. However, communication with children and families at the end of life still remains a great challenge [ 7 , 15 ].…”

Section: Introductionmentioning

confidence: 99%

Important Aspects Influencing Delivery of Serious News in Pediatric Oncology: A Scoping Review

2021

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Delivering serious news presents a major challenge for clinical practice in pediatric oncology due to the complexity of the communication process and a number of aspects that influence how the serious news is delivered and received. This study aims to review and explore the aspects influencing the delivery of serious news in pediatric oncology from the perspective of physicians, parents, siblings and patients themselves. The MEDLINE, Embase, Scopus, Cochrane Library, PsycInfo and Medvik databases were systematically searched for relevant articles published from 1990 to 2017. Following the Preferred Reporting Items for Systematic Review and Meta-analysis extension for scoping reviews (PRISMA-ScR) guidelines, 36 original papers were included. Identified aspects of communication were categorized into six thematic groups: initial setting, physician’s approach, information exchange, parental role, illness related aspects and age of the ill child. The importance of the aspects is perceived differently by parents, patients, siblings and physicians. This scoping review highlights that delivering serious news requires an individualized approach towards the patient and the family. Ten key objectives built upon the results of the literature review offer guidance for daily clinical practice in communication with pediatric patients and their families.

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Children: Serious Illness

Rafferty¹,

Lipovac²,

Nemmers‐Bello³

et al. 2022

The International Encyclopedia of Health Communication

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Communication is vital to the management of serious illness in children. While the definition of serious illness in pediatrics is not yet agreed upon, these different acute, chronic, complex, and sometimes life‐limiting or life‐threatening illnesses present many communication challenges and barriers. These challenges are particularly evident for parents and legal guardians who are often charged with the responsibilities of managing their child's care and coordinating it with various healthcare clinicians. New caregiving responsibilities for parents create a host of uncertainties for them and their child that require a collaborative discussion with their child's healthcare team. The involvement of a pediatric palliative care team can facilitate successful collaborations that promote shared decision making, empower the sick child and his or her family, and facilitate difficult conversations weighing the risks and benefits of medical interventions, including but not limited to care in emergency medical situations – as may be outlined in an advance care planning document. Noting the complexity of the health information, it is of utmost importance that clinicians take into consideration the families' health literacy, culture, and language in order to ensure clear, transparent, and supportive communication.

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Pediatric Palliative Care in Oncology

Cited by 107 publications

References 94 publications

Palliative care considerations and practices for adolescents and young adults with cancer

Palliative care considerations and practices for adolescents and young adults with cancer

Important Aspects Influencing Delivery of Serious News in Pediatric Oncology: A Scoping Review

Children: Serious Illness

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