Peanut allergy as a family project: social relations and transitions in adolescence

Stensgaard, Anette; Bindslev‐Jensen, Carsten; Nielsen, Dorthe Susanne

doi:10.1111/jocn.13696

Cited by 27 publications

(53 citation statements)

References 33 publications

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“…93 For those at risk of anaphylaxis, maintaining the balance between taking the risk seriously and not allowing the risk to dominate their lives was reported to be difficult. 83,84,94,95 Thus, risk-taking behaviours were less common in adolescents with an established education plan for their food allergy. 96…”

Section: Knowledge and Beliefsmentioning

confidence: 99%

“…Asthma, allergy and the risk of anaphylaxis have been shown to affect not only the young person but also all family members 84,94,95,102,103 ( Table 7). However, adolescents often do not report asthma symptoms to caregivers.…”

Section: Familiesmentioning

confidence: 99%

“…12,80,81,98 This could lead to social isolation and loneliness due to lack of understanding from their social network. 83,94,95,106,107 Unfortunately, many adolescents and young adults with asthma and food allergy reported experiencing bullying, usually in the school environment. 106,108 Social relations with new family members or friends could be challenged by lack of knowledge about the potential severity of asthma or allergy.…”

Section: Friends Peers and Schoolmentioning

confidence: 99%

“…Readiness for transition was associated with greater perceived medication independence, but this was not associated with improved responsibility or medication adherence in the young person 110. Successful transition required systematic support, developmentally appropriate and adaptive health care from healthcare professionals 84,94,95,111. 4 | D ISCUSS I ONThis review was undertaken to provide an understanding of the gaps in the healthcare of adolescents and young adults with allergies andasthma.…”

mentioning

confidence: 99%

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Understanding the challenges faced by adolescents and young adults with allergic conditions: A systematic review

Vazquez‐Ortiz

Angier

Blümchen

et al. 2020

Allergy

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Background: Adolescence represents a vulnerable time for individuals with asthma and allergic conditions. They suffer an unexpected degree of morbidity. This systematic review aimed to understand the challenges faced by adolescents and young adults with these conditions. Methods: A systematic literature search was undertaken across eight databases. References were checked by two reviewers for inclusion. Study data were extracted, and their quality was assessed in duplicate. A narrative meta-synthesis was undertaken. Results: A total of 108 papers describing 106 studies were retrieved, most focused on asthma. Five themes were identified across studies: (a) Health-related quality of life-impairment was associated with poor disease control, psychosocial issues, adolescent-onset allergic disease and female sex; (b) Psychological factors-asthma and food allergy were associated with anxiety and depression, atopic dermatitis was associated with suicidal ideation, and that parental emotional support may be protective; (c) Adherence-suboptimal adherence was associated with older age, barriers to medication usage, poor symptom perception and failure to take responsibility, and positive factors were routines, simpler treatment regimes, better knowledge and perceptions about medications; (d) Self-management-facilitated by education, knowledge and a positive attitude; and (e) Supportive relationships-families could modify barriers to adherence and foster positive views about self-management, adolescents suggested that their peers should be more involved in supporting them, and adolescents also wished to have support from nonjudgemental healthcare professionals. Conclusions: We have some understanding of the challenges faced by adolescents with asthma, less so for other allergic conditions. This knowledge will be used to support guidelines for managing adolescents.

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Section: Knowledge and Beliefsmentioning

confidence: 99%

Section: Familiesmentioning

confidence: 99%

Section: Friends Peers and Schoolmentioning

confidence: 99%

mentioning

confidence: 99%

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Understanding the challenges faced by adolescents and young adults with allergic conditions: A systematic review

Vazquez‐Ortiz

Angier

Blümchen

et al. 2020

Allergy

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“…One study in peanut allergy found that a subset of parents of a child with peanut allergy experienced high levels of parenting stress [ 19 ]. Parents of a child with peanut allergy have also expressed difficulties with their child’s transition to independence and their own subsequent loss of control [ 20 ], suggesting that the child’s age may influence HRQL burden for caregivers. As discussed previously, one study found that caregiver gender may also influence caregiver burden in peanut allergy [ 18 ].…”

Section: Introductionmentioning

confidence: 99%

Psychosocial and productivity impact of caring for a child with peanut allergy

Acaster

Gallop

Vries

et al. 2020

Allergy Asthma Clin Immunol

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Background Limited previous research has assessed the psychosocial burden and productivity impact of caring for a child with peanut allergy and factors associated with burden. The objective of this research was to explore caregiver burden in terms of psychosocial and productivity impact of caring for a child with peanut allergy, the influence of caregiver and child gender on caregiver burden, and factors predicting caregiver burden in peanut allergy. Methods A cross-sectional survey of caregivers of children with peanut allergy was conducted in the United Kingdom, and included sociodemographic and clinical questions, EQ-5D, Hospital Anxiety and Depression Scale, Food Allergy Quality of Life-Parental Burden, Food Allergy Independent Measure, and productivity questions. Results One hundred caregivers (55% female) of children with peanut allergy (aged 4–15 years) completed the survey. Male and female caregivers reported mean levels of anxiety significantly higher than United Kingdom population norms. Caregivers of children with severe peanut allergy reported significant impacts on their careers and health-related quality of life. Neither caregiver nor child gender impacted burden, indicating that male and female caregivers are equally anxious and suffer the same level of negative career, productivity, and health-related quality-of-life impact due to their child’s peanut allergy. Caregivers’ perceived risk of outcomes related to their child’s peanut allergy (e.g., death or severe reaction) as measured by the Food Allergy Independent Measure independently predicted burden. Conclusions Caregivers of children with peanut allergy in the United Kingdom experience health-related quality-of-life, psychosocial, and productivity burden; this study demonstrates the high levels of anxiety reported by both male and female caregivers.

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Beliefs about food allergies in adolescents aged 11–19 years: A systematic review

Newman

Chater

Knibb

2022

Clinical & Translational All

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Aims Research suggests of people with food allergy (FA), adolescents have the highest risk of fatal allergic reactions to food, yet understanding of this population and how they manage their condition is limited. Understanding beliefs and how they affect behaviour could inform ways to reduce risk taking behaviour and fatal reactions in adolescents. This systematic review aimed to explore beliefs adolescents hold about their FA, and how these may be associated with FA management. Demographics Adolescents aged 11–19 years with FA. Methodology A systematic search of seven databases was conducted. Papers of any design were included that reported on the beliefs about FA in adolescents aged 11–19 years. Data was systemised by narrative thematic analysis. Findings 20 studies were included. Themes included navigating FA in different environments, carriage and use of adrenaline auto‐injectors, management of the risk of anaphylaxis, behaviour and understanding of others, and food‐allergic identity. Implications Adolescents with FA hold a variety of condition beliefs; some beliefs were related to behaviour that could lead to an allergic reaction, while other beliefs were related to protective behaviours. Further research into understanding adolescent beliefs in order to inform clinical management and reduce the risk of potential fatal reactions is essential.

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Peanut allergy as a family project: social relations and transitions in adolescence

Abstract: In the management of peanut allergy in adolescence, it is important to consider not only the smaller biological family unit (mothers, fathers and siblings) but to also take a wider perspective to include others such as stepfamily and friends.

Cited by 27 publications

References 33 publications

Understanding the challenges faced by adolescents and young adults with allergic conditions: A systematic review

Understanding the challenges faced by adolescents and young adults with allergic conditions: A systematic review

Psychosocial and productivity impact of caring for a child with peanut allergy

Beliefs about food allergies in adolescents aged 11–19 years: A systematic review

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