Patients with univentricular heart in early childhood: parenting stress and child behaviour

Abstract

Hypoplastic left heart syndrome, a severe congenital heart defect, increases parenting stress. The reported emotional maladjustment in affected children might in part be owing to somatic complaints.

Psychosocial Experiences of Parents of Infants With Hypoplastic Left Heart Syndrome in the PICU

“…Indeed, a recent study identified higher levels of stress in parents of children with HLHS compared with parents of children with other univentricular heart defects (32). Indeed, a recent study identified higher levels of stress in parents of children with HLHS compared with parents of children with other univentricular heart defects (32).…”

“…Difficulties for parents, arising in PICU, may continue well after their child's discharge (11,16,27,(29)(30)(31)(32). Difficulties for parents, arising in PICU, may continue well after their child's discharge (11,16,27,(29)(30)(31)(32).…”

New concepts in predicting, evaluating, and managing neurodevelopmental outcomes in children with congenital heart disease

“…Sarajuuri et al [20] assessed perceptions of child behavior and parenting stress among the parents of young children with HLHS and other forms of single-ventricle CHD. Sarajuuri et al [20] assessed perceptions of child behavior and parenting stress among the parents of young children with HLHS and other forms of single-ventricle CHD.…”

Single-ventricle infant home monitoring programs

“…Carlo et al [33] found patients who died or required transplant between S2P and Fontan completion were more likely to have a low weight for age z-score (WAZ) at S2P. Various researchers have demonstrated a high level of parental stress in households of single-ventricle children, especially at the time of initial hospital discharge [35,36]. Ensuring normal infant growth has become a priority of HMP management, and is the primary aim of the initial quality improvement goal of the ].…”