Abstract:acute (vaso-occlusive painful crisis, acute chest syndrome, stroke) and chronic (nephropathy, pulmonary hypertension) symptoms, resulting in poor quality of life (QOL) and reduced life expectancy. Access to optimal treatment is a key challenge for many SCD patients. In many cases, patients are treated in acute care centers where knowledge of SCD management may not be optimal. The burden of SCD in patients' daily lives, particularly the psychological impact on the lives of young people, is largely underestimate… Show more
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