Pediatric Hospice and Palliative Care Services and Needs Across the Northwest United States

Bogetz, Jori F.; Anderson, Anne B. M.; Holland, Marshall T.; Macauley, Robert

doi:10.1016/j.jpainsymman.2022.02.015

Cited by 8 publications

(7 citation statements)

References 18 publications

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“…Of the 18 articles reviewed, 6 defined their use of the term rural/remote using either the US Census Bureau Rural and Urban taxonomy 31 or the Economic Research Service of the US Department of Agriculture 14,16,18,21,26,32 . Several studies included urban and rural communities as participants in their research 13,19 . Many of the studies reviewed did not describe or define the terms of rural and remote.…”

Section: Resultsmentioning

confidence: 99%

“…The final set reviewed included 18 peer-reviewed articles and 4 gray-literature publications from national organizations (ie, Hospice and Palliative Care Nurses Association, National Hospice and Palliative Care Organization). [9][10][11][12] Of the articles reviewed, various study methods were used, such as randomized trials, [13][14][15][16][17][18] survey types, 19,20 and chart or data review. [21][22][23][24] The gray literature offered guidelines and policies for implementing and promoting effective virtual visits, as well as advocating for continuing coverage and payment of the various telehealth platforms 9-12 (Table 2).…”

Section: Characteristics Of Studiesmentioning

confidence: 99%

“…14,16,18,21,26,32 Several studies included urban and rural communities as participants in their research. 13,19 Many of the studies reviewed did not describe or define the terms of rural and remote.…”

Section: Rural and Remote Definedmentioning

confidence: 99%

“…24 Grief support groups through telehealth delivery offered an effective, low-cost support for bereaved persons living in rural communities. 16 Bogetz et al 19 reported on the use of pediatric telehealth services by 37 programs across 7 states in the Northwest portion of the United States, which included rural and remote regions. Only 14% of the organizations provided telehealth services, with the greatest barrier being a lack of trained staff (84%) followed by the lack of financial support (59%).…”

Section: Characteristics Of Rural Telehealth Programsmentioning

confidence: 99%

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A Rapid Review of Uses and Outcomes of Telehealth Care in Rural and Remote Regions in the United States

Fasolino

Koci

Huggins

et al. 2023

J Hosp Palliat Nurs

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As telehealth expands and becomes an increasingly important provision of palliative care and hospice services, the understanding of the uses and outcomes of this care delivery platform in rural communities is warranted. This rapid review aims to highlight the practice, policy, and research implications of telehealth in rural regions. Using a systematic approach for accessing and synthesizing available publications, this review included 22 articles published between January 2020 and January 2023. Telehealth was used with adult and pediatric populations diagnosed with serious illnesses. Acceptance of this type of care delivery was noted in adults and children, but not all found telehealth a valuable mechanism for care. Telehealth services included but were not limited to direct communication between the provider and the patient/caregiver, medication management, and a peer-to-peer consultant role for rural palliative care and hospice teams. Of those studies addressing provider-centered outcomes, noise level, interruptions, missed appointments, and challenges with providing emotional support were reported. Organizational barriers, such as the lack of financial support, were noted for pediatric hospices. Individuals living in rural communities require more frequent, immediate, and specialized attention over their illness trajectory. Practice, policy, and research implications are identified to consider the next steps for telehealth delivery of palliative care.

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Section: Resultsmentioning

confidence: 99%

Section: Characteristics Of Studiesmentioning

confidence: 99%

Section: Rural and Remote Definedmentioning

confidence: 99%

Section: Characteristics Of Rural Telehealth Programsmentioning

confidence: 99%

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A Rapid Review of Uses and Outcomes of Telehealth Care in Rural and Remote Regions in the United States

Fasolino

Koci

Huggins

et al. 2023

J Hosp Palliat Nurs

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“…In addition, the pediatric hospice and palliative care community of clinicians, researchers, and advocates have depicted a narrative of adult hospices based on anecdotal stories and limited evidence that adult hospices will not enroll children because their staff is uncomfortable with children and especially infants; [8][9][10] that they cannot afford to provide pediatric care, 11 and that they do not understand the complicated Medicaid rules for children. 12 The literature examining adult hospices who provide care for children is sparse. Dingfield and colleagues 13 assessed the difference between pediatric and adult hospice patients among nine hospices in New Mexico, California, Florida, Pennsylvania, Wisconsin, Michigan, Texas, Kansas, and Missouri.…”

Section: Introductionmentioning

confidence: 99%

Understanding Adult Hospices Caring for Children in California, 2018-2021

Davis,

Weaver,

Torkildson

et al. 2023

Am J Hosp Palliat Care

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In areas where there are absences of pediatric hospice care, adult hospices are often asked to provide hospice care for children. Little is known about these adult hospices. The purpose of our study was to describe the characteristics of adult hospices in California that provided care to children from 2018 to 2021. Using public data from the California Home Health Agencies and Hospice Annual Utilization Report, we conducted a longitudinal, retrospective descriptive study to examine the effects of hospice characteristics on adult hospices which provide care to children. Market, mission, operational, and financial characteristics were measured via the California utilization data using descriptive statistics. Service area was measured via latitude and longitude public data. Hospice location maps were generated for year 2018 and year 2021. The 148 hospices in the study had distinct organizational profiles, mainly small, with broad service coverage areas, in rural and urban communities with predominantly nurses visiting children. There was a significant decline (32%) in availability of adult hospices caring for children between 2018 and 2021, particularly in northern California. Hospice economics, lack of familiarity with Medicaid, and staff comfortability with caring for children in hospice, were not driving this decline. Our study provides critical insight into the characteristics of adult hospices in California providing care for children and has important policy implications.

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