Patterns of internet use by parents of children attending a pediatric surgical service

Hand, F.; Dowell, D. T. Mc; Glynn, Ronan W; Rowley, H.; Mortell, Alan

doi:10.1007/s00383-013-3317-5

Cited by 34 publications

(55 citation statements)

References 11 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Respondents mostly searched the Internet from home, late in the evening, and were practiced at finding the information they sought; these patterns of general Internet usage concurred with similar literature [14,15]. …”

Section: Discussionsupporting

confidence: 76%

Internet Use by Parents of Children With Rare Conditions: Findings From a Study on Parents’ Web Information Needs

Nicholl¹,

Tracey²,

Begley³

et al. 2017

J Med Internet Res

137

View full text Add to dashboard Cite

BackgroundParents of children with rare conditions increasingly use the Internet to source information on their child’s condition. This study reports on part of a larger study whose overall aim was to identify the Internet use by parents when seeking information on their child’s rare condition, with the specific purpose of using the findings to aid in the development of a website specifically designed to meet the parents’ needs. It presents findings on why these parents use the Internet, the information and support content they source, and the impact these resources have on their capacity to care for and manage their child’s condition.ObjectiveTo (1) ascertain parents’ general Internet usage patterns, (2) identify the nature of the information parents most frequently searched for, and (3) determine the effect the Internet-sourced information had on parents of children with rare conditions.MethodsData collection was conducted in 2 parts: Part 1 was a focus group interview (n=8) to inform the development of the questionnaire, and Part 2 was a questionnaire (Web- and paper-based). All respondents (N=128) completed the questionnaire using the Internet.ResultsParents frequently and habitually used the Internet and social media to gather information on their child’s condition. These Web-based resources provide parents with a parent-to-parent support platform that allows them to share their experiences and information with other parents, which, the respondents considered, improved their knowledge and understanding of their child’s condition. The respondents also reported that these resources positively impacted on their decision making, care, and management of their child’s condition. However, they reported receiving mixed responses when wishing to engage and share with health care professionals their Internet and social media interactions and information outcomes.ConclusionsThis study adds to the emerging body of research on the Internet use by parents of children with rare conditions to source information on their child’s condition. The evolving and ever increasing parent-to-parent support systems via social media are impacting on parents’ capacity to manage their children. Implications for practice include health care professionals’ response to this knowledge and capacity shift, and the significance of these changes when interacting with parents. The key message of this study was that parents of children with rare conditions are habitual users of the Internet to source information about their children’s conditions. Social media, especially Facebook, has an increasing role in the lives of these parents for information and support. Parents’ interest in information gathering and sharing includes a desire for shared dialogue with health care professionals.

show abstract

Section: Discussionsupporting

confidence: 76%

Internet Use by Parents of Children With Rare Conditions: Findings From a Study on Parents’ Web Information Needs

Nicholl¹,

Tracey²,

Begley³

et al. 2017

J Med Internet Res

137

View full text Add to dashboard Cite

show abstract

“…Also on the topic of health professionals, some studies found that these workers can lack the skills to identify and guide the use of online support information (20,24) , and they are unaware of the legal aspects that permeate online communication with patients (20) . Therefore, it is crucial for health workers to be updated on the available health-related websites, and acquire the skills to determine the credibility of the information provided (2) since it can be misunderstood and compromise treatment (33) .…”

Section: Weaknesses Of the Use Of Online Information For Families Of mentioning

confidence: 99%

“…Health related issues are one of the main concerns of human beings (1) , and people are increasingly accessing the internet in search of information about their health or the health of a family member or friend (2)(3) . When it comes to chronic disease, internet access is even more common since the anxiety and hope of finding an immediate diagnosis and/or innovative treatment are even greater.…”

Section: Introductionmentioning

confidence: 99%

“…The internet allows the instant and simple exchanging of information and alternative treatment or diagnoses that can help reduce the anxiety of sufferers or their family members, and increase their confidence and understanding of a health condition before or after a medical consultation (6) . However, despite being a useful tool, the internet is growing uncontrollably and can provide inaccurate, misleading, biased and unreviewed data, which makes it difficult to differentiate trusted from untrusted sources (2,8) . In order to reduce any conflicts arising from unsubstantiated findings or reports viewed by users on the internet, health professionals must know the health-related websites and online tools available, and instruct users on the accuracy of the provided information (2) .…”

Section: Introductionmentioning

confidence: 99%

“…However, despite being a useful tool, the internet is growing uncontrollably and can provide inaccurate, misleading, biased and unreviewed data, which makes it difficult to differentiate trusted from untrusted sources (2,8) . In order to reduce any conflicts arising from unsubstantiated findings or reports viewed by users on the internet, health professionals must know the health-related websites and online tools available, and instruct users on the accuracy of the provided information (2) . The use of online healthcare information is a growing and little explored trend in the qualitative dimension and in understanding the impact of this trend on the care of children and adolescents with chronic illness, and all the related specificities and continuous demands.…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Informações on-line como suporte às famílias de crianças e adolescentes com doença crônica

Mazza

Lima

Carvalho³

et al. 2017

Rev. Gaúcha Enferm.

View full text Add to dashboard Cite

Objective:To describe the use of online information as support to families of children and adolescents with chronic disease. Methods: This is an integrative review conducted in August 2015, with an online search in the following databases: PubMed, Biblioteca Virtual em Saúde, Cumulative Index to Nursing & Allied Health Literature, and Science Direct. Results: Twelve studies were selected from the 293 studies found in the databases. After analysis, the following two categories emerged: Potentialities of the use of online information by families of children and adolescents with chronic disease, and Weaknesses of the use of online information by families of children and adolescents with chronic disease. Conclusions:The internet off ers a wide range of information that helps families manage the care of children and adolescents with chronic diseases, but it also has characteristics that need to be analysed.

show abstract

Disparity in online health information in pediatric vs. adult surgical conditions

et al. 2019

View full text Add to dashboard Cite

Patterns of internet use by parents of children attending a pediatric surgical service

Abstract: We demonstrated significant use of the internet amongst those attending paediatric general surgical services. Clinician sourced information remains important, however we should engage with patients to utilise this vast resource effectively.

Cited by 34 publications

References 11 publications

Internet Use by Parents of Children With Rare Conditions: Findings From a Study on Parents’ Web Information Needs

Internet Use by Parents of Children With Rare Conditions: Findings From a Study on Parents’ Web Information Needs

Informações on-line como suporte às famílias de crianças e adolescentes com doença crônica

Disparity in online health information in pediatric vs. adult surgical conditions

Contact Info

Product

Resources

About