Pediatric Palliative Care, Costa Rica’s Experience

Moya, Juan Carlos Irola; Morales, Miriam Garro

doi:10.1177/1049909110361471

Cited by 4 publications

(5 citation statements)

References 14 publications

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“…In our study, pain was the most common symptom, reported by 61.6% (n=85) of patients, followed by excessive secretions (32.6%, n=45) and dystonia/autonomic dysfunction (29.7%, n=41). This order of symptoms corresponds with the order that Irola Moya et al found in their study despite the differences in symptoms' percentages [11]. Furthermore, given that, in the study of Weaver et al, pain has been described as a terminal symptom of childhood cancer [2], it is no wonder that we found pain to be the most common symptom and morphine to be the most prescribed drug as cancer was the most common condition among our patients.…”

Section: Discussionsupporting

confidence: 84%

“…Moreover, the availability of a 24-hour hotline, easy access to nearby health care centers, psychosocial support, sibling assistance, and weekly support groups for grieving families might be applied and could provide great influence. Finally, providing different settings of care such as ambulances, emergency rooms, inpatient beds, and home health care has been associated with excellent outcomes [ 5 , 11 ].…”

Section: Introductionmentioning

confidence: 99%

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Demographic Data, Clinical Characteristics, and Outcomes of Pediatric Patients Who Received Palliative Care in King Abdullah Specialized Children’s Hospital, Riyadh, Kingdom of Saudi Arabia

Althaqafi,

Alqahtani,

Khan

et al. 2023

Cureus

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Background Palliative care is defined as a comprehensive care approach that improves the quality of life of patients and their families facing the problems associated with life-threatening illnesses by alleviating the pain by different means. The death of children receiving palliative care is mainly due to congenital anomalies (26% of infants) and cancer (17% of children). This study aims to identify the demographic data, clinical characteristics, and outcomes of patients who received specialized pediatric palliative care (PPC) services in a tertiary care center in Saudi Arabia. Method This five-year retrospective chart review examines all children who received specialized palliative care services at King Abdullah Specialized Children’s Hospital (KASCH), Riyadh, Saudi Arabia, from 2016 to 2021. The data include the sociodemographic and clinical characteristics, as well as the referral process information and the used PPC interventions. Results A total of 138 patients were included in this study. The gender distribution was 50.40% male and 49.60% female. Children aged 1-10 years accounted for 52.9% (n=73) of the sample size. Malignancy was the predominant diagnosis. Tube feeding was the most common intervention provided (28%, n=39). The most common symptom was chronic pain (61.6%, n=85). Morphine was used in more than half of the patients (53%, n=73). Conclusion In our study, children between 1 and 10 years of age comprised 52.9% (n=73) of the total sample. Malignancy was the most common diagnosis. The most common reason for consulting the PPC unit was symptomatic treatment (87.7%, n=121). The symptom reported most commonly by children was chronic pain (61.6%, n=85). The medical technology most commonly used was tube feeding (28%, n=39). The most common medication given to patients was morphine (53%, n=73). To sum up, identifying the demographics and clinical characteristics of children who previously required PPC would help healthcare professionals identify future cases in need of PPC.

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Section: Discussionsupporting

confidence: 84%

Section: Introductionmentioning

confidence: 99%

Demographic Data, Clinical Characteristics, and Outcomes of Pediatric Patients Who Received Palliative Care in King Abdullah Specialized Children’s Hospital, Riyadh, Kingdom of Saudi Arabia

Althaqafi,

Alqahtani,

Khan

et al. 2023

Cureus

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“…[212325–273132344151545862717278798289919394101102111115116] The relative reporting prevalence for the four categories is provided in Figure 5.…”

Section: Resultsmentioning

confidence: 99%

“…[2236384447495355678186929596109] There were six original articles[6973768790114] and two review articles[3088] among the eight articles on education, and two original articles,[56] and six review articles[24284361104105] among seven articles on research, respectively. Of the 27 articles on administration, there were 15 original articles[212358717278798294101102111115116] and 12 review articles. [252631323441515462899193] The comparison of article types between four categories of pediatric palliative care articles is provided in Figure 6.…”

Section: Resultsmentioning

confidence: 99%

“…There were 46 studies that used qualitative methods[212333373940424546485658–606364–66686971–73767879828388949799–103106107110111113–116] and 17 studies that used quantitative methods[202935525770747577808485879098108112] among the 63 original articles. Among the 34 review articles, 33 articles were narrative reviews[222425–2830–323436384143444749–5153–5561626781868991–939596104109] and 1 was a systematic review.…”

Section: Resultsmentioning

confidence: 99%

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Reporting of pediatric palliative care: A systematic review and quantitative analysis of research publications in palliative care journals

Kumar¹

2011

Indian J Palliat Care

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Context:Pediatric palliative care clinical practice depends upon an evidence-based decision-making process which in turn is based upon current research evidence.Aims:This study aimed to perform a quantitative analysis of research publications in palliative care journals for reporting characteristics of articles on pediatric palliative care.Settings and Design:This was a systematic review of palliative care journals.Materials and Methods:Twelve palliative care journals were searched for articles with “paediatric” or “children” in titles of the articles published from 2006 to 2010. The reporting rates of all journals were compared. The selected articles were categorized into practice, education, research, and administration, and subsequently grouped into original and review articles. The original articles were subgrouped into qualitative and quantitative studies, and the review articles were grouped into narrative and systematic reviews. Each subgroup of original articles’ category was further classified according to study designs.Statistical Analysis Used:Descriptive analysis using frequencies and percentiles was done using SPSS for Windows, version 11.5.Results:The overall reporting rate among all journals was 2.66% (97/3634), and Journal of Hospice and Palliative Nursing (JHPN) had the highest reporting rate of 12.5% (1/8), followed by Journal of Social Work in End-of-Life and Palliative Care (JSWELPC) with a rate of 7.5% (5/66), and Journal of Palliative Care (JPC) with a rate of 5.33% (11/206).Conclusions:The overall reporting rate for pediatric palliative care articles in palliative care journals was very low and there were no randomized clinical trials and systematic reviews found. The study findings indicate a lack of adequate evidence base for pediatric palliative care.

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Pediatric palliative care provision around the world: A systematic review

Knapp

Woodworth

Wright

et al. 2011

Pediatric Blood & Cancer

152

131

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Pediatric palliative care is recommended by many organizations. Yet, there is no information available on the progress that has been made in providing this care or the gaps that still exist in provision around the world. We conducted a systematic review to address this gap in knowledge. The systematic review identified 117 peer-reviewed and non-peer reviewed resources. Based on this information, each country was assigned a level of provision; 65.6% of countries had no known activities, 18.8% had capacity building activities, 9.9% had localized provision, and 5.7% had provision that was reaching mainstream providers. Understanding the geographic distribution in the level of provision is crucial for policy makers and funders.

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Pediatric Palliative Care, Costa Rica’s Experience

Cited by 4 publications

References 14 publications

Demographic Data, Clinical Characteristics, and Outcomes of Pediatric Patients Who Received Palliative Care in King Abdullah Specialized Children’s Hospital, Riyadh, Kingdom of Saudi Arabia

Demographic Data, Clinical Characteristics, and Outcomes of Pediatric Patients Who Received Palliative Care in King Abdullah Specialized Children’s Hospital, Riyadh, Kingdom of Saudi Arabia

Reporting of pediatric palliative care: A systematic review and quantitative analysis of research publications in palliative care journals

Pediatric palliative care provision around the world: A systematic review

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