Pediatric issues in disaster management, Part 3: Special healthcare needs patients and mental health issues

Mace, Sharon E.; Sharieff, Ghazala Q.; Bern, Andrew; Benjamin, Lee S.; Burbulys, Dave; Johnson, Ramon W.; Schreiber, Merritt

doi:10.5055/ajdm.2010.0032

Cited by 12 publications

(2 citation statements)

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“…This means, to begin, having patient information regularly updated and accessible to professionals and responders. For instance, the value in having portable medical info, such as the emergency information form (EIF), in both electronic and hard-copy formats recurs in several papers (13,(45)(46)(47). Privacy and data security considerations, particularly with digital information, must be respected.…”

Section: Aspectmentioning

confidence: 99%

Communication in disasters to support families with children with medical complexity and special healthcare needs: a rapid scoping review

Smith,

Donaldson,

Mitton

et al. 2024

Front. Public Health

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Disasters can disrupt normal healthcare processes, with serious effects on children who depend upon regular access to the health care system. Children with medical complexity (CMC) are especially at risk. These children have chronic medical conditions, and may depend on medical technology, like feeding tubes. Without clear, evidence-based processes to connect with healthcare teams, families may struggle to access the services and supports they need during disasters. There is limited research about this topic, which has been pushed forward in importance as a result of the COVID-19 pandemic. The authors therefore conducted a rapid scoping review on this topic, with the intention to inform policy processes. Both the peer-reviewed and gray literatures on disaster, CMC, and communication were searched in summer 2020 and spring 2021. Twenty six relevant articles were identified, from which four main themes were extracted: 1. Cooperative and collaborative planning. 2. Proactive outreach, engagement, and response. 3. Use of existing social networks to connect with families. 4. Return to usual routines. Based on this review, good practices appear to involve including families, professionals, other stakeholders, and children themselves in pre-disaster planning; service providers using proactive outreach at the outset of a crisis event; working with existing peer and neighborhood networks for support; employing multiple and two-way communication channels, including social media, to connect with families; re-establishing care processes as soon as possible, which may include virtual connections; addressing mental health issues as well as physical functioning; and prioritizing the resumption of daily routines. Above all, a well-established and ongoing relationship among children, their caregivers, and healthcare teams could reduce disruptions when disaster strikes.

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Section: Aspectmentioning

confidence: 99%

Communication in disasters to support families with children with medical complexity and special healthcare needs: a rapid scoping review

Smith,

Donaldson,

Mitton

et al. 2024

Front. Public Health

View full text Add to dashboard Cite

show abstract

“…Often, these symptoms appear in combination hindering mobility, language, mental development, learning, and self-sufficiency. 3 Special dentistry provides dental services to all those people with physical or cognitive conditions that limit their ability to receive healthcare. The goal is to allow them to be treated like able-bodied subjects by implementing special therapeutic strategies to carry out normal treatment plans.…”

Section: Introductionmentioning

confidence: 99%

Survey on Oral Health Education Knowledge of Family Members and Health Workers Dedicated to Patients with Disabilities

et al. 2023

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Objective Over a billion people in the world live with some form of disability and this figure is destined to grow due to the increase in life expectancy. As consequence, the caregiver is taking on an increasingly important role that gains relevance also in the field of oral-dental prevention, being able to promptly identify needs for medical treatment. In some cases, however, the caregiver can be an obstacle to consider in case of a lack of adequate knowledge and commitment. The aim of this study is to evaluate the caregiver level of oral education comparing family members and health workers dedicated to people with disabilities knowledge. Materials and Methods Anonymous questionnaires were distributed in five disability service centers and filled alternatively by family members of patients with disability and disability service centers health workers. Results Two-hundred fifty questionnaires were collected, of which 100 were filled in by family members and 150 by health workers. Data were analyzed by applying the chi-squared (X2) independence test and the pairwise method for missing data. Conclusion Family members oral education appears better in terms of brushing frequency, toothbrush replacement, and number of dental visits.

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Toward the Way Forward: The National Children's Disaster Mental Health Concept of Operations

Schreiber

Pfefferbaum²,

Sayegh³

2012

Disaster med. public health prep.

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ABSTRACTAlthough increasing evidence suggests that children are at particular risk from disasters and evidence-based practices have been developed to triage and treat them effectively, no strategy or concept of operations linking best practices for disaster response is currently in place. To our knowledge, this report describes the first effort to address this critical gap and outlines a triage-driven children's disaster mental health incident response strategy for seamless preparedness, response, and recovery elements that can be used now. The national children's disaster mental health concept of operations (NCDMH CONOPS) details the essential elements needed for an interoperable, coordinated response for the mental health needs of children by local communities, counties, regions, and states to better meet the needs of children affected by disasters and terrorism incidents. This CONOPS for children proposes the use of an evidence-based, rapid triage system to provide a common data metric to incident response and recovery action and to rationally align limited resources to those at greater need in a population-based approach.(Disaster Med Public Health Preparedness. 2012;6:174–181)

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Pediatric issues in disaster management, Part 3: Special healthcare needs patients and mental health issues

Cited by 12 publications

References 0 publications

Communication in disasters to support families with children with medical complexity and special healthcare needs: a rapid scoping review

Communication in disasters to support families with children with medical complexity and special healthcare needs: a rapid scoping review

Survey on Oral Health Education Knowledge of Family Members and Health Workers Dedicated to Patients with Disabilities

Toward the Way Forward: The National Children's Disaster Mental Health Concept of Operations

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